image shows child looking through magnifying glass and healthcare worker with speech bubble containing words “Wondering how we are getting on with our review on the management of children’s chronic pain? Then check out our latest blog – available now!”. NESSIE logo in top right hand corner

What health and social care workers do, think and feel about treating children with non-cancer, chronic pain - progress blog link in bio!
#bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #NESSIE #evidencesynthesis #PPI #patientinvolvement #chronicpain #LifeWithPain

"Life with chronic pain is just constantly looking at something that brings you joy, assessing how much pain it might cause you in the future, and then deciding if the trade off is worth it. It often isn't, but there's such a crushing boredom in prioritizing your health sometimes." Credit: DearFibromyalgia #LifeWithPain #MySeveralWorlds #PainAwareness #SupportFibro #TeamFibro

"Life with #ChronicPain is constantly looking at something that brings you joy, assessing how much pain it might cause in the future & deciding if the trade off is worth it. It often isn't, but there's crushing boredom in
prioritizing your health."
DearFibromyalgia
#LifeWithPain #MySeveralWorlds

Nonverbal communication is silent communication. It is seen and observed through eye contact, facial expressions, gestures, posture, and body language. Pay attention to these signs when you are with somebody who lives with chronic pain. Here are some other nonverbal signs of pain: 😟 Facial expressions 🧍‍♀️Body posture. (Pain patients tend to protect their body by holding their limbs close or move unnaturally in an attempt to protect their body) 😭 Crying and sounds of distress Withdrawal from activity or into silence 🤬 Mood changes - quick to anger, aggression, irritability, and agitation 😕 Confusion 👐 Hand movements can show distress or pain 🥵 Excessive sweating 🔗 Credit: MySeveralWorlds.com #PainAwareness #PainCounts #LifeWithPain #CPP #ArthritisAwareness #ArthritisStrong #MySeveralWorlds #SuicideAwareness

Nonverbal communication is silent communication. It is seen & observed through eye contact, facial expressions, gestures, posture & body language. Pay attention to these signs when you are with somebody who lives with #ChronicPain.
MySeveralWorlds.com
#PainAwareness #LifeWithPain #MySeveralWorlds

#Fibromyalgia is Noise Sensitivity Smell Sensitivity Chemical Sensitivity Envionment Sensitivity Weather Sensitivity Sensory Sensitivity Medication Sensitivity Skin Sensitivity Touch Sensitivity Taste Sensitivity Food Sensitivity Credit Unknown #MySeveralWorlds #LifeWithPain #ChronicPainIs #SupportFibro #TeamFibro #FibroNerds

#Fibromyalgia is
Noise Sensitivity
Smell Sensitivity
Chemical Sensitivity
Envionment Sensitivity
Weather Sensitivity
Sensory Sensitivity Medication Sensitivity
Skin Sensitivity
Touch Sensitivity
Taste Sensitivity
Food Sensitivity
Credit Unknown
#MySeveralWorlds #LifeWithPain #FibroNerds
#ChronicPain

Would you like to get involved with our latest #NESSIE project? Visit our webpage or email us for more details – links in bio.  #evidencesynthesis #bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #PPI #patientinvolvement #chronicpain #LifeWithPain

LIFE WITH CHRONIC PAIN "16 long years of waking up in severe pain and feeling like someone took a meat tenderizer to my whole body. I don't know how we get through this day after day other than through willpower. If I didn't have basic pain treatment options, I don't know where I'd be now." ~Carrie, My Several Worlds #PAM2025 #MySeveralWorlds #PainAwarenessMonth #LifeWithPain #ChronicPainIs

#LifeWithPain
"16 years of waking up in severe pain & feeling like someone hit me with a meat tenderizer. I don't know how we get thru this day after day other than willpower. If I didn't have basic pain treatment options, I don't know where I'd be." #MySeveralWorlds
#PAM2025
#PainAwarenessMonth

My view for 15+ years: bed to chair. Always on ice. #LifeWithPain Flares never get easier or more bearable. #Spondyloarthritis & fibromyalgia and MECFS are the most consistent things in my life. You hit the same point repeatedly. You want to stop trying, but you don't. I didn't know it then but this is when Simponi stopped working for me in the summer of 2024. I was waiting for approval for the next biologic. Today, in September 2025, I am waiting I'm the same positio for yet another treatment as Rinvoq has failed. Credit: Carrie Kellenberger aka globetrotteri #MySeveralWorlds #LifeWithPain #ChronicPainIs #AnkylosingSpondylitisWarrior

My view for 15+ years: bed to chair. Always on ice. #LifeWithPain
Flares never get easier or more bearable. #Spondyloarthritis #fibromyalgia & #MECFS are the most consistent things in my life. You hit the same point repeatedly. Simponi stopped working in July 2024. Rinvoq failed in Sept 2025.

Our latest #NESSIE project is focused on what health and social care workers do, think and feel about treating children with chronic pain that is not caused by cancer. Details in bio.
#EvidenceBasedPractice #evidencedbasedresearch #patientinvolvement #chronicpain #LifeWithPain #PainAwarenessMonth

All of it this week. A big pile of hurt! Dysautonomia Chronic Pain Common Causes: 🧠 Headaches & Migraine 😣 "Coat Hanger" pain in the neck 😧Chest Pain 😵‍💫Muscle & Joint Pain 😭Burning Nerve Pain on the Skin 🫩Abdominal Pain Credit Unknown

All of it this week. A big pile of hurt!

Dysautonomia Chronic Pain
Common Causes:

🧠 Headaches & Migraine
😣 "Coat Hanger" pain in the neck
😧Chest Pain
😵‍💫Muscle & Joint Pain
😭Burning Nerve Pain on the Skin
🫩Abdominal Pain

Credit Unknown

#LifeWithPain #POTS #Dysautonomia #MySeveralWorlds

CHRONICALLY OVER IT 🥱 Waiting months for an appointment only to be told you need more tests. 🙄 Medications that give you more symptoms than you had before you took it. 🫩 Wasting an entire day resting only to be exhausted still. 😲 The thrilling game of "Which symptom will surprise me today?" 😀 The daily act of pretending you're okay when you're not. 😔 Having your energy run out halfway through a simple task. 🫤 Explaining the same thing over and over again to people who don't quite get it. 🫨 Seeing doctor after doctor and only leaving with more frustrations. Credit: Dear Chronic Pain #LifeWithPain #ChronicTruths #MySeveralWorlds #ChronicIllness #ChronicPain

CHRONICALLY OVER IT

🥱 Waiting months for an appt only to be told you need more tests.

🙄 Medications that give you more symptoms than you had before you took it.

😀 The daily act of pretending you're okay when you're not.

Via Dear Chronic Pain
#LifeWithPain #ChronicTruths #MySeveralWorlds

8 Ways Chronic Pain Changes You There are many ways chronic pain changes you, but today I’m focusing on eight basic facts about life with pain. "Pain is not weakness. Pain is toughing it out each day when you feel your worst. It’s humbling to live w #pain. We adapt & grow in the darkest corners of our lives. Getting through each day IS the miracle. YOU are the miracle!" 8 Ways #ChronicPain Changes You 🔗 https://www.myseveralworlds.com/2022/09/24/8-ways-chronic-pain-changes-you/ 1. Chronic pain affects every aspect of your life. 2. Chronic pain has lasting effects on your body. 3. Chronic pain limits your ability to where can earn money. 4. Chronic pain changes your personality. 5. Chronic pain can affect your confidence. 6. Chronic pain can change your relationships with others. 7. Chronic pain makes you fearful and scared. 8. Living with chronic pain requires a superhuman power of pain tolerance.

8 Ways #ChronicPain Changes You

Today I’m focusing on eight basic facts about #LifeWithPain.

Pain is not weakness. Pain is toughing it out each day when you feel your worst. Getting through each day IS the miracle.
YOU are the miracle!" ~Carrie, MSW
🔗
www.myseveralworlds.com/2022/09/24/8...

Non verbal signs of pain: 😟 Facial expressions 🧍‍♀️Body posture. (Pain patients tend to protect their body by holding their limbs close or move unnaturally in an attempt to protect their body) 😭 Crying and sounds of distress 🫥 Withdrawal from activity or into silence 🤬 Mood changes - quick to anger, aggression, irritability, and agitation 😕 Confusion 👐 Hand movements can show distress or pain 🥵 Excessive sweating 🔗 Carrie, MySeveralWorlds.com #PainAwareness #PainCounts #LifeWithPain #ChronicPain #ArthritisAwarenessMonth #SuicideAwareness

Non verbal signs of pain:

😟 Facial expressions
🧍‍♀️Body posture
😭 Crying / sounds of distress
🫥 Withdrawal from activity
🤬 Mood changes - anger, aggression, irritability
😕 Confusion
👐 Hand movements
🥵 Excessive sweating

Carrie, MySeveralWorlds.com

#PainAwareness #LifeWithPain #ChronicPain

Non verbal signs of pain: 😟 Facial expressions 🧍‍♀️Body posture. (Pain patients tend to protect their body by holding their limbs close or move unnaturally in an attempt to protect their body) 😭 Crying and sounds of distress Withdrawal from activity or into silence 🤬 Mood changes - quick to anger, aggression, irritability, and agitation 😕 Confusion 👐 Hand movements can show distress or pain 🥵 Excessive sweating 🔗 MySeveralWorlds.com

Non verbal signs of pain:

😟 Facial expressions
🧍‍♀️Body posture
😭 Crying and sounds of distress
🫥Withdrawal from activity or into silence
🤬 Mood changes
😕 Confusion
👐 Hand movements
🥵 Excessive sweating
🔗
MySeveralWorlds.com

#PainAwareness #PainCounts #LifeWithPain #ChronicPain #ArthritisAwareness

"How was your year?" "It was a bit f*cked, if you ask me." Image of Eddie the Eagle Credit Unknown

I missed my funny for today because I was up until 4am and then at the hospital. #LifeWithPain #ChronicIllness

"How was your year?"
"It was a bit f*cked, if you ask me."

Image of Eddie the Eagle
Credit Unknown

#TheOldMeIsDead #MyPainMatters #LifeWithPain #LifeInPain #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #InvisibleIllness #ButYouDontLookSick #PainChangesPeople #ChronicPainChangesEverything #ItCanHappenToAnyone #ItsNotMyFault #ImFine #ImNotOk #LifeHasShatteredMyHopesAndMyDreams

#MyPainMatters #LifeWithPain #LifeInPain #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #InvisibleIllness #ButYouDontLookSick #PainChangesPeople #ChronicPainChangesEverything #ItCanHappenToAnyone #ItsNotMyFault #ImFine #ImNotOk #LifeHasShatteredMyHopesAndMyDreams #Exhausted

#MyPainMatters #LifeWithPain #LifeInPain #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #InvisibleIllness #ButYouDontLookSick #PainChangesPeople #ChronicPainChangesEverything #ItCanHappenToAnyone #ItsNotMyFault #ImFine #ImNotOk #Broken #LifeHasShatteredMyHopesAndMyDreams #Exhausted

#ChronicPain is unending and never-ending and when we receive unsolicited health advice on how to cope, it makes it even harder… It’s exhausting to have to fight pain… I do not remember what it feels like to have a pain-free day. Carrie is wearing a blue, teal, orange, and white geometric top with sunglasses and a white hat. The text on the image is this quote followed by the name of my article, 'Unsolicited Health Advice From 'Online Pain Professionals' Is The Worst." #CPP

#ChronicPain is unending and never-ending and when we receive unsolicited health advice on how to cope, it makes it even harder… It’s exhausting to have to fight pain… I do not remember what it feels like to have a pain-free day.
🔗
buff.ly/3NZ2H3v

#CPP #LifeWithPain
#ChronicIlness #Fibromyalgia

Carrie is singing in a microphone in the banner image for her article on Throat Pain with Fibromyalgia and MECFS: A Moderate to Severe Symptom

Throat pain is rarely talked about with #ME & #Fibromyalgia patients. I lost a 20 year career in music thanks to this symptom. It is a common symptom. Do you experience hoarseness and throat pain?
🔗
buff.ly/3148cFt

#pwME #MECFS
#FibromyalgiaAwareness #MEAwarenessHour
#LifeWithPain