you cannot judge a chronic illness or disability by its visibility (surrounded by flower pattern) BrainsandSpoons

@BrainsandSpoons

🧵 The article 👆 mentions CBT—we want to add DBT & EMDR to the list of effective therapies + healthy diet + reg exercise + less screen time, and healthy sleep routines. All will help improve #MentalHealth in all ages 🩵🦓🩵
linktr.ee/thezebraalliance #chronicillness #anxiety #anxietydisorders #children

We know handfuls of children (and adults) who struggle with anxiety (disorders), and early intervention and treatment is proven to improve quality of life and academics— no matter age or gender.
🧵
#mentalhealth #healthcare #children #child #anxiety #anxietydisorders #chronicillness #elementaryschool

Chronic illness teaches you who shows up. I'm sending a little thank you to everyone who has ever loved someone through the invisible stuff.
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Colorful promotional graphic for a podcast or video episode. At the top, bold pink text reads "MEDICALLY COMPLICATED CHILDREN". Below is a large pale yellow number 2, part of a swirling design filling the background. The main focus is the prominent "EDS UNPLUGGED" logo in black and yellow, with two images of black women in black athletic wear: one holding a megaphone, another triumphantly holding up crutches. To the right, a smaller text says "sponsored by EDS Awareness Ehlers-Danlos Syndromes" with the organization’s logo. At the bottom right, there is Donna Sullivan, a woman with brown hair, wearing glasses on her head, smiling and sitting with her arms resting on a giraffe-patterned cushion. Pink text reads "DONNA SULLIVAN" with an oversized black ampersand beside it. The overall design is lively and emphasizes awareness and support for medically complicated children and Ehlers-Danlos syndromes.

EDS Unplugged podcast Episode 2: Medically Complex Children - interview with Donna Sullivan, producer of COMPLICATED

www.chronicpainpartners.com/episode-2-me...

#EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndrome #Zebras #NEISVoid #Disability #Medicine #FII #MedicalKidnap #Doctors #MedSky

a man wearing a wig and sunglasses is in a red circle with the word ai in white Alt: a man wearing a wig and sunglasses is in a red circle w slash with the word ai in white

In our opinion: AI + Mental Health(care for anything other than websites and transcription) = Scary and Stupid. Healthcare needs human empathy and touch, especially in therapeutic situations.

Contact your State Reps ASAP and tell them how you feel about this! 👉 www.congress.gov/members/find... 👉 Do NOT cut ANY funding!

Thank you, Senator Warren, for standing up for those of us who need it the most 🙏⚕️🙏

#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability

Best Tips for Preventing a Pain Flare (from 40 People with Chronic Illness)

"The tricky thing about #ChronicIllnesses are how individualistic they are. Even people #suffering from the same #illness can present vastly different symptoms & use opposite strategies to cope.": buff.ly/07HldEi

#ChronicPain #ChronicIllness #InvisibleIllness #disability #spoonies #awareness

A presentation slide with the headline “Diagnosis Is Only the First Step” in large teal text. Below, black text explains a collaboration with the Program in Global Primary Health Care at Harvard Medical School’s Office for Research Initiatives and Global Programs, and the Brigham and Women’s Hospital Division of Global Health Equity. On the right, the Ehlers-Danlos Society logo and the words “Models of Care” appear in teal and black. The background is light with subtle abstract shapes.

We are proud to collaborate with the Program in Global Primary Health Care based at Harvard Medical School @harvardmed.bsky.social Office for Research Initiatives and Global Programs, and the Brigham and Women’s Hospital @brighamandwomens.bsky.social Division of Global Health Equity.

🤣😂🤣

#EDS #hEDS #ehlersdanlossyndrome #ehlersdanlos #EDSmemes #memes

Stop Victim Blaming. Chronic illness comes from a highly complex mix of genetics, environmental factors, trauma and more. Being chronically ill is not a personal failure.

Stop Victim Blaming!
Enough is Enough!

"Don't try to “fix” us, regardless of your intentions. Believe me, we’re trying, and we’ve heard it all before." - Alana Saltz

linktr.ee/thezebraalliance
#chronicillness #raredisease #invisibleillness #disability #EDS #ehlersdanlossyndrome #mentalhealth #HSD

a bald man stands in front of a group of people and says it 's dr. evil i did n't Alt: Austin Powers, Dr Evil meme: "Its Dr Evil, I didn't spend 6 yesrs in Evil Medical School to be called "mister," thank you very much.

Need to start offering scholarships to anyone who qualifies! 👩‍🏫
The medical professional shortage is going to get REALLY bad sooner rather than later because school is way too expensive (and people are lazy). Same issue with any 4+ yr degree, like a law degree. 🩺⚖️

🛌 PJs
⚕️ Pain Relief (OTC pain relief technically covers balms/creams/salves, and stuff like Volatrin and SalonPas)
📺📱 Media

Compassion and patience for yourself are acts of true bravery: be kind to yourself. 💕 #ChronicIllnessWarrior

We feel this so much 🤭🤣
Do you have "Car Meds"?
Damn, they can be a lifesaver!

#chronicillness linktr.ee/thezebraalliance #healthmeme #memes #meme #jokes

You're allowed to be tired. You're allowed to need a break. You're allowed to lean on others.

If you can relate, raise your hand 🙋🙋‍♀️🙋‍♂️

#healthmeme #autoimmunedisease #meme #memes #jokes #chronicillness #raredisease

Siblings navigate sudden plan changes, disrupted routines & the worries of family life with Hyperinsulinism, yet still show up with so much heart 💓

This #NationalSiblingsDay2026, we’re encouraging CHI Superheroes to make their siblings feel extra special.
#ItsASiblingThing

Early insights from this study, published in @thelancet.com, could help identify at-risk pregnancies and support better outcomes.

www.wrh.ox.ac.uk/news/early-pregnancy-blo...

@medsci.ox.ac.uk 

#MaternalHealth #ChildDevelopment

Rheumatoid Arthritis Guide A-Z: Part One I have been working on this rheumatoid arthritis guide for months! And it’s finally here! I’ve tried to accumulate as many explanations for rheumatoid arthritis patients as possible - which is why…

If you or someone you love is navigating a #rheumatoidarthritis diagnosis, bookmark this post immediately. 📌 Kate Mitchell at Kate the (Almost) Great has been working on this #RA guide for months, and part one is packed with explanations, terminology, and real patient perspective.
buff.ly/1IZVKIP

" #AngelmanSyndrome is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. AS shares symptoms + characteristics w other disorders inc autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs"
#raredisease

Have you heard of Galactosemia?
#Galactosemia is caused by a genetic mutation that affects how galactose is broken down, which leads to toxic buildup that causes liver damage, sepsis, and feeding issues in newborns.
The main treatment: lifelong elimination of lactose/galactose.
#raredisease

@chronicillness.bsky.social STOP MAKING CHRONICALLY ILL PEOPLE FEEL BAD FOR THEIR SYMPTOMS We cancel plans. We’re exhausted. We’re in pain, distracted & forgetful. We get irritable. We shut down. We push ourselves too far and pay for it later. We’re sorry. We ARE trying. mybodyistryingtokillme.com

"Please know we're still here. We’re...buried under heating pads, symptoms, + the emotional weight of...bodies that constantly betray us. We’ll come back when we can...And if you can meet us w grace, patience, and memes instead of guilt trips? Youll have our undying gratitude."

#chronicillness

Somewhere in the world a tree sprouted the same day you were born and has been growing alongside you and I think this is my favorite nature fact. 🥰

We love this 💖🌳💖

linktr.ee/thezebraalliance #mentalhealth #chronicillness #inspirationalquotes

Get paid as a caregiver for a family member | USAGov Some government programs pay family or friends of people with disabilities to help with daily activities. This can include personal care, giving medicine, cooking, and cleaning.

The medical system truly does "abuse"/take advantage of caregivers. 😞

Something to look into if in N America: There are state/provincial and vet programs, plus some private insurance plans, that pay a family member who is a carer, and most also offer carer training.

When Celine Dion shared that she had Stiff Person Syndrome, we had to look it up.
We know its very rare, but if you live with SPS or know someone who does, please share something you wish people knew 🩵🦓🩵
#stiffpersonsyndrome #raredisease #chronicillness #rarediseases #SPS

Online Resources for Understanding and Living With EDS and HSD Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the skin, joints, and blood vessel walls. Because it is a complex and often misunderstood condition, finding reliable...

Have you been looking for information, resources, and support? Give our blog post a read. 🩵🦓🩵

linktr.ee/thezebraalliance #EDS #ehlersdanlossyndrome #ehlersdanlos #hEDS #HSD #hypermobilityspectrumdisorder #hypermobility #chronicillness #EDSresources

When you discover that you're on Gods "Strongest Warriors" listen again next year...

Medically speaking, I am the corner of a fitted sheet that keeps popping back up.

Yoga cured me! ** official sources stated that this is false and misleading

If you dont follow @chronicillness.bsky.social you definitely want to 👌😄 One of our faves for giggles 🤗

#memes #meme #jokes #chronicillness linktr.ee/thezebraalliance

We are curious about your thoughts: What do you think of parking and min accessible parking space requirements?
🚗♿️🚗
linktr.ee/thezebraalliance #disability #dynamicdisability #accessibility #accessibleplaces