August 5, 2020: “Is it just me, or do a lot of the things people talk about re: #LongCovid sound an awful lot like EDS/POTS/MCAS?” The medical establishment caught up in 2021-2022. I knew because I live it.

PacePoints summary for today. 0.0 out of my current daily quota of 22.0.

Visible Health pacepoints graph showing mostly resting heartrate this morning and horizontal pacing line below.

What careful #pacing looks like, this lazy Sunday morning 🙏

NO #VisibleHealth PacePoints used at all so far today 😄

Saving myself for a more active afternoon.

#LongCovid

You spend, brands donate to Long Covid Kids and Friends. Help us when you shop with 7,000+ brands. Join now.

Today would be amazing, as we have a chance to get a bonus £200 donation if we gain more supporters by midnight! Thank you.

#LongCovid #LongCovidKids

join.easyfundraising.org.uk/long-covid-k...

Add in the cost of #ME/CFS a chronic illness with many similarities to #LongCovid - estimated EUR annual cost of $40b. US annual cost $20b. Australian annual cost - $10b.

a woman in a lab coat is talking to another woman and says we need boundaries Alt: a woman in a lab coat is talking to another woman and says we need boundaries

Pfff 🥵 Warme nacht. PEM koorts rillingen bovenop de menopauze warmte. Geen aanrader.
Waar zijn mijn grenzen, kan iemand ze even zoeken want ik heb geen idee waar het nu zo mis ging.
Of zou het een optelsom zijn?
Stomme #LongCovid

Picture of my stick seat on a cycle path nearer to home

Stick seat at the ready! We have high hopes of what we might explore together here in the Yorkshire Dales @yorkshiredales.org.uk National Park 😊

#LongCovid #Disability #Pacing #GeographyTeacher

Visible Health pacepoints graph for each day over the past 3 months. Much lower than it was in January...

Here's the longer-term context:

Over the past THREE MONTHS, I have managed to avoid inflammation in my #LongCovid body, despite the additional challenges of repeated dental infections 🙏

This lack of overexertion has made me more mobile and I have been focused on making the most of this week away 🤞

#TheNicotineTest Runde drölfundzwanzig. Nach Monaten mal wieder ein Versuch; vielleicht geht ja noch ein bisschen was. Heute ist Tag 7, und ich habe nicht einen einzigen Tag vergessen, das Pflaster zu erneuern. 💪
#LongCovid

Visible Health Pacepoints graph for the past 2 weeks showing drop from 15-17 pacepoints a day down to around 5 per day.

As someone with #LongCovid I have to Pace myself constantly.

Over the past TEN DAYS, I have focused on keeping my heartrate particularly low. This has been made possible by my Easter Break from teaching 👇

My #VisibleHealth PacePoints (PP) use has dropped from around 15-17 PP down to 5 PP per day 👇

Wort zum Sonntag:

Es gibt #mecfs - Betroffene, die kein(e)
- Eltern,
- Partner,
- Erspartes,
- EWMR,
- Privatärzte
haben. Von mitbetroffen Kindern ganz zu schweigen. Dies sollte man immer mitdenken, wenn man sich zur Sache äußert.

#longcovid #postvac

Wha would make school life easier for the young person you care for ? Blue background. White writing.

This is an important opportunity to ensure that the lived experiences of children and #youngpeople with #LongCovid are reflected in national guidance and future #policy. The DfE is currently consulting on updates to its statutory guidance, Supporting pupils with #medicalconditions at #school.
#SEND

Performative concern about learning loss from COVID mitigations (and make no mistake, anything that doesn't address #longCOVID is purely performative) is like complaining a fire alarm and evacuation were stressful for children without mentioning that the school was on fire at the time.

Dishonest.

This #LongCovid website from the Washington State Department of Health is worth a look. And 🙏 for mentioning masks and IAQ.
doh.wa.gov/emergencies/...

Public education and the costs of COVID inequity We need policies to protect precarious workers and students.

13/
"Journalists covering teacher and student absenteeism without talking about COVID are ignoring an elephant in the room & gaslighting many people suffering from #LongCOVID and illnesses that may have developed from getting COVID":

@teachrprecarity.bsky.social

www.thespec.com/opinion/cont...

Research ties long COVID in kids to chronic school absenteeism, learning problems Long COVID was also linked to a higher prevalence of anxiety and depression.

11/
As for all that relentless guff in the media about chronic school absenteeism & "lazy teachers" setting a poor example, turns out it was actually #LongCOVID -

www.cidrap.umn.edu/covid-19/res...

Students aren’t recovering from covid. Test scores are getting worse. Takeaways from new federal data on student math and reading achievement detail the long and damaging road back from the pandemic.

8/
Another head-shaking media article, without a single mention of #COVID or #LongCOVID. Mercifully the article avoids blaming lockdowns, but (like many media articles) erroneously places the pandemic in the past -

www.washingtonpost.com/education/20...

1 in 3 Edmonton public-school students chronically absent from class | CBC News Tens of thousands of students in Edmonton's public and Catholic school divisions are chronically absent each year, a CBC News investigation found. The problem is more severe in the public system, wher...

7/
No mention of #LongCOVID, but "Number of students missing at least 10% of school year rising since pandemic":

www.cbc.ca/news/canada/...

Symposium on Long COVID and Society at Columbia Columbia University is hosting a free symposium on Long COVID and Society on Monday, April 20 from 9:30 AM to 5:00 PM (ET). Speakers include sociologists, historians, anthropologists, patient advocates, clinicians, and scientists working around issues related to Long COVID's impact on social inequalities. Attendance can be in-person or virtual. Learn more here or register here.

Symposium on Long COVID and Society at Columbia (also online)

longcov.id
docs.google.com/forms/d/e/1F...

Image is from the Massachusetts ME/CFS & FM Association April 2026 newsletter

#LongCovid #PASC

Chronic Absenteeism’s Post-COVID ‘New Normal’: Data Shows It Is More Extreme Amid a wave of new research on the pandemic’s shattering effect on classrooms, one expert called it the ‘question that keeps me up at night.’

6/
And in this article that refers to the pandemic in the past, no mention #LongCOVID to account for chronic absenteeism in US schools -

Via @teachplus.bsky.social

www.the74million.org/article/chro...

Kids’ cognitive skills declined during COVID-19 pandemic, studies show

5/
No mention of #LongCOVID in this article that frets about significant declines in children’s executive functioning (even though we know that even a "mild" bout of #COVID can cause a three-point loss of IQ -

www.cidrap.umn.edu/covid-19/kid...

The silent scourge - why poverty drives chronic respiratory illnesses in South Africa Chronic respiratory diseases such as asthma account for 4% of all deaths in South Africa and poverty is the main underlying driver of these diseases, say experts.…

4/
...there's zero mention of #COVID or #LongCOVID, in this article pointing to poverty as the underlying driver of chronic respiratory diseases such as asthma -

@dailymaverick.co.za

www.dailymaverick.co.za/article/2026...

Study links social inequalities to long COVID

3/
And in spite of US studies suggesting that (1) #LongCOVID may have surpassed asthma as the most common chronic condition experienced by children; & (2) the fact that Long COVID is associated with social inequality -

www.cidrap.umn.edu/covid-19/stu....

Digital physiological biomarkers predict within-person symptom changes in complex chronic illness

www.nature.com/articles/s41...

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid

#MyalgicE #MECFS #LongCovid "These conditions have no approved diagnostics, no standard treatments, and no established clinical pathways. Over 73% of ME/CFS cases are now triggered by COVID-19, and over 95% of patients will not recover...."

Long COVID in Young Children, School-Aged Children, and Teens This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.

2/
" #LongCOVID is common, affecting up to 10% to 20% of children with a history of COVID-19. With almost 6 million US children potentially affected, this is higher than the number of children with asthma, the most common chronic health problem in children":

jamanetwork.com/journals/jam...

A reminder that any analysis of pandemic impacts on kids / education / economy that does not include a serious examination of the effects of #longCOVID is worthless, and one that does not even mention it should be assumed to be deliberately deceptive unless there's a good reason to think otherwise.

So many unnecessary deaths. Devastating. Silence now.

So many disabled. The disability brushed under the carpet. #longcovid

"The only thing we have to fear is fear itself" and [insert #OngoingPandemic or #N95 mask, whichever is more triggering for you].

* Alternatively, insert this summary of #LongCOVID, courtesy of @elisaperego78.bsky.social -

www.mdpi.com/2673-8112/6/...

Yes. I have to consciously MAKE myself breathe now. I never, ever had autonomic issues before #LongCOVID but now I literally have to tell myself to breathe. It’s not fun! (As an aside, are NIH researchers still allowed to study long covid?)

MCAS attacks are scary. Period, end of story.

I hate them.

#mcas #longcovid #mecfs #copd #pots