It's Stress Awareness Month.
Lets talk about #Antiphospholipid Syndrome (#APS), chronic illness, dealing with doctors and insurance this month & the stress of it all and how to deal with it. How do you deal with the stress?
Let's talk about #chronicillness #medicalstruggles #insurancenightmares
Low platelets (#thrombocytopenia) in APS may signal higher clot risk. A cohort of 211 people with #antiphospholipid antibodies found low platelets in 20% and linked to more clots/recurrence: www.thrombosisresearch.com/article/S0049-3848(25)00294-4/fulltext #APS #Research
APS Support UK graphic titled “Latest Research”. A stylised browser window shows the headline: “Seronegative APS: could additional antibodies help identify ‘triple-negative’ APS cases?” On the right, a green chalkboard reads “Negative” and “Positive” with a tick next to “Negative”. APS Support UK logo appears at the bottom left, with soft red blood-cell shapes in the background.
New research looked at additional #antiphospholipid antibodies in people with #APS -type symptoms but negative standard tests (“triple-negative”/possible seronegative APS). It suggests aPS/PT IgM may help in some cases—needs more validation: pmc.ncbi.nlm.nih.gov/articles/PMC12766841 #SeronegativeAPS
“”Are we overlooking the “Tetra-Positive” #APS patient? #LupusAnticoagulant (LAC) remains our most valuable predictor of #thrombosis, yet it is plagued by analytical interference & false positives.”: buff.ly/QkaHQA7
from hemostasistoday
#antiphospholipid #rheumatology
Medications that Antiphospholipid Syndrome Patients Need to be Aware of
"Patients who are on #anticoagulants ironically run the risk of excessive #bleeding or a #haemorrhage, and not all DOACs have an antidote; the antidotes that are available are also expensive.": buff.ly/RdAXTRo
#medications #InvisibleIllness #Antiphospholipid
#Antiphospholipid antibodies (aPL) & IVF/ICSI. Review suggests some studies associate aPL with lower implantation/live birth; proposed mechanisms include inflammation, altered endometrial receptivity, and clotting pathways. Evidence remains inconclusive: journals.lww.com/npmj/fulltex... #APS #IVF
#MedNews - Many patients with #antiphospholipid syndrome have uncontrolled cardiovascular risk factors, with primary #APS patients showing particularly poor target attainment.
Full story 👉 buff.ly/xZmNlL6
#RheumSky
Lupus in the News: A new study reveals describes important information on #lupus and #blood clots (thromboembolisms), including the importance of the first year of symptoms and the overlap of #antiphospholipid syndrome.
Here is the link: rmdopen.bmj.com/cont...
"The control of these factors, when modifiable, is a winning strategy to improve #APS management in real life. Promising tools for a curative potential are in progress, but still not available.": buff.ly/MZlYfoe
via ScienceDirect
#Antiphospholipid #AntiphospholipidSyndrome #MedSky #MedicalResearch
Lesson from this past week:
Isolated elevation of anticardiolipin IgM does not meet laboratory criteria for antiphospholipid syndrome! According to EULAR 2023 guidelines below. #medsky #IMsky #rheumsky #hemesky #antiphospholipid #thrombosis
More "motivationals"
...
#autoimmune #lupus #SLE #ankylosingspondylitis #antiphospholipid #APS #fucklupus #transversemyelitis #ms #multiplesclerosis
A to Z Antiphospholipid Syndrome Guide - for patients, by a patient. (A girl is writing into a notebook, with her laptop beside her, as if doing some research.)
"Many #COVID19 patients suffer from hypercoagulation. Whilst they may not have the #AntiphospholipidSyndrome disorder itself, greater than 80% had detectable #antiphospholipid #antibodies in their bodies": buff.ly/aTJ6Vzc
#AutoimmuneDisease
podcasts.apple.com/jp/podcast/a...
🎧Also one of my favorite rheum topic ❤️
#antiphospholipid #APS #Rheumsky
Catastrophic #Antiphospholipid Syndrome or #CAPS is a complication of #APS.
CAPS is very rare, and in about half of the cases, the APS patient does not survive.
Has anyone survived CAPS?
Have you lost a loved one due to #CAPS?
Organizations Sticking Together to Advocate for You, Push for Better Treatment, and Work Towards a Cure on World APS Awareness Day! Awareness Month - Day 9: Today is World APS Day, the global awareness campaign aimed at raising awareness of #Antiphospholipid Syndrome and its impact on our lives.
Today is World APS Day, the global awareness campaign to raise awareness of #Antiphospholipid Syndrome and its impact on our lives.
#APS is an incurable, life-threatening autoimmune condition that causes the blood to clot too quickly.
The 2023 #ACR / #EULAR #Antiphospholipid Syndrome Classification #Criteria were developed to enhance the accuracy of #APS classification in research settings. These criteria incorporate both #clinical and #laboratory findings, assigning weighted scores to various manifestations.
Read The Post - The Problems Of Being A Female With Antiphospholipid Syndrome. (A woman and some flowers can be seen.)
"I’ve been unlucky to have had 2 #OvarianCyst #rupture episodes that were of life-threatening status. The pain was acute & came on suddenly. Within 4 hours I was doubled over, swollen & bloated with pain & had to crawl to the hospital.": buff.ly/UeXFlMl
#ChronicPain #MondayBlogs #Antiphospholipid
This information is designed for individuals with #asymptomatic #antiphospholipid antibodies (#APLA)—that is, those who have the antibodies but have not experienced blood #clots or #pregnancy loss.
Are you an asymptomatic APLA patient?
How are they treating you?
Diagnostic, research, and real-life effect of the 2023 EULAR−ACR classification criteria for antiphospholipid syndrome
#APL #antiphospholipid
www.thelancet.com/journals/lan...
In 2023, I learned I have #Antiphospholipid #Syndrome aka #HughesSyndrome. I have sticky blood which is responsible for blood clots. 1 in 2,000 people have #APS. I'm now high risk for stroke, heart attack, DVT, and PE. I am rare! #RareDiseaseDay #StopTheClot #LightUpForRare
In 2023, I learned I have #Antiphospholipid #Syndrome aka #HughesSyndrome. I have sticky blood which is responsible for blood clots. 1 in 2,000 people have #APS. I'm now high risk for stroke, heart attack, DVT, and PE. I am rare!
#RareDiseaseDay #StopTheClot #LightUpForRare
Latest Research On Antiphospholipid Syndrome (2024 Edition) (Photo of a person working at a desk with a laptop, coffee, and notebooks.)
"In basic terms, what this means is that β2GPI has implications in #coagulation and #AntiphospholipidSyndrome. Future therapies may target the blocking of these interactions, in order to reduce the cascade of #thrombosis": buff.ly/4aF9S9O #ChronicIllness #antiphospholipid
Pediatric antiphospholipid syndrome: expanding our understanding of antiphospholipid syndrome in children
#APS #antiphospholipid #Pediatric #Children
journals.lww.com/co-rheumatol...
“ #SLE patients with positive [ #antiphospholipid #antibodies], especially positive aCL IgG/IgM and LA, warrant more care and surveillance of future [atherosclerotic #CardiovascularDisease] events during follow-up”: https://buff.ly/4gY1ZA0 #lupus
CW: death
.
"What I didn’t know was that the #doctor had taken [my #mother] aside in private, and had told her that if I didn’t make it through the night, I was probably going to die from the massive #PulmonaryEmbolism": https://buff.ly/3EgHIaN #MondayBlogs #Antiphospholipid
icongroup.co.jp/icapa2025/
📣Abstract submission for #ICAPA2025 is now open❣️
#APS #antiphospholipid #Rheumsky
“This study investigated the risk of different subtypes of [ #antiphospholipid #antibodies] on [atherosclerotic #cardiovascularDisease] in a long-term follow-up, large sample and multi-center #SLE cohort": https://buff.ly/4gY1ZA0 #lupus
"#Oestrogen increases the risk of #BloodClots when used in #contraceptives or as postmenopausal hormone replacement therapy. This can also happen in men who use them as treatment for coronary disease or in sex-change treatment": buff.ly/4e8zMG1 #estrogen #antiphospholipid
