#LowDoseNaltrexone hashtag - Bluesky

1 month ago

Selfie of a white woman with red cheeks and nose, wearing a waterproof helmet cover, blue and mustard yellow scarves, and a black camo waterproof wool coat. There’s bike parking behind her.

It was freezing cold and absolutely chucking it down, but I had friends to meet in town so I took my (non e-) bike out with ALL my waterproofs and warm gear anyway.

I always dread cycling in the wet but know I love it once I’m out there!

#LondonCycling #LongCovid #LowDoseNaltrexone

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me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦

2 months ago

UK LDN users;

Dickson Chemist has changed the formula - slightly less viscous - forming some larger than intended drops from the liquid rolling down the outside of the pipette.

I tap the extra back into the bottle, then dose as normal, still checking each drop size by eye.

#LDN #LowDoseNaltrexone

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@me-with-me.bsky.social

3 months ago

5/5

unwell (so far). I am still able to function, probably at a better level than my previous ME baseline. The infection isn’t having things all its own way either as my immune system seems to be working better.

Shocked, confused but hopeful.

#ME/CFS
#pwME
#ME/CFSLDN
#lowdosenaltrexone

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Low Dose Naltrexone: Andrew Gifford on Glass

4 months ago

Low Dose Naltrexone - from my ME/CFS photo project

ALT: Colour photo of an adult male hand reaching to the top shelf of a fridge where, beside the butter, there's three balcklit dropper bottles of brown glass

glass.photo/andrewgiffor...

#MECFS #LongCovid #LDN #LowDoseNaltrexone #Photography

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me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦

@me-with-me.bsky.social

4 months ago

#ME/CFS
#LDN
#pwME
#lowdosenaltrexone

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4 months ago

I’m so grateful to be able to get out to do things like this. Even a few months ago I wouldn’t have been able to stand in a queue for 45min, let alone e-bike there.

#LongCovid #LowDoseNaltrexone

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5 months ago

A friend just pointed out that this is my first Fall since 2022. 😳🍂

#LongCovidResurrection #LowDoseNaltrexone

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5 months ago

My coach has pointed out that with the ~10kg l've lost so far over the past 4-5mo, l'm back to my April 2024 weight. 🥳

Now only 15kg more to lose before l'm back to my pre-Covid
Sept 2023 weight...

#LongCovid #LowDoseNaltrexone

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6 months ago

The borrowed e-bike allowed me to go up and visit my old office and have a street food lunch in the courtyard, then run some errands and buy a few things in a shop (an actual shop!) on the way home. 🥹

Everyone was so happy to see me out and about (masked) again! 🥲

#LongCovid #LowDoseNaltrexone

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6 months ago

A white woman with long straight brown hair is talking a selfie and pulling a face. Her hair reaches down almost to her waist.

A white woman with straight brown hair is talking a selfie and smiling. Her hair is now only just past her shoulders and has nice layers framing her face.

So long, long Long Covid hair!!

I’ve had my ✨spiritual haircut✨ now that I’m feeling a bit better and rejoining the world! 😌

#LongCovid #LowDoseNaltrexone

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6 months ago

I just walked nearly 40min without stopping! 🥳

A few months ago I couldn’t even sit upright for 15min, let alone walk that long…

#LongCovid #LowDoseNaltrexone

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6 months ago

A white woman with her hair in a bun stands next to a bike on a paved path by a river. She’s smiling and wearing a black sleeveless top and brightly patterned bike shorts.

I took our friend’s bike (with the same ⚡️ adapter I’m getting) for its 1st very short trial run! (Mostly to check the seat position) 🥳

The frame’s a bit taller than mine which’ll some getting used to but the motor assist is SO SMOOTH! I didn’t even get out of breath!

#LongCovid #LowDoseNaltrexone

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7 months ago

I walked to the shop to buy milk for the first time in two years! 😌 20 minute round trip!

#LongCovid #LowDoseNaltrexone

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Joe Hrdina

@hrdcpy.bsky.social

7 months ago

Medication info form for Low Dose Naltrexone (LDN)

For future reference, this image of the document provided with my LDN prescription explains that gluten should be avoided "...in order to achieve the full efficacy of LDN on the immune system..."
#LDN #CFS #TLR4 #LowDoseNaltrexone #GlutenFree

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Brenda Rosendahl

@crearose.bsky.social

8 months ago

Of het al werkt weet ik niet
Ik merk vooral de eerste week bijwerkingen
Zoals dromen, emoties, hyper zijn, extreem blij steeds op dag 3/4. Misschien minder PEM maar dat beweegt door de bijwerkingen heen.
Ik vind het wel heel pittig.
#LowDoseNaltrexone

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valebodi.bsky.social

@valebodi.bsky.social

8 months ago

#pwME a/o #LongCOVID suffering with #PEM I would like to know how many of you have trialed these 2 off-label medications IN COMBINATION: pyridostigmine + #LDN (low dose naltrexone) and have experienced any improvements in exertion tolerance & less pain?
#Mestinon #Pyridostigmine #LowDoseNaltrexone

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@pwrchr-dorothy.bsky.social

9 months ago

Did LDN make your dreams more likely to feature previous trauma?

I.e. you'd had some trauma, weren't regularly dreaming about this but, after beginning LDN, that trauma oftend featured in the dreams. Asking for a friend, thanks as ever!

#pwME #MECFS #LongCovid #LDN #LowDoseNaltrexone #Dreams

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Power Chair Dorothy

1 year ago

LOW DOSE NALTREXONE Low Dose Naltrexone (LDN) is derived from Naltrexone, a drug used to treat opioid addicts. In the 1980s, a doctor from New York, Dr. Bihari, discovered that at a low dose the drug has an interestin…

notinksanymore.com/2025/03/14/l...
#ms, #multiplesclerosis , #ldn, #lowdosenaltrexone, #immunesupport

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Allen Tien, MD, MHS mdlogix.com 94,698 田一彦

@allentien.bsky.social

1 year ago

Low-Dose Naltrexone (LDN)—Review of Therapeutic Utilization Naltrexone and naloxone are classical opioid antagonists. In substantially lower than standard doses, they exert different pharmacodynamics. Low-dose naltrexone (LDN), considered in a daily dose of 1 ...

#LowDoseNaltrexone #ChronicPain #Treatment

pmc.ncbi.nlm.nih.gov/articles/PMC...

#HealthScience #Neuroscience #MolecularReality #Naltrexone #SharedFacts

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Jaimee 🖤🕷️

@jaileezy.bsky.social

1 year ago

Hey fellow 🦓 & suspected 🦓 who are taking low dose naltrexone, would you please share your experiences w/ me? My DR has asked me to consider it - I’d like to know about the 👍 & 👎 TYSM!! Kacchan as Tax

#EDS #POTS #MCAS #Trifecta #lowdosenaltrexone #LDN #chronicpain #chronicillness #cattax #i❤️mycat

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Crazie Daizee

@craziedaizee.bsky.social

1 year ago

awesome you are on Bluesky!
idea for your fantastic CostPlusDrugs:
Many chronic illness ie. #LongCOVID #Fibromyalgia & #meCFS benefit from #LowDoseNaltrexone #LDN treatment but EXPENSIVE (some use risky overseas pharmacies or compound 50mg pills to 1mg)
Can you offer 1mg cheaply and help millions?

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MsChrysilla

@mschrysilla.bsky.social

1 year ago

Clinical trials explore how Low-Dose Naltrexone could help people with Long COVID - The Sick Times Observational studies suggest Low-Dose Naltrexone may benefit some people with Long COVID and ME. People with these diseases have shared their experiences with LDN in online communities, reflecting th...

Some good news, imo. #LDN

Also- of course there've been few studies on #LowDoseNaltrexone, IT'S GENERIC. US medicine is almost entirely profit driven - pharma companies want to develop brand new drugs they can price-gouge.
thesicktimes.org/2024/10/18/c...

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❌👑 Suz Brockmann

@suzbrockmann.bsky.social

1 year ago

Waking up this morning, not exhausted for the first time in forever, I actually have hope that I’ll be able to write again!! #LongCovid #LowDoseNaltrexone
🥳

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