💙🙌🏽 so needed. Humbled and proud to see this.

#bethechangeyouwishtoseeintheworld
#thereforME #fundtheplan #MyalgicEncephalomyelitis

Photo of a smiling lady wearing a Santa hat in a polaroid-style frame on a starry background, marked with a bright star labelled ‘24’. Text says: ‘Thank you for being #ThereForME, Rosie Barrett!’ and ‘Advent Calendar 2025’.

Graphic of a letter on a starry blue background. The letter says “You are a carer for your sister, Alice, & you still find time to be an incredible advocate for her & the ME community. You have spoken on the news, you have started petitions & you have raised awareness of ME charities. Thank you ❤️” Hashtag #ThereForME at the bottom.

December 24th. Thank you for being #ThereForME, Rosie Barrett!

Rosie is a carer to her sister Alice and was featured this year by BBC Spotlight championing our #FundThePlan campaign. Nominated by Lauren. ✨

#FundThePlan! The price of inaction will be much worse on this. Autoimnunity will only grow in time...

@ashleydaltonmp.bsky.social

Others don't want to acknowledge it, but a gvt not acting on this is a gvt that will spend at least 3 or 4 times more in the next decade buying patents and incurring productivity losses.

Political cowardice, medieval thinking, and criminal inaction, is costly.

#GreatestMEdicalScandal
#FundThePlan

Seems to be a theme for the current government; make a plan but don’t back it with any meaningful money for it to actually work…

People have been knowingly dying of ME for decades & nothing is being done. There isn’t one specialist service in the NHS

#SevereME #JusticeForME #FundThePlan #LongCovid

@ashleydaltonmp.bsky.social
The complete absence of NHS services for severe M.E. patients is killing people. This happened to Maeve in oct '21 and is still happening EVERY SINGLE DAY in the NHS.

I am getting really fed up of signing these petitions. Something HAS to be done NOW.

#FundThePlan

A lot of work (and support from volunteers!) has gone into some of our bigger campaigns.

From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇

Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW • Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...

Thank you for your tireless advocacy🙏🙏Precious precious progress! 👏👏

...ALAS no funded govt action for our bedbound children & loved ones #FUNDtheplan

Staggering numbers affected. With half of LC sufferers progressing to ME
you.38degrees.org.uk/petitions/in...
@longcovidkids.bsky.social

Thank you for your tireless advocacy!
👏👏 Precious progress!

...BUT no funded action for our bedbound children and loved ones
#FUNDtheplan #FUNDtheplan #FUNDtheplan

Half of long covid suffers progress to ME
you.38degrees.org.uk/petitions/in...
@longcovidkids.bsky.social

Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW • Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...

Thank you for your tireless advocacy @karenlhargrave.bsky.social 👏👏 Precious progress!

...BUT no funded action for our bedbound children and loved ones
#FUNDtheplan #FUNDtheplan #FUNDtheplan

Half of long covid suffers progress to ME
you.38degrees.org.uk/petitions/in...
@longcovidkids.bsky.social

Image showing the UK Houses of Parliament with Big Ben and a red double-decker bus in the foreground. Action for ME's logo is in the top right corner. A banner reads: “Policy news – Department of Health & Social Care releases the Final Delivery Plan on ME/CFS.”

Statement from Action for ME Chief Executive Sonya Chowdhury on the Department of Health & Social Care’s Final Delivery Plan on ME/CFS. The quote welcomes parts of the plan, such as tackling stigma and training, but criticises it for not going far enough and says people with ME feel ignored. The Action for ME logo appears in the top right corner.

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❗️ DHSC publishes the Final Delivery Plan on ME/CFS

The Department of Health & Social Care has published the Final Delivery Plan on #MECFS

We have issued a detailed statement on our website 👇

www.actionforme.org.uk/dhsc-publish...

#pwME #MyalgicE #MyalgicEncephalomyelitis #FundThePlan

⬇️

The government have been promising a plan for ME but… nothing either.

They could do either of these things if they wanted to so people are left to assume Labour just don’t care enough to keep a promise.

#NukedBloodScandal
#FundThePlan
#TakingThePIP
#SevereME

Petition: Provide more funding for further biomedical research and education on CFS/ME We want the government to provide more funding for further biomedical research and education on myalgic encephalomyelitis (ME)/chronic fatigue syndrome. ME Association UK estimates there are currently...

Petition: Provide more funding for further biomedical research and education on CFS/ME petition.parliament.uk/petitions/72... #MECFS #pwME #FundThePlan #ThereForME

Very grateful to all 72 Lib Dem MPs for their support re the delayed Delivery Plan for #MyalgicEncephalomyelitis. Further evidence of systemic neglect, broken promises, lack of candour. People with ME have had decades of this already. Many have died waiting for change. #whereistheplan #Fundtheplan

Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise

3/3

As we understand, the Final Plan will not be published until after the release of the NHS 10-Year Plan. We are continuing to advocate for its immediate release, & proper funding. Further delays are unacceptable

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan #FundThePlan

If you had followed Maeve’s case or done due diligence after the fact on her death & the lack of provision for #VerySevereME in NHS care, you’d only say such things if you’re a propagandist against ME patients having a care plan.

#FundThePlan #MillionsMissing #ThereForME

The Years…….the years.
#ME #MEcfs #MillionsMissing #FundThePlan

As ever, an informative summary of some really great things that give me hope. Thank you everyone at #ThereForME ♥️

Also a big thank you to all 72 Lib Dem MPs for their support to fund the M.E delivery plan. I hadn't realised that all had signed and it means a lot.
#FundthePlan
#LiberalDemocrats

Donate to Help Marc escape medical harm and survive very severe ME, organised by Kollektivhaus Wurze Marc Shcherbatko is a 21-year-old from Kharkiv, Ukraine, livi… Kollektivhaus Wurze needs your support for Help Marc escape medical harm and survive very severe ME

Donate & share - Help Marc escape medical harm and survive very severe ME #MECFS #SevereME #PwME #StillTheSaME #FundThePlan #MillionsMissing gofund.me/d2b3e26e

Please give our video a thumbs up on YouTube!
'Don't shut the door on us' if you support the advocacy of these young people.

www.youtube.com/shorts/6JRF4...
#YoungVoices #YouthAdvocay #FundThePlan #LCandME #FundOurFuture

Thank you @stephenctimms for meeting with #APPGME and #APPGLongCOVID and agreeing to my request to speak to @DHSCgovuk to fund research that would enable #pwME to get better, go to work, and come off benefits. Wins all round! #FundThePlan

I used the opportunity of DWP questions on #WorldMEDay to ask that Liz Kendall talk to DHSC to make funds available for research so that #pwME could do what they want more than anything which is to live a normal life, go to work, and not have to try to survive on benefits. Win-win. #FundThePlan

On #MECFSAwarenessDay I'm calling for government to #FundThePlan.

A plan for #MECFS with no funding is no plan.

It's time for government action.

#MillionsMissing @ashleydaltonmp.bsky.social

May – ME Awareness Month I never look forward to ME Awareness Month with a sense of anticipation, more of existential dread. But I realise it is important for the many suffering with this much maligned condition, that the …

You can tell I'm a pwME. I got the title wrong! It's ME Awareness Day. Never mind, it says what it needs to say.😎 Shares welcomed.💙 #InvisibleIllness #MEawareness  #FibromyalgiaAwareness #MultipleChemicalSensitivity #MEAwarenessDay #FundThePlan #CanYouSeeMENow

hopefoundinme.com/2025/05/12/m...

Photo of Darren (white man with long, grey beard, a closely shaved head, and wearing a black hoodie) lying on a black sofa with head resting on a cushion.

It's #MECFSAwarenessday.

I have #LongCovid but symptoms that are very, very similar to #MECFS.

I stand with those that have struggled with #MECFS for decades and call for urgent research and government action.

#MillionsMissing #FundThePlan

Photo showing the UK parliament in black and white, with SOS MILLIONS MISSING UK superimposed in large white letters

There are #MillionsMissing from their lives. WE NEED MORE FUNDING

Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?

@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social

2/3

Read our joint statement here: tr.ee/TsXPjMdu1A

#pwME
#pwLC
#MyalgicEncephalomyelitis
#FundThePlan
@ashleydaltonmp.bsky.social
@rthonwesstreeting.bsky.social
@joplatt.bsky.social
@eddavey.libdems.org.uk
@tessamunt.bsky.social

It’s official: the @libdems.org.uk are #ThereForME ! 🧡

Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt.bsky.social ahead of World ME Day.

They’ve joined our call to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social to #FundThePlan