Black cat from the Simpsons breathing fire.
If my body could just chill, that would be greeeeaaaat. #chronicillness #elhersdanlos #POTS
Black cat from the Simpsons breathing fire.
If my body could just chill, that would be greeeeaaaat. #chronicillness #elhersdanlos #POTS
Officially referring to my cardiologist appointments as Cardi B appointments to make it more tolerable.
#pots #elhersdanlos
When it’s not even 9am and you’re breaking out the magic bag and tens machine 😵💫🤯
Oh and the 6yo is wanting 2nd breakfast 😶
#Hypermobile
#Disability
#ElhersDanlos
#SleptFunny
Took a fall tonight at work and I just KNOW that I fucked up my entire body.
#chronicallyill #spoonie #elhersdanlos #EDS
Blog post from Jeannie Di Bon on Aging with EDS
#EDS #hEDS #hypermobility #elhersdanlos #chronicillness
This is hilarious, but since there isn’t an Edit button yet-
#disabled
#resist
#chronicillness
#migraines
#ElhersDanlos
#deimatters
#disability
#CanadaSky
#SupportLibraries
📚🇨🇦🦋💙🫶🤓
bsky.app/profile/doin...
Vascular Elhers-Danlos syndrome - By Ruben Monteiro (fellow of Internal Medicine, Dijon, France) #ElhersDanlos #InternistAcademy 2024
Syndrome d'Elhers-Danlos vasculaire - Par Ruben Monteiro (Interne en Médecine Interne, Dijon, France) #ElhersDanlos #InternistAcademy 2024
Nice little EDS summary video from Dr Clair
#elherdanlossyndrome #elhersdanlos #EDS #chronicillness
youtu.be/9I1kHUvu_0A?...
A slide by The Ehlers Danlos Society, which says, "A dislocation is where the bones in a joint fully separate from each other" and shows diagrams of a normal and dislocated shoulder joint.
A slide by The Elhers Danlos Society, which says, "A subluxation is where the bones in a joint slip over each other more than they normally should but do not separate or dislocate from each other" and shows diagrams of a normal and subluxed shoulder joint.
A slide by The Ehlers Danlos Society, which says, "These events can happen at different sites in the body. The more common places are, for example the jaw joint, shoulder, thumb, and knee cap." and includes diagrams of the named joints.
A text only slide by The Elhers Danlos Society, which says, "Dislocations and subluxations can be painful and cause injury to the tissues in and around the joint. The experience of a dislocation can be extremely painful and distressing, and require urgent medical attention.
Useful slides from @ehlersdanlos.bsky.social on dislocations and subluxations
#hEDS #EDS #elhersdanlos #chronicillness
If you are any of these or just want new friends, like me, please follow me & I’ll follow back!! Just comment!!
#fosterparent
#parent
#amputee
#Deaf
#disabled
#wheelchairuser
#osseointegration
#dogmom
#axolotlmom
#POTS
#ElhersDanlos
#CRPS
#Navywife
#LGBTQIA+
#bisexual
#nonbinary
#survivor
Keeping an eye on this! 👀
#hEDS #HSD #elhersdanlos #chronicillness #invisibleillness
Anyway... Today is mostly a splat day, and I'm ok with that. Thank you @stickmancomms.bsky.social for the reminder. #hEDS #PoTS #elhersdanlos #invisibleillness #chronicillness #chronicpain #chronicfatigue
2/2
Je cherche des conseils de personnes avec #SED et/ou sensibilité cutanée pour l'aider.
Si vous pouvez partager auprès de personnes concernées, ça me plairait bien.
#ElhersDanlos
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#SED #ElhersDanlos
Mon fils ado a un SED. Le symptôme principal chez lui est la fragilité et la sensibilité cutanée, ce qui engendre une difficulté pour la toilette, frotter sa peau (cuir chevelu inclus) pour se laver étant douloureux.