Today is Burgers to Beat MS day at A&W!
Every year I go to this restaurant to buy a Teen Burger and support this cause. This is my mission today!
#MS #BurgerstobeatMS #chronicillness #awareness #keepsmyelin #multiplesclerosis #burger #teenburger #findacure
I am brave. I eat powdered doughnuts while wearing a black shirt. I also have #MS.
#keepsmyelin #disability #justkeepswimming
Dr. Adebiyi kicking off our second session with an exciting talk about demyelination and repair! #KeepSmyelin
An utterly exhausted high school teacher in a messy art room in front of a darkroom door.
But I am le tired 😫
#takeanap #teachingwithMS
#highschoolteacher #artteacher
#MS #multiplesclerosis #keepsmyelin
MRI was stable! 😺
Feeling the expected amount of crummy (I mean, my B cells were killed off today).
I got the "big O" today, and not the fun kind...
#keepsmyelin #ocrevus #MS #multiplesclerosis #nonewlesions
Looking up at an iv bag
Now, it's time to get comfortable (lol) for a few hours in this infusion chair.
Fully equipped with snacks, the Switch, Pokémon and Skyrim!
#ocrevus #ms #multiplesclerosis #keepsmyelin #Shepherdcenter
That was my first time being able to listen to music in the MRI.
🎶Pink Floyd🎶 was an excellent choice!
#keepsmyelin #mri
They call me Ol' Cactus-foot Cabrera
#keepsmyelin
The downside of taking steroids to help manage severe chronic pain? Mega doses keep me up for days & exhausted. Which eventually exacerbates the problem. Oh, and I'm starving all the time. Ugh
#chronicillness #chronicpain #MS #hEDS #keepsMyelin #devilstiktacs #insomnia #chronicfatigue
Flowers and trees rely on the wind to blow them around, making them stronger - like those of us with #MS 🧡
Take a look at my page on the #MSAA 2025 artshowcase (art picture on the link is not my own, but beautiful)
#multiplesclerosis #keepsmyelin #mswarrior #MSawareness #printmaking #photography
Hello my bluesky #MS peeps!
Anyone on #Ocrevus and experience what I hear is the "crap gap?"
3.5 weeks until my second ever infusion and staring to wonder if that's what's got me feeling extra cruddy. 😩
#multiplesclerosis #keepsmyelin
This reminds me of when I was first dx and a coworker came to me to try and sell me some #mlm parasite cleanse bullshit.
(Just one instance things people have approached me with)
#fightthestigma #abelism #chronicillness #MS #keepsmyelin #effRFKjr
I just love it when my clothes feel like sandpaper!
#MS #dysesthesia #keepsmyelin
A photo of a classroom smartboard with the self portrait by Gustave Corbet being displayed.
Being a high school art teacher with MS has left me feeling like this self-portrait by artist Gustave Corbet today.
#chronicillness #MS #multiplesclerosis #highschoolteacher #artteacher #arthistory #gustavecorbet #keepsmyelin
Today, I walked quite a bit at the park AND walked uphill on uneven ground!
That's a big deal for this lil cattywampus lady!
#MS #ambulatory #dynamicdisability
#disabilityisnotabadword
#disabled #keepsmyelin #cattywampus #smallvictories
Gut-punch to anyone hoping on better treatments and cures for #multiplesclerosis #cancer #diabetes #mentalillness #alzheimers #pediatricillness and more
The majority of funding for #MS research is from #NIH
I had a lot of hope for the trials on #remyelination
😞😡 #keepsmyelin 🙃
Having an invisible illness + being a high school teacher + being a woman = master at compartmentalization
#keepsmyelin #MS #outofspoons
Y'all, I think KB has a version of Star Wars MS. Her cybernetics are vulnerable to corrosion, causing her to slow down/become unable to move.
And yet, she is such a badass!!!
Like us who are #mswarriors
#starwars #skeletoncrew #ilovestarwars #ms #multiplesclerosis #keepsmyelin 💫
The other side of autoimmune disease/chronic illness that isn't spoken about as much is the impact it can have on your mental health.
#mentalhealth #chronicillness #MS #autoimmune #keepsmyelin
Having chronic illness fatigue is not the same as "being tired."
For me, it feels like I'm moving through a gelatinous cube and taking damage points.
#DnD #dungeonsanddragons #gelatinouscube #chronicillness #fatigue #MS #keepsmyelin #mssucks
Chronic illness sucks balls y'all. You have a great morning at work, on top of your game, and then your body is angry at you in the afternoon. Gotta spend those stupid spoons wisely 🥄😒 🥄
#mssucks #multiplesclerosis #keepsmyelin #chronicillness #spoonie
Take a look at my page on the MSAA art showcase 2024 before it's gone in a month.
#msaa #art #ms #folkart #keepsmyelin #abstractart #mssucks #charcoal #msawareness #blazefoley
Thanks for sharing and putting together this resource 🧡
#ms #mssucks #fuckms #keepsmyelin