Addressing Disproportionate Burnout Among SCD Specialists Hematologists who specialize in the treatment of sickle cell disease (SCD) experience significantly higher rates of burnout.

Hematologists who specialize in the treatment of #SickleCellDisease experience significantly higher rates of burnout. Why is that?

https://bit.ly/4mwj6Ni

Make sure you save this post for your next appointment.
#Sicklecelldisease #sicklecellawareness #diabetes #awareness #parenting

Life Update: First time I've ever had surgery was in February. Last year the necrosis caused by #SickleCellDisease damaged my shoulder joint and I had to have mandatory replacement surgery. I've been stressed and terrified for a year but now it's done and I have another scar...blegh.

Findings from a retrospective study on trends in #hydroxyurea (HU) use in #pediatric #SCD following the 2014 #NHLBI guidelines suggest that a lower age of HU initiation may have contributed to a decrease in #cerebrovascular disease: https://ow.ly/LHy050YCneB
#HemeSky #SickleCellDisease

How does the ASH SCD Away Elective Rotation make an impact? Hear from a past participant!

This one-month immersive rotation offers hands-on #SickleCellDisease training in both inpatient and outpatient care.

Apply now: https://ow.ly/1sri50YCYab

#SickleCell #SCD #HemeSky

Agios mulls early FDA filing for sickle cell therapy Agios is planning to file its sickle cell disease candidate mitapivat with the FDA under the accelerated pathway within the next few months.

#Agios is planning to file its #sicklecelldisease (SCD) candidate #mitapivat with the #FDA under the #acceleratedpathway, based on feedback from the US regulator at a recent meeting.

Novel Patient-Reported eDiary Validated for Assessing Sickle Cell Pain Crises Researchers determined an electronic diary demonstrated strong content validity in tracking home-managed sickle cell pain crises in adolescents and adults with SCD.

A novel patient-reported outcome tool designed to capture home-managed sickle cell pain crises demonstrated strong content validity in adolescents and adults with #sickleCellDisease.

https://bit.ly/4lOwITz

#SCD #SickleCellDisease

Pretransplant RBC Alloimmunization Is Risk Factor for Poor Outcome After HCT in SCD The current study explored whether RBC alloimmunization prior to HCT is linked to post-transplant outcomes and the need for transfusion support.

In pediatric patients with sickle cell disease (#SCD), red blood cell (#RBC) alloimmunization is a significant risk factor for a poor outcome following hematopoietic cell transplantation (#HCT).

Read more: https://bit.ly/4t4Tau3

#RareDisease #HDFN #SickleCellDisease #MedSky

First Ethnopharmacological Report Published on Tanzanian Medicinal Plants Against SCD More than 100 medicinal plants are traditionally used to manage sickle cell disease (SCD) in Tanzania, according to a new survey.

More than 100 medicinal plants are traditionally used to manage sickle cell disease (#SCD) in Tanzania. Study in Scientific African.

Read here: https://bit.ly/4uW3AxK

#RareDisease #SickleCellDisease

Transfusion Approaches Have Different Effects on Inflammatory and Angiogenic Pathways in SCD Researchers determined exchange transfusion and top-up transfusions may display different effects on inflammatory and angiogenic pathways in patients with SCD.

Study identifies distinct impacts of blood transfusions on #SCD. Chronic regimens reduce inflammatory and angiogenic markers, while acute transfusions may increase specific pro-inflammatory cytokines.

Read the review: https://bit.ly/3NmK7FN

#Hematology #BloodTransfusion #SickleCellDisease

The role of hemoglobin F in sickle cell disease complications: a descriptive secondary analysis Key PointsThere was no effect of age, HbF, or sex on TEs using a log odds scale (P = .35, P = .13, and P = .39, respectively).Pulmonary hypertension is ass

"The role of hemoglobin F in sickle cell disease complications: a descriptive secondary analysis" Read in Blood VTH: ow.ly/AIoO50YxxhZ #SCD #SickleCellDisease #HemoglobinF

Woman Diagnosed with Sickle Cell Disease at 2-Months-Old Wakes Up with No Pain for the First Time in Her Life After New Treatment Tatyana Thompson, who was diagnosed with sickle cell disease when she was 2 months old, was successfully cured of the disease after she participated in Johns Hopkins research on sickle cell treatment.

This is great news!

'..Dr. Robert A. Brodsky, published a study revealing that the aforementioned research now has an overall 94% disease-free survival rate.“[A cure is now] available to the majority, almost the entirety, of sickle cell patients.”'

#SickleCellDisease

Accelerated Aging in Young People with Sickle Cell Disease - Aging-US Research Imagine being 15 years old but having a body that shows signs of aging as if you are decades older. For some young people with sickle cell disease (SCD), this is a reality. A new study published in Vo...

✅ Read our #blog post about the #research paper, titled "Adolescents and young adults with sickle cell disease exhibit accelerated aging with elevated T-cell p16INK4a expression."

#Summary ⬇️
aging-us.org/2024/12/acce...

#aging #sicklecelldisease #trendingwithimpact #oa #publishing #summary

A series of @cincyresearch.bsky.social reviews on #SickleCellDisease @drpowerhays.bsky.social
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Hematology-oncology trained #sicklecelldisease physicians experience significantly more burnout than their non-SCD counterparts, according to a new study led by Dr. Valentina Restrepo.
hematology.org/newsroom/pre...
@yale-hematology.bsky.social

Fantastic to have Dr. Alexis Thompson visit #Stanford
Advances in the treatment of #SickleCellDisease have been extraordinary, extending access to more patients is critical - check out #FutureofMedicine podcast with our Chair, Dr. Euan Ashley!
@euanashley.bsky.social @stanforddeptmed.bsky.social

Stem Cell Transplantation Preserves Long-Term Cardiac Function in Pediatric Sickle-Cell Disease Pediatric patients with SCD who receive hematopoietic cell transplants generally show stable to improved long-term cardiac function.

After allogeneic hematopoietic cell transplantation (#HCT), pediatric patients with sickle cell disease (#SCD) show overall stable to improved cardiac function. Reported in Transplantation and Cellular Therapy @astct.bsky.social

Read more: https://bit.ly/4b7bxXI

#RareDisease #SickleCellDisease

🌈 Rare Disease Day 2026 • 28 février
🎗️💙 Aux patient·e·s, aux familles, aux soignants et auxchercheurs qui avancent avec courage et détermination

#RareDiseaseDay #RDD2026 #Innovhem #Hématologie #SickleCellDisease #DataForImpact #MaladiesRares

Medicaid has a new way to pay for costly sickle cell treatment: Only if it works Medicaid is doing a novel payment system for the new, promising and expensive sickle cell treatment. It may become a model for all gene therapies being developed.

My Take: This is promising.

#sme #NationalPolitics #health #theculture #SickleCellDisease #NPR

www.npr.org/2026/01/20/n...

illustration of microfluidic device

Exciting new paper from IGI's Petros Giannikopoulos and collaborators, who have created a microfluidic obstacle course for red blood cells to measure red blood cell health in individuals with #SickleCellDisease. Read here: https://ow.ly/rSkf50YirHR

❤️ February is American Heart Month!

People living with sickle cell disease (SCD) face unique heart health risks. Learn practical tips to support cardiovascular health here: https://ow.ly/NeSp50Ycomr

#AmericanHeartMonth #SickleCellDisease #HeartHealth #PatientAdvocacy

The SCDC is excited to join community members and advocates at the 2026 #SCDPolicyForum, hosted by Sick Cells and the Sickle Cell Consortium

🗓️ March 17–18, 2026 | Virtual
Register: https://ow.ly/wRb150YcnP7

#SickleCellDisease #Advocacy #SickleCellAwareness

Do you live with Sickle Cell Disease, or have a loved one who does? What is one thing you wish people knew about SCD?

#sicklecell #sicklecelldisease #raredisease #chronicillness

Defying Early Prognosis, Texas Man Now Advocates for Others With Sickle Cell Disease Doctors didn't expect Golie-Lorenzo Green, now 45 years old, to reach his 5th birthday

Golie-Lorenzo Green shares his personal experiences of this 'complex and devastating condition' with the goal of advancing public understanding, compassion, and treatment discovery of #SickleCellDisease.

Read here: https://bit.ly/4r73YXS

#RareDiseaseMonth #RareDisease

18/ Marilyn Hughes Gaston, MD

- research led to nat’l #sicklecelldisease screening program
- 1st Black woman to direct Bureau of Primary Health Care in US Health Resources & Services Administration
- 2nd Black woman to serve as asst Surgeon General

#BlackHistoryMonth #BHM

👥 Our first SCDC-wide meeting of 2026 is Feb 25!
We’ll share highlights from the ASH Annual Meeting and research submissions.
Members, we hope to see you there! Not a member? Apply here 👉 : https://ow.ly/PzMu50Ycmog

#SickleCellDisease #ResearchCommunity #SCDC #ASHAnnualMeeting

Sickle cell pain can be overwhelming—and getting help is nothing to be ashamed of. Pain medications/support can be a normal part of care. Talk to an expert today.
📍 430 Cannon St E, Hamilton | 🌐 www.hucchc.com | 📞 905-522-3233
#hamONT #hucchc #hamiltonurbancore #SickleCellDisease #PainManagement

📣 Peer Learning Exchange | Feb 17: Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA.

🔗 Register: https://ow.ly/mi9n50YbVz3

#PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease

Table summarizing medication and cellular treatments for Sickle Cell Disease. Therapies include Hydroxyurea, L-Glutamine, Voxelotor, and potentially curative options like Exa-cel (GT) and Lovo-cel (GT). Messaging varies from 'Life changing' to 'fails to beat placebo'.

💬 Viewpoint: Exaggerated messaging around new #SickleCellDisease therapies has undermined patient trust and transparent, patient-centered communication is needed to support informed decision-making.

ja.ma/4td5HMS

📣 Peer Learning Exchange | Feb 17:
Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA.

🔗 Register: https://ow.ly/5wc650Y6Bu5

#PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease