In 2023, I learned I have #Antiphospholipid #Syndrome aka #HughesSyndrome. I have sticky blood which is responsible for blood clots. 1 in 2,000 people have #APS. I'm now high risk for stroke, heart attack, DVT, and PE. I am rare! #RareDiseaseDay #StopTheClot #LightUpForRare

In 2023, I learned I have #Antiphospholipid #Syndrome aka #HughesSyndrome. I have sticky blood which is responsible for blood clots. 1 in 2,000 people have #APS. I'm now high risk for stroke, heart attack, DVT, and PE. I am rare!

#RareDiseaseDay #StopTheClot #LightUpForRare

Yeap! Lately, this has been happening a lot lately #chronicillness #brainfog #hughessyndrome #fibro

This year, after a long time in silence, my Hughes Syndrome has decided to flare up again and mess up with all my blood tests . I am absolutely worn out. So much has happened this year… #chronicalillness #hughessyndrome #aps #decompensated

Feeling #sick I hate the side effects of my #meds. #lupus #lupusawareness #aps #hughessyndrome #Diabetes

Night all sleepers have kicked in. #hospital #lupus #lupusawareness #aps #hughessyndrome #Diabetes No #insomnia please...

So hello again #insomnia is back Thankyou #lupus #lupusawareness #aps #hughessyndrome #steroids. Anyone want to entertain me?

Does not feel like Christmas at all. :( #hospital #lupus #lupusawareness #aps #hughessyndrome #Diabetes

My body is shattered. MY mind is active. Bloody #lupus #steroids #insomnia #bed #aps #hughessyndrome

Pint 3 of blood going in. #lupus #lupusawareness #aps #hughessyndrome

Sleepy time. Am #shattered #lupus #lupusawareness #aps #hughessyndrome #steroids #bed

So my #steroids #insomnia has kicked in. Thank god for @KelloggsUK #cornflakes. #lupus #bed #aps #hughessyndrome #steroids #snack #yum

Bed comfy. Joint pains less so.... #lupus #lupusawareness #aps #hughessyndrome #bed

Since my diagnosis my friends, family and @nusuk work colleagues have been #amaze. Made it all possible. #lups #aps #hughessyndrome

CT Scan tomorrow to see if I have a brain. #fb #lupus #aps #hughessyndrome

Been awake for 22 hours. Bloody #lupus #shattered #tired #aps #hughessyndrome. Need #sleep .#fb #tum

Been awake for 22 hours. Bloody #lupus #shattered #tired #aps #hughessyndrome. Need #sleep .

#steroids make me so hungry. #lupus #aps #hughessyndrome

Hmm #stiff #joints. :( #lupus #aps #hughessyndrome

I feel like I am king of the world. #steroids #lupus #aps #hughessyndrome

Joint pains #agony #lupus #aps #hughessyndrome

Lovely 4 hours sleep, 2 more would be #amaze #lupus #aps #hughessyndrome #tired

carbs are the key to energy. #lupus #aps #hughessyndrome

Pretty rubbish when I don't have the strengh in my hands to turn on a tap. #lupus #aps #hughessyndrome

Bloody steroids just troffed beans on toast and biscuits. #lupus #steroids #snack #hunger #aps #hughessyndrome

Bedtime reading. #lupus #bed #aps #hughessyndrome #steroids

Hunger strikes again. #lupus #bed #aps #hughessyndrome #steroids #snack #hunger

Not gonna lie insomnia is shit. #lupus #bed #aps #hughessyndrome

Bed time reading. #lupus #bed #aps #hughessyndrome