Get practical tips for managing HAE: https://bit.ly/45ymVLd

#DailyLiving #HAEManagement #PatientTips #RareDiseaseLife #HealthSupport #AngioedemaNews #Bionews

Get practical tips for managing HAE: https://bit.ly/45ymVLd

#DailyLiving #HAEManagement #PatientTips #RareDiseaseLife #HealthSupport #AngioedemaNews #Bionews

#HAE #HereditaryAngioedema #RareDisease #RareDiseaseLife #ChronicIllness #InvisibleIllness #PatientVoices #RareButReal #BioNews #AngioedemaNews

Winter prep guide for CF: Get recommended vaccines, lessen winter air impact, keep treatments on track, add moisture indoors, support well-being, limit contact with sick people.

Stay winter ready: https://bit.ly/4pQ9oFG

Cold, dry air and peak virus season can make the colder months tougher for people with CF.

#CysticFibrosis #CysticFibrosisNewsToday #Bionews #ChronicIllnessCommunity #RareDiseaseLife

Feel your rhythm shift: https://bit.ly/48l0Cd1

Sarah’s reflection offers a grounded look at how MG can sync with the seasons and why paying attention to those patterns can become its own form of self care. ☔

#MyastheniaGravis #MyastheniaGravisNews #RareDiseaseLife #Bionews

Get practical tips for managing HAE: https://bit.ly/45ymVLd

#DailyLiving #HAEManagement #PatientTips #RareDiseaseLife #HealthSupport #AngioedemaNews #Bionews

Get practical tips for managing HAE: https://bit.ly/45ymVLd

#DailyLiving #HAEManagement #PatientTips #RareDiseaseLife #HealthSupport #AngioedemaNews #Bionews

Yorvipath for injection medication boxes. White with orange highlights. Popegteriparatide for injection.

After years of clinical trial and advocacy work, and my first commercial shipment for my Hypopara treatment has arrived!

#hypopara #rarediseaselife

An example on what it’s like to have a rare disease:

I’ve had #hypoparathyroidism for 22 years, which means I need to control my calcium levels from outside my body. It comes with brain fog.

I just spelled hypoparathyroidism wrong on an important document 🤣🤣

Silly goose alert 🪿

#rarediseaselife