Mit LDN bin ich morgens "wach" - wie soll man so was anderen erlären? Wie sich das anfühlt?

#MEcfs #Polyneuropathy #POTS

[Nerve ultrasonography of transthyretin amyloidosis] Podnar et al. “In patients with transthyretin amyloidosis we found peripheral nerve thickening using nerve ultrasonography.”

doi.org/10.1016/j.cl...
@ukclj
#Ultrasonography #Polyneuropathy #Transthyretin #ClinicalNeuroph

Zum Nikolaus hat die Rosen Apotheke in Fulda die #Amifampridin Kapseln geliefert.

Ich starte mal mit 1× 5mg morgens.

Drückt die Daumen.

#MEcfs #POTS #Polyneuropathy
#NeurogeneBlase #Dysautonomie

Ich habe mir wohl zeitgleich mit den beiden Impfungen eine Infektion geholt. Tja.

Mieses Karma.

#MEcfs #POTS #Polyneuropathy

Trial Results Support Use of Patisiran in ATTR-PN Patisiran treatment showed a consistent positive effect across several endpoints in patients with a V122I or T60A variant-associated ATTR-PN.

#Patisiran treatment showed consistent positive effect across several endpoints, including #Polyneuropathy manifestations in patients with a #V122I or #T60A variant in the #TTR gene, in a multicenter phase 4 #ClinicalTrial

Read more: https://bit.ly/48CO8hm

#RareDisease #ATTRPN #MedSky

A neuropathy sufferer is begging their nerves to "Please just calm down." The rouge nerves reply, 'Gotta go fast! Zoom!' and 'Go! Run! Nyeeah! Whooo!' They lean forward in their chair, moaning, "I can't think. It hurts so much," while the nerves race around the room shouting, "No! No! Nope!" The victim pleads, "Stop," and the nerves laugh, saying, "NEVER!" The rogue nerves attack, pulling the victim's hair, yanking off their glasses, as the victim pleads for relief, "Please, oh my God.." https://www.furaffinity.net/view/62381633/ https://goodwinillustration.com/

The rogue nerves begin a massive assault on the victim, tossing them around and gnawing on their limp body. Suddenly the tea kettle begins whistling in the kitchen, and the two rogue nerves halt their attack. The victim has collapsed on the floor in the "Family Guy Death Pose" meme position. https://www.furaffinity.net/view/62381650/ https://goodwinillustration.com/

The two rogue nerves dash off into the kitchen, one shouting, "Tag! You're it!" while the other protests, "Hey, no fair!" The victim picks themselves up and shuffles into the kitchen, muttering, "Oh, shush," at the whistling kettle. In the kitchen, they slowly collect a mug while the rogue nerves watch in silence. They pick up a tin of chamomile tea and add a bag to the mug, begging, "Please. Just five minutes," as they add hot water. https://www.furaffinity.net/view/62381660/ https://goodwinillustration.com/

The two rogue nerves are enthralled by the aroma of the tea, and begin dancing with the chamomile flower, as the victim makes their way back to their chair. The chamomile flower embraces the two rogue nerves, who fall asleep and begin to snore. The victim smiles and leans back in their chair, thinking, "Finally," as they enjoy their mug of tea. In the final panel, one of the rogue nerves says, "I'm bored." And the other says, "Me too." https://www.furaffinity.net/view/62381675/ https://goodwinillustration.com/

Chris Goodwin made a comic on dealing with #nerve #pain.

"I could not help but see the irritated nerves as Katzenjammer Kids; obnoxious little shits when rowdy, sweet little angels when sleepy."

Descriptions & links in alt text.

#neuropathy #mononeuropathy #mononeuritis #multiplex #polyneuropathy

Too much crap and gimmicks out there for #neuropathy #relief. Use it 2 to 3 times a day. No more toxic crap. USDA Certified.

on Amazon and: sweetbeemagic.com
stressnomore.co.uk

#organic #usda #diabetic #diabetes #feet #pain #relief #relieve #numbness #tingling #polyneuropathy #peripheral #burning

I am taking #Clonidine now for about two weeks, i had to change the dosage from 0,15mg once a day to twice 0,075mg a day, before it just knocked me out.
Seems like i needed to get used to it, i am feeling better now and my HRV goes up.
#HyperPOTS #MECFS #Polyneuropathy #neurogenicbladder

Ich nehme aktuell zum ersten Mal #Clonidin für #HyperPOTS. Die Dosis 1x0,15mg morgens, haut ein wenig zu heftig rein, also habe ich nach 2x 0,075mg gefragt, muss ich jetzt selber zahlen. Zum Glück ist es nicht teuer.

#MEcfs #Polyneuropathy #POTS

Is there someone with #POTS and a #neurogenicbladder, specific: Terminal Detrusor Overactivity? NDO / TDO
I am curious if that is related or more part of #SFN / #Polyneuropathy.
I know #bladderproblems are related, but TDO seems to be uncommen, perhaps only diagnosed as #OAB, or just #Retention?

Vor 20 Jahren hat mich eine Grippe erwischt und mein Leben komplett verändert.
Die Diagnose #MECFS erhielt ich ca. drei Jahre später, zusammen mit #Polyneuropathy und #Fibromyalgie.
Mittlerweile sind noch #POTS und eine #NeurogeneBlase dazu gekommen.
Welchen Fortschritt hat die Medizin gemacht?

Did anybody with #POTS and / or #MECFS try #Desmopressin?
I could convince my doctors for a try, but i do not know if its better in the morning or evening to take.

#PWme #HyperPOTS #neurogenicbladder #Polyneuropathy

What are the most promising otc supplements for slowing neurodegeneration?

Particularly in cases of ALS, or non-length dependent axonal polyneuropathies?

I would appreciate links to papers investigating the efficacy of such supplements.

#neurology #neuropathy #polyneuropathy #als #supplements

Profile of quantitative sensory testing (QST) in autoimmune thyroiditis demonstrates low thresholds for heat and mechanical pain. Frequencies of abnormal QST findings (A) and mean sensory profiles (B) in patients with treated AIT. (A) Each column gives the percentage of patients with abnormal findings for a particular quantitative sensory testing (QST) parameter (outside the 95% confidence interval [CI] of healthy controls). Positive values indicate positive sensory signs (hyperalgesia); negative values indicate negative sensory signs (hypoesthesia, hypoalgesia). Dashed lines show expected value for healthy controls (± 2.5%). #p < 0.05 compared to the expected value of a healthy population. (B) Sensory profiles of all AIT patients presented as mean z scores + 95% CI. Positive z scores indicate positive sensory signs (hyperalgesia); negative z values indicate negative sensory signs (hypoaesthesia, hypoalgesia). Dashed lines show 95% CI for healthy controls (− 1.96 < z < 1.96).

Sensorimotor #polyneuropathy may be common in treated autoimmune thyroiditis, but, unlike in other causes of #neuropathy (e. g. #diabetes), it has a unique pattern in quantitative sensory testing (#QST) with low thresholds for mechanical and thermal pain.

doi.org/10.1038/s415...

Anyone out there with #Sjogrens #Polyneuropathy? (Neuro involvement of both CNS and peripheral). I've just been diagnosed after a four year specialist runaround. Problem: I'm already at toxicity for Plaquenil and I'm allergic to gabapentin and its relatives. I'm desperate; it's affecting Everything.

Infectious Neuropathies - PubMed Infectious agents of many types (primarily bacteria and viruses) can affect the peripheral nerves, resulting in various clinical syndromes such as mononeuropathy or mononeuropathy multiplex, distal sy...

“Infectious agents of many types (primarily bacteria and viruses) can affect the peripheral nerves, resulting in various clinical syndromes #mononeuropathy or #polyneuropathy, #radiculopathy, inflammatory demyelinating polyradiculoneuropathy, motor neuronopathy.
: pubmed.ncbi.nlm.nih.gov/37851037/