New FirstView article 📢
Cochlear implantation in patients with CHARGE syndrome: a 10-year institutional experience and literature review.
doi.org/10.1017/S002...
#CochlearImplant #CHARGESyndrome #HearingLoss
Precerpt from Raising God's Rainbow Makers: Doah and Three #FamousDoctors
msipressblog.blogspot.com/2026/03/prec...
#CHARGESyndrome #ENT #DrRobinCotrton #DrArnoldColodny #DrTBerryBrazelton
Precerpt (#book #excerpt prior to publication) from Raising #God's Rainbow Makers: Doah's Prognosis
msipressblog.blogspot.com/2026/03/prec...
#spirituality #family #CHARGESyndrome #advocacy #survival
Celebrating #RareDiseaseMonth: Bet you never heard of #CHARGESyndrome!
msipressblog.blogspot.com/2026/02/cele...
#deafblind #coloboma #DisabilityAwareness #CaregiverVoices #caregiving
Precerpt (#book #excerpt prior to publication) from Raising God's Rainbow Makers: The Surgeon Who Needed No Syndrome Name or Protocol
msipressblog.blogspot.com/2026/01/prec...
#Doah #tracheotomy #surgrey #subglotticstenosis #decanulation #CHARGESyndrome
Precerpt (#book #excerpt prior to publication) from Raising God's Rainbow Makers: A #Family #memoir of #Grace, #Grit, and #GrowingUp #different
Doah, #FailuretoThrive, and the Importance of a Good #Pediatrician
msipressblog.blogspot.com/2025/11/rais...
#CHARGESyndrome #breastfeeding
Precerpt from Raising God's Rainbow Makers (Mahlou) - Finding a Way
msipressblog.blogspot.com/2025/09/prec...
#parentingspecialneeds #CHARGESyndrome #spinabifida
🫶🏼 [Sensibilisation - Le syndrome CHARGE] 2/2
Plus d'infos 👉 bit.ly/41uxfks
#maladiesrares #chargesyndrome #chargesyndromeawareness #chargesyndromeawarenessday #awareness
💻 [REPLAY] Journées CHARGE
Les vidéos des Journées sur le syndrome CHARGE, qui se sont déroulées en octobre dernier, sont disponibles.
A visionner absolument pour connaître toutes les facettes du syndrome et de sa prise en charge.
👉🏽 bit.ly/4lwTI8W
#maladiesrares #chargesyndrome
#MyBlindStory: free technology and training from the iCanConnect program opened up a world of communication, learning and fun for Dallas Bauer, a teen with combined #HearingLoss and #VisionLoss due to #CHARGESyndrome. #BlindNewWorld
(Story on our site ⬇️)
Today is National Rare Disease Day. See our post about this -- and a challenged author.
msipressblog.blogspot.com/2025/02/nati...
#books #RareDiseaseDay #chargesyndrome #MentalChallenges #BlackHistoryMonth
Save the date tile. Dark blue background with the following text in white and yellow text. Save the Date! 2. International CHARGE-Syndrome Awareness Day. 8. August 2025. Under the main text features hashtags in small white text: #CHARGESyndromeAwarenessDay #CHARGEAwarenessDay #CHARGESyndrome #CHARGESyndromeWorldwide The top of the tile feature the CHARGE Syndrome awareness day logo. A white circle with yellow and blue jigsaw pieces, with the text around the circumference. At the bottom features a white strip with logos of participating organisations.
Save the Date! 2. International CHARGE-Syndrome Awareness Day.
8. August 2025 #CHARGESyndromeAwarenessDay #CHARGEAwarenessDay #CHARGESyndrome #CHARGESyndromeWorldwide
Normalcy - daddydiary.blog/2025/01/07/n... #parenting #specialneeds #chargesyndrome