Listen to our NEW Navigating CIDP podcast series, now available on demand with Medthority. Join Mark Stettner, Luis Querol, and Filip Eftimov as they discuss the evolving challenges of diagnosing and managing #CIDP in real-world practice
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Small win today.
Insurance approved my treatment for #CIDP, which means the next chapter includes IV infusions and a lot of adapting along the way.
Life doesn’t always go the direction you expect, but resilience means adjusting, showing up, and continuing to push forward anyway.
Cranial nerve involvement serves as a diagnostic clue in chronic autoimmune neuropathies, particularly in identifying AN and CIDP. Cranial+ CIDP appears to represent a distinct subset with partial overlap to GBS.
Read now: onlinelibrary.wiley.com/doi/10.1111/...
@ean.org #WileyNeuro
#CIDP
Dianthus Therapeutics announced an early “go” decision for #Claseprubart for the treatment of chronic inflammatory demyelinating polyneuropathy (#CIDP).
Read here: https://bit.ly/4dfTZeI
#RareDisease #ClinicalTrial #CAPTIVATE
~3 years ago, I was diagnosed with #CIDP, an #autoimmunedisorder I believe was triggered by #Covid (bsky.app/profile/jeff...). With regular #rituximab infusions, I’ve regained strength and function. I continue to #MaskUp. Stay safe, #covidaware folks! Don’t quit — you’re not alone! #longcovidmonth 😷
Well it looks like it is possible I will be starting #IVIG treatment for my #CIDP #Neuropathy.
Still got hurdles to go through before that would happen but maybe something to stop the progression.
What sucks is it may interfere with my trips this year. :(
Mark your diaries:
🩷Thursday 19th | GBS Online Get Together 2pm
🩷Friday 20th | MMN IN Conversation from 12pm
🩷Tues 24th | MMN Online Get Together from 7pm
🩷Thurs 26th | CIDP Online Get Together from 2pm
Zoom Get Togethers: www.inflammatoryneuropathies.uk/get-togethers
#GBS #CIDP #MMN
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy
And it was my out of pocket Lyme doc who found it. And I cannot pay cash for the appropriate treatment (IVIG) this is unsustainable. The American "healthcare" system is a for-profit cabal of capitalism that feed off human suffering. It is time of single payor #medsky #CIDP
Wir danken dem Team der Handbuchautoren herzlich!
Mit im Autorenteam auch die Mitarbeiter der AG Klinische und Experimentelle Neuroimmunologie, von Prof. Dr. Dr. Mark Stettner.
#CIDP #Neuroimmunologie #NeurologischeTherapie #KKPNS
2/3
#microbiome #CIDP #neurology #health #SCFAs #geriatrics #health #immunology #autoimmune
The short-chain fatty acid (SCFA)
propionate,
produced by gut microbiota,
exerts neuroprotective and neuroregenerative effects
in the peripheral nervous system.
.
www.pnas.org/doi/abs/10.1...
Olympian Michael Klim warned his fiancée she’d met the ‘dud version’ of him #MichaelKlim #KlimSwim #CIDP
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
Get applying now at www.charityjob.co.uk/jobs/inflamm...
#Charity #CharityJob #CharityJobs #GBS #CIDP #MMN #InflammatoryNeuropathies
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
A recently published article in the European Journal of Neurology argues that a decline in proximal CMAP amplitude may not indicate true motor conduction block.
📚 Read now: onlinelibrary.wiley.com/doi/10.1111/...
#CIDP #EMG
@ean.org #WileyNeuro
🎆 Contemplating New Year's Resolutions
Jaimie Sheil, #CIDP Contributor, reflects on a time when she could only plan 15 minutes ahead—and how living with a life-altering #RareDisease reshapes the idea of resolutions and long-term plans.
📖 Read here: https://bit.ly/3N0cARc
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
#immunoglobulin #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency
Illustrated medical graphic explaining CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). It shows a nerve fiber with its protective myelin sheath being attacked and damaged by immune cells, causing breaks and debris along the nerve. Above the nerve are stylized immune cells. Below, a brain connects to a damaged peripheral nerve, illustrating slowed or disrupted signals between the brain and muscles. Text on the image explains that CIDP is a rare, long-term neurological disorder caused by the immune system attacking myelin.
Does anyone here have #CIDP (chronic inflammatory demyelinating polyneuropathy)? I’m newly diagnosed and would really love a support group or others to connect with. I’ve looked on Reddit too, but there doesn’t seem to be much out there. 💚
💙 The compassion of medical students matters.
#CIDP Contributor Jaimie Sheil shares how medical students' compassion shaped her rare disease journey — proving empathy is as vital as expertise.
Read Jaimie’s full article: https://bit.ly/3XSPy0G
#RareDisease #RareVoices #PatientPerspective #MedSky
Elevated #sNfL was more common among patients with #CIDP who were treatment-naïve or refractory to treatment, supporting it as a clinically useful biomarker for diagnosis, disease activity, and treatment response monitoring.
Read here: https://bit.ly/3Maotnf
#RareDisease #MedSky
What clinical features differentiate #CIDP? Watch Eduardo Nobile-Orazio share practical tips to ensure accurate differentiation between various neurological disorders, the importance of early diagnosis, and current treatment options #MedSky #NeuroSky #MedEd
ow.ly/QCx550XA31Z
A complicated relationship with "care"... 💙
Jaimie Sheil, CIDP Contributor, shares how living with a rare disease changed her understanding of the word.
✨ Read Jaimie’s full story: https://bit.ly/4pwCpGb
#RareDisease #CIDP #RareVoices
⚡️ Steiner et al. report that CIDP burden extends beyond sensorimotor deficits. Motor and cognitive fatigue are clinically relevant and often under-recognized.
📚 Read now: onlinelibrary.wiley.com/doi/10.1111/...
#Neurology #CIDP
@ean.org #WileyNeuro
Are we ready to chat? Our online CIDP Get Together is at 2pm today on Zoom.
Join us:
www.inflammatoryneuropathies.uk/get-togethers
#CIDP
🧠 New insights in #CIDP care:
Dr. Amit Sachdev highlights how personalized treatment—IVIg, SCIG, and emerging targeted therapies—can help patients move beyond the “maintenance plateau.”
More flexibility, better long-term outcomes ✨
Read More: www.neurologylive.com/view/optimiz...
#Neurology
