,, impact medication absorption. I tested bc a #spooniechat person mentioned it could be behind lack of relief and increased symptoms. The results have led to better understanding for me, but not any from providers. Anyways.. watch the birds, enjoy some art, appreciate each other ✌🏼❤️🕯️
A couple of people have asked me today why I push myself to do stuff like my workshop recording giveaway when I'm feeling so ropey (and today I feel like the ropiest of ropes), so an explanation (for anyone who's interested) of how this helps me cope (yes, this is #SpoonieChat)...
One of the things that can be so hard when living with a chronic illness is accepting post-exertional malaise (PEM). Today, I went to get a click-and-collect from 5 mins down the road. This has been followed by an hour (still ongoing) of just sitting here staring into space 🤪🫠🙃
#SpoonieChat
@dawnmgibson.bsky.social hey my friend. I hope you’re okay. I saw a butterfly the other day and thought of you. 💜 #SpoonieChat
#SpoonieChat fam,
I need to try again next week.
Things are improving.
Miss you!
Share this thread with your friends who have #migraine. Let them know about #MigraineChat and how using the hashtag can connect them with a network of others who get it.
Learn about the other ways to stay connected, too.
#NEISvoid #SpoonieChat
Quick rant: if I, a disabled person, am using disability-first language it’s because I meant to, not because I didn’t get the memo! So-called ‘person first’ language is fine if that’s your choice. It’s not mine. Now sit down. #disability
#spooniechat #disabled
A Monarch Butterfly sits facing the camera on the open palm of Dawn's left hand. Its wings are closed.
I hope everybody is doing okayish.
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
One of the many crappy things about having M.E. is that sometimes the things you need to do for your mental health - in this case going for two long sunny walks with my dog - means that I’m now utterly physically wiped out. #ME #CFS #MECFS #disability #chronicillness #spoonie #spooniechat
I've been planning to do this for years with Tinu but we couldn't afford to build our website
I don't think our community has time to wait!
Please share your opinions and ideas on this! #neisvoid #SpoonieChat #longcovid #DisabilityCommunity
Based loosely on the structure of #spooniechat of yore, there will be numbered discussion prompts, and either replying to that prompt or numbering answers will make it so others can follow among - so include A1 (answer one) in response to Q1 etc
The most annoying question has to be “what do you want for Christmas?” as an adult! I don’t even know what I want/need on a daily basis apart from medication, comfy pj’s & peace 😂 #spooniechat #spoonielife
So glad to see you and #SpoonieChat here!
T-minus 15 minutes. Will you be joining #MigraineChat?
Remember, asynchronous participation is welcomed, too. So if you see this later, feel free to add your thoughts.
Share with you friends with #migraine!
Tagging in #NEISvoid and #SpoonieChat.
Monday's #MigraineChat questions are now posted for those who like to prepare ahead of time! Check the link in the post below 👇🏻.
Like, repost, tag a friend with #migraine or really any chronic illness. The questions aren't migraine specific. All welcome!
#NEISvoid #SpoonieChat
We’ll chat about the experience of transitioning to BlueSky and (re)establishing our communities. The questions aren’t necessarily specific to #MigraineChat so if you are part of the #NEISvoid or #SpoonieChat communities and want to join, please come! (12/2, 2pm ET). See ⬆️.
@allyann.bsky.social Thank you for this! Will you please add #SpoonieChat and maybe #DisabilitySky?
This Bodega cat is a shoe in for employee of the month!
Image: A grey and white cat faces the camera from a shelf of ramen noodles. The cat's legs are stretched out in front, showing its toe beans.
#SpoonieChat #DisCo #Caturday
Looking forward to seeing more #SpoonieChat ppl here.
Awww! Thanks. You're giving me feelings in my eyes.
#SpoonieChat loves #MigraineChat!
Follow Dawn! #SpoonieChat was the inspiration for #MigraineChat and it wouldn’t be what it is without her community as a model.
If #migraine isn’t specifically your thing, but another chronic illness/disability is, her community is incredibly welcoming. Let’s help it grow!
Would love to connect with more disabled and/or chronically ill academics on here (and disabled peeps generally). Any tips for how to best do that? Not sure I’ve got the hang of bsky hashtags yet… #disability #MECFS #disabledscholars #disabledacademic #spooniechat #spoonie
I made my account private but haven't left yet. I'm conflicted because I learned SO MUCH from #NEISvoid, #SpoonieChat, #DisabilityTwitter, etc.
And I hate that we are losing that incredible knowledge base b/c people are deleting content. I get it, but I wish there were a way to save it.
S1E1 of #ScavengersReign is starting now in the #ChronicLoaf stream
Hyperbeam.com/v/ChronicLoaf
#Criptober #KaijuChaos #DisCo #neisvoid #SpoonieChat #MutualAidMarathon #SaveEmSunday
On a personal note, I have been 36 for two weeks and it has been *horrible* so far.
There's no actual correlation between my birthday and this whole slew of shenanigans but it does feel like salt in the wound.
Missing my #neisvoid, #spooniechat, & #chronicillness communities from the bad place. ❤️🩹
#AlmostChristmas is starting now in the #ChronicLoaf stream
Hyperbeam.com/v/ChronicLoaf
#ChristmasinJuly #DisCo #neisvoid #SpoonieChat #MutualAidMovies
Our 2nd Annual #ChristmasinJuly week event is getting started right now in the #ChronicLoaf stream!
Hop into the stream to watch some #Psych holiday episodes with us tonight!
Hyperbeam.com/v/ChronicLoaf
#DisCo #neisvoid #ForTinu #insomnia #SpoonieChat #MutualAidMarathon
A3. Naps! I have worst-case scenario anxiety so I automatically think the worst possible outcome is the most likely outcome. Sleeping helps me rest and calm down and most of the time, I’m in a better headspace when I wake up.
#SpoonieChat
A8: Make my hair be detangled without my needing to brush it! #SpoonieChat
