Really ugly KT tape job but it actually helps 🙌🏼 #hypermobilitysyndrome #chronicWTF

Me for the past month (or beyond) and realising today I'm almost two months late for my B12 injection 🙃🫪 #chronicWTF

"I've been sad the past two years. Stuck indoors under fans all the time". #rosacea patient on #badskinclinic - I just want to give her a hug. I can relate to every word she said. It's more than "just a skin condition" #dermatology #chronicWTF #rosacea #lupus 💔

Two. Absolute bane of my existence #DomesticFuckwit #chronicWTF

SO effin' true #chronicWTF

My sister gave me these Bowie-esque earrings ages ago. Shown off to great effect by my big red ear. I could go the rest of my life without something from the neck up going red for no reason. FFS 🍅 #rosacea #lupus #chronicWTF

"are you sure you should be using that walking stick if you're only mid-30s? You'll become dependant on it". Only thing that saved my mobility at the time awaiting surgery. The only thing that kept me working JUST SO I COULD LISTEN TO THAT SHITE. And guess what, I no longer use it. 🪄👐🏼 🙄 #chronicWTF

Derm has been great since but quality of life is shit, non-existent compared to six/seven years ago. It's not "cosmetic", it's far beyond that. Heart goes out to anyone in the same position #dermatology #chronicWTF #rosacea #lupus

I like to be useful and productive but does it always have to involve mental gymnastics/exhaustion? #chronicWTF #ActuallyAutistic

I saw this a few days ago and thought "well thank god I don't get that". My fingers have been blue, grey, every shade in between but never white. UNTIL NOW 👺 weird static electric shock tingly feeling and then WTF. (last photo back to normal purple/red colour) #chronicWTF #lupus

This week I've been pissed off at a minor cut under a nail. My hands looked like THIS 5 years ago, and they got much worse than that. "textbook connective tissue disorder!" as the dermatologist said to his students 😬 #lupus #chronicWTF

"It's designed to fatigue you, to make you stronger...." say Eddie HALL, one-time #WSM. So fatigue = strength? I must be an athlete. Excellent. #chronicWTF #chronicfatigue #WSM2025

And in the middle of a lupus flare up too #chronicWTF #lupus

Hobbies always beget new hobbies 🙄 #chronicWTF #chroniclife

New 15tog duvet on the bed. No cover on it yet. As if I could be expected to shake the new one out AND put it in a cover, taking the old one out of cover, putting that away - all on the same day I did the washing??? Don't be so stupid. #DomesticFuckwit #chronicWTF

For whatever reason, connective tissue disorders like this can be more common in people who already have #hypermobility and #autism. I've given up speculating but at least it's being recognised now (even my GP knew the link) #chronicWTF #lupus

Absolute state of my hands 5 years ago. I'm shocked at how fast it developed...from Jul to Sept in the last 2 photos - chilblain #lupus #chronicWTF

Happened again - psycho-dermatology appointment, a new student this time. My hands should be in a textbook ☺️🙌🏼 #chronicWTF #lupus

Just ordered a fire stick so I can lie about in bed if needed in future (and it's cooler-ish back there). Was looking forward to that next weekend except I've my MOT then 😭 #chronicWTF #chronicfatigue

This and then some. Except there's housework and general stuff like cooking and shit that there's no one else around to do (and a heatwave 😡) #chronicWTF #chronicfatigue #chronicpain #ukweather

Looking back enviously at photos from this day 2022, how much better my skin looked then. But only cos I was severely anaemic and ended up needing iron infusions 🙄 #rosacea #lupus #chronicWTF

a messy room with boxes and papers including a newspaper that says ' a & r ' on it ALT: a messy room with boxes and papers including a newspaper that says ' a & r ' on it

Current brain fog levels #WFH #chronicWTF #chronicfatigue

Seems I can't even eat a wine gum without my face flaring up. Awesome 🙌🏼🙌🏼🙌🏼 #rosacea #fml #chronicWTF

Actually PSYCHOdermatology. Cos there's nothing superficial or simply "cosmetic" about how a skin condition can affect a person... #lupus #rosacea #chronicWTF

At dermatology ap earlier "come look at this. Typical of a connective tissue disorder" he says to the junior doctor with him. I thought my hands were looking the best they've done in over 5 years, but I like to be helpful ☺️ #lupus #chronicWTF

Haha #heatwave #chronicWTF #lupus

In five years I've spent over a grand in FANS 🤢 Maybe over £100 in UV film for windows. I might be better prepared for a heatwave than most, doesn't mean I can cope with it #chronicWTF #rosacea #lupus

Energised, radiant, with full head of hair. Everything I am not. Maybe I should be stockpiling the stuff #chronicWTF

The Spanish can keep their stupid weather "plumes". They're vile 🤮 #ukweather #chronicWTF

Thought it was starting to cool down a bit but forgot I'd just turned the fan up. It's oppressive 🤮 #ukweather #chronicWTF #chronicillness