The feeling that microscopic colitis is probably the reason for all your symptoms and no one would listen really takes some time to work through and grieve for who I was and who I could be.
Now I wait
#medicalgaslighting #microscopiccolitis #autoimmunedisease #autoinflammatory #chronicillness
Having had chronic illnesses for as long as I can remember, getting hit with one I didn't know about and having it feel like the would is collapsing around you in less than 24 hours is really a mind fuck!
Reading up
#chronicillnesses #microscopiccolitis #chronicwarrior #gutproblems #healingmyself
Very happy to share this Feb commentary in @lancetgastrohep.bsky.social co-authored w @mayoclinic.org #IBD Dr. Edward V. Loftus Jr. - making our case for an urgent repositioning of #microscopiccolitis under the "true" #IBD umbrella - long overdue for this disease.
www.thelancet.com/journals/lan...
What’s it really like to live with #IBD?
What challenges do you face day to day?
#IDB #CrohnsandColitis #crohnsandcolitisawarenessweek #colostomy #urostomy #ileostomy #ulcerativecolitis #crohnsdisease #microscopiccolitis #stoma #stomaaware
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#InflammatoryBowelDisease #IBD #CrohnsDisease #UlcerativeColitis #MicroscopicColitis (🧵6/6)
Calling all fellow IBD havers! I created a Feed on here that includes people's posts that mention our various conditions if you wanna add it :) bsky.app/profile/croh...
#CrohnsDisease #UlcerativeColitis #IBD #MicroscopicColitis #MyTummyHurts #ChronicIllness
“ #MicroscopicColitis is often missed because it is small..so it can take a while to get properly diagnosed. Unlike #UlcerativeColitis, you can’t see it in a #colonoscopy. You have to take a #biopsy to find it”: buff.ly/4jq2tRm by @hollychessman.bsky.social #ChronicIllness
Open bag of Sun Tropics’ Coco Rolls Salted Carmel flavor cookies.
Alert: Yummy food find! I bought Coco Rolls at Wegman’s supermarket. No dairy or gluten. Yes coconut and eggs. Amazing light texture. Delicious flavor. Insanely addictive!
Not sponsored - just my thoughts.
#chronicillness #foodie #allergies #longcovid #microscopiccolitis
So relatable 😂😭 I was having diarrhea more than 20x/day. I merely got a “it’s #longcovid, bummer” shrug from a GI dr. My awesome PCP ran a bunch of tests. Took the results back to GI who said “oops, looks like #microscopiccolitis - my bad.” 🙄
#chronicillness #spooniehumor #womenshealth
Recommendations for dairy-free cheese substitutes that don’t taste like glue?
Note: I can’t digest oats/oat milk, soy, or corn, and I’m avoiding almond milk for now.
#chronicillness #longcovid #microscopiccolitis #mecfs #POTS
In case you want to know my experience as a person with #longcovid, today I’ve had to run to the restroom 24 times so far since I first woke up at 2AM. And I mean RUN like my pants depended on in, ‘cause they did. 😂😭 Yay #microscopiccolitis #chronicillness
“I know this because it’s happening in my body as we speak. #LongCovid has allowed my innards to party a little too hard for the holidays. In fact, they’ve developed the hangover of a lifetime: #MicroscopicColitis": https://buff.ly/4jq2tRm #LongHauler #ChronicPain #spoonie
Ooft...hard relate.
#Fibromyalgia #Fibro #Hypermobility #MicroscopicColitis #Osteoarthritis #ChronicPain #Pain #ButYouDontLookSick #Spoonie #SpoonieLife #ChronicFatigue #InvisibleIllness
Thank you! Looking for my MC tribe. #microscopiccolitis
Looking for my #microscopiccolitis #msc #gi tribe on #bluesky. Y'all here? #colitis #chronicillness #immunesystem #immunocompromised #disabled
