at my Late GrandFather's 60th Birthday Celebration. Grainy cause this was back in the VCR Day. 🧔🏽‍♂️TeamRahkym🧔🏽‍♂️ #DisabledAdult #CerebralPalsy. #SpinaBifida. #Hydrocephalus

I was born with the most severe form of Spina Bifida, Myelomeningocele.

Derrek
#spinabifida #spinabifidaawareness #SBANYS

"This book does a phenomenal job of describing all the different ways the condition can affect a person. It also caters to different audiences—people with #spinabifida, parents, and those who take care of people with the condition."

www.mackeith.co.uk/book/spina-b...

OOTD showing off the mask chain i made for myself. 😷✨ #disabledlatina #spinabifida #wearamask #communitycare

“This handsome resource belongs in the hands of every individual with spina bifida and on the shelf of every professional serving this complex population.” —Jonathan Castillo, MD, MPH, FAAP

#SpinaBifida

Express your interest: www.mackeith.co.uk/spina-bifida...

made a virgin coquito matcha to combat the eepies. 🍵

the hair curling up was a paid actor.
.
#boricua #coquito #matcha #disabledlatina #spinabifida

Support Derrek Cooke - Walk-N-Roll for Spina Bifida, Presented by Byram Healthcare Spina Bifida is the most common permanently disabling birth defect compatible with life in the United States. The Spina Bifida Association of New York State (SBANYS) helps support the estimated 4,000 ...

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On May 17 I will be participating in the Long Island Walk-N-Roll For Spina Bifida presented by
@ByramHealthcare
at Eisenhower Park in East Meadow, New York! For the Walk-N-Roll I am raising money for the Spina Bifida Association of New York State!
#SpinaBifida #SpinaBifidaWarrior #WalkNRoll

What I Do When I Can’t Go To The Bathroom? Disclaimer: I am not a doctor, and this post was written for informational use only and is not a substitute for professional medical advice. Any actions you take from the content of this blog, you …

“It is essential for me to put warm water in my #bowel bag to be able to have a #BowelMovement, but sometimes it’s not enough, and you have to lie in a hot tub.”: buff.ly/VwPutgH

by Sarahlynn358
#ChronicPain #disability #constipation #SpinaBifida #ChronicIllness

What I Do When I Can’t Go To The Bathroom? Disclaimer: I am not a doctor, and this post was written for informational use only and is not a substitute for professional medical advice. Any actions you take from the content of this blog, you …

#Constipation with #SpinaBifida isn't just uncomfortable — it's a complex, often unpredictable challenge that doesn't always respond the way it would for a non-disabled person. 💙 This post from My Rockin' Disabled Life gets refreshingly honest about what actually helps.
buff.ly/M6T1TrQ

Joyce from Naivasha lost her husband in 2025, then welcomed baby Jayson.

Diagnosed with spina bifida and hydrocephalus, he received life-saving surgery. Today, Joyce is grateful.

Timely care saves lives: neurokids.org

#SpinaBifida #Hydrocephalus

From first steps to first days of college, the new Gillette Children’s Healthcare Series guide to Spina Bifida is here to help families navigate every milestone with confidence.

Be the first to know when it drops:
buff.ly/8reHUUn 🔗

#SpinaBifida #PediatricCare

The reality of living with a neurogenic bladder. IYKYK.

#SpinaBifida #NeurogenicBladder #Meme

Enjoy "Caregiver" an erotic account of a wheelchair-bound man and his female caregiver at prowank.com/caregiver ( #disabled, #disability, #sex, #sexual, #sexualEncounter, #surrogate, #surrogateSex, #sexWorker, #caregiver, #nurse, #homeCare, #spinaBifida)

Enjoy "Gay Lewis in His Wheelchair" a free and complete erotic memoir at prowank.com/gay-lewis-in... ( #wheelchair, #gay, #homosexual, #homoerotic, #handicappedSex, #sexual, #caregiver, #erotica, #spinaBifida)

Back for sale in the Derrek's Bags Etsy Shop! Rosie The Riveter You Can Do It Spina Bifida Warrior! Tote Bag Medical Supply Tote Bag Catheter Carry Bag

Shop here: derreksbags.etsy.com/listing/4470...

#rosietheriveter #youcandoit #spinabifidawarrior #spinabifida #totebag

Joined advocates and families at the Capitol today to support individuals living with spina bifida. As Chair of the Assembly Disabilities Committee, I’m proud to sponsor A.3572 and support funding in the state budget to strengthen services and resources for families across New York. #SpinaBifida

#SpinaBifida : la révolution de la chirurgie in utero
Découvrez l'intervention du Dr Lucie Guilbaud (Hôpital Armand-Trousseau AP-HP) sur les avancées majeures du traitement prénatal du dysraphisme spinal ouvert.
www.youtube.com/watch?v=MnQf...

Spina Bifida: Types, Causes & Symptoms Explained
#Medical #Nursing #VikaasShandily #Neurology #SpinaBifida

The next release in the Gillette Children’s Healthcare Series combines expert medical guidance and real-world support to provide a comprehensive roadmap for life with #spinabifida

Sign up to the Expression of Interest form here: buff.ly/R5op3x4

Spina bifida: in-utero stem cell treatment approach shows promise New approach could lead to better health outcomes for babies compared to traditional fetal surgery

Combining #stemcell therapy with standard fetal #surgery before birth is a safe and promising approach to treat myelomeningocele, a severe form of #SpinaBifida, a new study from 🇺🇸 @ucsfsurgery.bsky.social, published in @thelancet.com, has shown.

A UC Davis Health research team has safely performed the world’s first spina bifida treatment combining fetal surgery with stem cells.

UC Davis Health just made history! Their research team safely performed the world's first spina bifida treatment combining fetal surgery with stem cells, offering a significant new hope for affected families. ✨ #MedicalBreakthrough #SpinaBifida #StemCellResearch

Life expectancy in open spina bifida
onlinelibrary.wiley.com/doi/10.1111/...
#SpinaBifida

Spina bifida trial: Stem cell therapy achieves 100% reversal of brain damage Stem cell therapy performed while babies are still in the uterus could help reverse brain abnormalities associated with spina bifida, according to new research from the University of California.

Stem cell therapy in the womb reversed brain abnormalities from spina bifida in 100% of the six babies in a groundbreaking trial by @uofcalifornia.bsky.social

#doctors #StemCellTherapy #SpinaBifida
www.doctors.net.uk/news/spina-bifida-trial-stem-cell-therapy-achieves-100-reversal-of-brain-damage

Celebrating Rare Disease Month: You Might Be Surprised that Spina Bifida Is Considered a Rare Disease News about MSI Press authors; Excerpts from MSI Press authors' books; Carl's Cancer Compendium information; tips for authors

Celebrating #RareDiseaseMonth: You might be surprised to learn that #spinabifida is considered a #raredisease

msipressblog.blogspot.com/2026/02/cele...

#myelocele #meningeocele #meningemyelocele #paralysis #hydrocephalus #ArnoldChiariMalformation #epilepsy

📅 New Upcoming Events: NWY ASBAH

🔗 How to Book:

Website: www.nwyasbah.org/upcomingevents

#WestYorkshireCANN #NorthYorkshireCANN #NWYASBAH #SpinaBifida #Hydrocephalus #AdditionalNeeds #LeedsEvents #BradfordEvents

📅 New Upcoming Events: NWY ASBAH

🔗 How to Book:

Website: www.nwyasbah.org/upcomingevents

#WestYorkshireCANN #NorthYorkshireCANN #NWYASBAH #SpinaBifida #Hydrocephalus #AdditionalNeeds #LeedsEvents #BradfordEvents

Celebrating Rare Disease Month: Bet You’ve Probably Never Heard of OEIS Complex! News about MSI Press authors; Excerpts from MSI Press authors' books; Carl's Cancer Compendium information; tips for authors

Celebrating #RareDiseaseMonth: Bet you have never heard of #OEISComplex

msipressblog.blogspot.com/2026/02/cele...

#raredisease #spinabifida #midlineanomalies #omphalocele

Derrek's Bags TikTok Shop!

I am selling a limited supply of four different spina bifida themed tote bags in the Derrek's Bags TikTok Shop. Shop now! 34% of profits are donated to the Spina Bifida Association of New York State.

#DerreksBags #bag #totebag #spinabifida #spinabifidawarrior #tiktok

The next title in the Gillette Children's Healthcare Series will be Spina Bifida, coming in Spring 2026.

Sign up to the expression of interest form to stay up to date with news about this highly anticipated book
#SpinaBifida

www.mackeith.co.uk/spina-bifida...

Clear as Mud When you have chronic illness, a headache is rarely just a headache. What you think is a horse can oftentimes be a zebra. So when you have hydrocephalus like me, it can also be a shunt malfunction.…

When I thought I was in shunt failure, but turned out I was just severely anemic.
Also, anybody have any experience living with severe anemia? (and with #SpinaBifida would be even better)
mybleedingink.com/2026/02/13/w...