The medicine to make me feel better is making me feel sick. 🤢
#lupussucks
My stupid chronic underweight body is a mystery, not only is it still unclear what causes the "balloon belly", the air masses in my small intestine, also do I freeze after lunch every time now, although I have almost 20°C/68°F inside my apartment.
#SLEsucks #LupusSucks
🤬🤬🤬
BP 108/73, which is very good for me who´s hypotonic, temperature 36,1°C/97°F, wich is also very good for me who´s hypothermic too, recovery day # 3 after 2 weeks without any appetite, I´d been underweight before yet from #SLE.
#LupusSucks
😮😮😮
@lupusuk.bsky.social @lupus.org
Mein Jahresrückblick:
- Knapp 10 Kilo abgenommen
- Fast alle Schränke ausgemistet
- Außenrum das Meiste auf der Reihe gehabt
- Neue Hausärztin und Dermatologin gesucht
- Mental größtenteils die Form gehalten
Klingt nach wenig, ist es auch, aber ich bin zufrieden.
#LupusSucks
It’s official, your girl is back in grad school come January. Wish me luck. #gradschool @enmugreyhounds.bsky.social
#4thTimesTheCharm 🤞 #LupusSucks
As a chronically ill person, I don't want to be told I can do anything if I put my mind to it.
I want to know that what I CAN do is enough.
Because believe it or not, my chronic illnesseses are not simply a mind over matter issue.
#LupusSucks
#FibroSucks
#SFSNSucks
#Hypothermia is only one of my countless #SLE #Lupus symptoms, today it´s extreme again, earlier I only measured 35°C/95°F, on other days it´s about 36°/96,8°F.
#LupusSucks #LongtimeLupusSurvivor since 1992 here.
my.clevelandclinic.org/health/disea...
@clevelandclinic.bsky.social
No stream today I am in WAAAAAY too much pain 😥
I am sorry guys 💔
#LupusSucks #Pain #StreamCanceled
7 Foods to Help You Lose Body Fat Percentage in a Month.
I´m chronic underweight from #SLE. I´d thought I had gained 2 kg of weight, but those were only 2 kg from the fluid of the edema, it seems. In the meantime I may have 5 liters of edema.
#LupusSucks
www.eatthis.com/foods-to-los...
Anybody want to trade bodies just for a week? You'll get a 5 mm kidney stone that might pass on its own and a fantastic Lupus flare with a touch of an SFSN flare #LupusSucks .... The bruising is a new thing 🧐
Struggling to get out of bed today, and I have lots of chores and errands to do 😕
#lupussucks
Life can change in an instant. Right now, a brave warrior is facing tough times with lupus. They need our help to secure a safe home for their kids. If you can, please donate or share. Every bit counts. gofund.me/b41fcf67 @GoFundMeCharity #lupussucks
I came across this @gofundme.com for someone dealing with lupus nephritis and trying to provide for her kids during a really tough time. If you're able, consider donating or sharing the post to help out. www.gofundme.com/f/y384fn-don... #lupussucks
This One Exercise Can “Significantly” Reduce Waist Size and Weight, Says New Study, for those who have problems with overweight, I´m chronic underweight from #SLE. Which is also no fun and not healthy, I know.
#LupusSucks
www.thehealthy.com/news/waist-s...
@lupus.org @lupusuk.bsky.social
I lost count on which infusion this is. Here I am though. #lupus #lupuswarriors #menwithlupus #malelupuswarrior #benlysta #infusion #selfcare #lupussucks
#lupus #autoimmunedisease #theglamfam #chronicpain #gypsyglam #spoonie #gypsyglamlifewithchronicillness #invisibleillness #lupuswarrior
#butyoudontlooksick #chronicillness #lupusawareness #fatigue #lupussucks #lupusstrong #lupusflare #lupusfighter #lupuslife #steroids #lupusproblems #lupusdiease
Woke up, threw up my guts, and the day was all downhill from there. Some days, you just aren't going to beat your disease. Went through the motions all day, but it was a losing battle. Try again tomorrow. #Lupussucks
When you develop a life threatening allergy to all NSAIDS … I don’t need to elaborate.
#LupusSucks
I am care taker, a hard worker & a Lupus warrior. I love animals and gardening. I love peace & kindness. #curecancer
#lupussucks
#trumpsucks
#democrates
Shadow will be 6 in April. We adopted him him when he was 2, and we love him to pieces. He is also my reason for getting out of bed every day. #Lupussucks
I’ve been giving myself a Benlysta shot once a week for my Lupus for 2 years. I know it doesn’t really hurt and it’s what makes dancing and working and grad school possible but still some weeks I put it off all day #lupussucks #invisibleillness #lupuswarrior #grateful
I followed you on Twitter. I'm following you here.
#LupusSucks
When you have your shower and all you want to do afterwards is go back to bed #LupusSucks #Chronicllness😒
I live with Lupus (SLE) and rarely discuss how hard it is because I am proud and stubborn. My daughter sent me this and it means a lot to me. She gets me even when I am silent. #lupussucks
Love a bit of #painsomnia. #lupussucks
This is not nice news. :( BBC News - Pop star Selena Gomez diagnosed with lupus #lupussucks #lupuschat
I really hate feeling so nauseous. #LupusChat #lupussucks