#HAE #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #SelfAdvocacy #PatientAdvocate #PatientAdvocacy #InvisibleIllness #RareDiseaseCommunity #HealthAdvocacy #SpeakUpForYourHealth #BioNews #AngioedemaNews

Discover Hollie's inspiring story: https://bit.ly/43yorKH

 She turned to advocacy and resilience after a hereditary angioedema diagnosis.

#PatientAdvocate #HAEStory #RareDiseaseAwareness #Inspiration #HealthAdvocacy #AngioedemaNews #Bionews

Most kids with chronic illness never see themselves in books.
So I wrote them.
📚 Follow @IAMElleCole
#sicklecell #type1diabetes #representationmatters #chronicillnesskids #patientadvocate #diabetesawareness #sicklecellwarrior #kidshealth

"Be here now, in the moment." Terri Conneran

Thank you for this amazing presentation!

#LungCancer #PatientAdvocate #KRAS #LungCancerSurvivor #TargetedTherapies #GRACE #KRASKickers

#186 n-Lorem: Nano-Rare Diseases with Luke Rosen and Wendy Chung — DNA Today First episode of the N-Lorem Foundations’ “Patient Empowerment Program” features an actor turned patient advocate and a pediatric geneticist.

Yesterday was #CACNA1A Awareness Day!

Check out this #sciencepodcast episode with #patientadvocate Luke Rosen and pediatric #geneticist Dr. Wendy Chung on nano #rarediseases 🧬

📣You know your body the best, if in any doubt #getchecked out.

#awareness
#earlydetection
#breastcancer 1in8
#hope
#selfcheck
#Denise
#patientadvocate

Six Nations man becomes Canada’s first doctor of public health Canada’s first doctor of public health brings Indigenous people to the “front of the line.”

“Six Nations man becomes Canada’s first doctor of public health” - www.thespec.com/news/hamilto... - #IndigenousHealth #CulturalSafety #PatientAdvocate

Medical trauma isn’t just a memory; it’s a physical state. I’m sharing the latest research on the link between Post-Traumatic Stress Disorder (PTSD) and #ChronicPain: advocatinghealth.com/2026/03/05/t...

Does your pain feel linked to your stress levels? 💕✨

#PatientAdvocate #IBD #Fibro #PTSD

Why we need to talk about the mental impact of chronic illness I was diagnosed with ulcerative colitis (UC) in 2007, but it took me seven years to be able to talk or share much about that experience, the emergency surgery that followed shortly after, and the c…

It took me 7 years to talk about my #UC & #Stoma surgeries. We focus on the physical, but the mental impact of #ChronicIllness is just as vital. I’ve written about processing #MedicalTrauma & reclaiming your identity: advocatinghealth.com/2026/02/23/t...

#PatientAdvocate #IBD #Crohns #Colitis

The stages of grief in chronic illness When we talk about chronic conditions like IBD, fibromyalgia, or arthritis, we often focus on the physical side – the surgeries, medications, and scans. But there’s a massive emotional …

Grief is usually associated with loss, but with #ChronicIllness, you’re grieving too. I explore the 5 stages of grief and why it isn’t a failure to feel them: advocatinghealth.com/2026/02/20/t...

How are you doing with these stages? Do you move back and forth between them? 💕✨

#PatientAdvocate

As a #patientadvocate I want to stress how important this is! It’s not condescending! Sometimes it means incorporating graphics because *numeracy is key* to making treatments decisions, for example.

Clinical papers don’t tell the whole story of #Pregnancy after bowel surgery. I’m sharing 5 powerful, real-life experiences from the #IBD community about family planning, #IVF, and childbirth. You aren't alone in this.

Read: advocatinghealth.com/2026/02/09/f...

#PatientAdvocate #Stoma #Ostomy

MEMBER NEWS
🎉 CONGRATULATIONS to tribal member Phyllis Pettit Nassi on her retirement from the Huntsman Cancer Institute! Phyllis has dedicated her career to patient advocacy and helping Indigenous populations. #otoemissouria #healthcare #patientadvocate #advocacy

Saying no to the wrong foods can mean fewer attacks, more energy, and a body that feels just a little bit safer.

#HAE #HereditaryAngioedema #ChronicIllness #InvisibleIllness #ListenToYourBody #SpoonieLife #ChronicIllnessCommunity #PatientAdvocate #BioNews #AngioedemaNews

Today is Time to Talk Day. We’re experts at the physical side of #IBD or #Fibro, but the mental toll is harder to voice. You don’t need a script to be honest about the weight of #ChronicIllness and #PatientAdvocacy.

Read more: advocatinghealth.com/2026/02/05/b...

#PatientAdvocate #IBDSuperHeroes

The free resource every cancer patient should know about: the NCCN Patient Guidelines. #CancerWarrior #PatientAdvocate #HealthInfo #CancerRoadmap #TheGreatLockIn TikTok video by Michael Vasallo

The free resource every cancer patient should know about: the NCCN Patient Guidelines. #CancerWarrior #PatientAdvocate #HealthInfo #CancerRoadmap #TheGreatLockIn
www.tiktok.com/t/ZThfjgtRq/

Discover Hollie's inspiring story: https://bit.ly/43yorKH

 She turned to advocacy and resilience after a hereditary angioedema diagnosis.

#PatientAdvocate #HAEStory #RareDiseaseAwareness #Inspiration #HealthAdvocacy #AngioedemaNews #Bionews

Case #003: Not Just the Elderly A nursing home drug-resistant infection changed everything. The PICC line stayed in a month past its removal date. Then came VRE. MRSA. Carbapenem-resistant bacteria. New wounds appearing faster than old ones healed. Contact isolation at 35 years old. He's still alive. Still fighting. Still failed by a system that sees patients as billing codes. Nursing home neglect is not an old person's problem. It's a system problem. This is Marcus's story.

Read about nursing home drug-resistant infection and the vital need for better protocols in patient care and rehabilitation.
#nursinghomeneglect #drugresistantinfection #vre #mrsa #piccline #pressureulcer #facilityabuse #patientadvocate #healthcarefailure #silentvoices

📣 #PatientAdvocate Workshops at #ESMORareCancers26
13–14 Mar
✅ #HTA & patient input
✅ Rare cancer research
✅ Care via reference centres, guidelines & outcomes
✔️ Registration required | ESMO Advocates: reduced fee, late 11 Feb
❌ No travel grants

🔗 https://ow.ly/afrN50Y494L

SFU and FNHA sign MOU to improve health and wellness of First Nations peoples in B.C. Simon Fraser University (SFU) and the First Nations Health Authority (FNHA) have signed a Memorandum of Understanding (MOU) to advance and implement common goals related to First Nations health and we...

“SFU and FNHA sign MOU to improve health and wellness of First Nations peoples in B.C.” - loom.ly/jH0ITW8 - #IndigenousHealth #IndigenousWellness #HealthEquity #PatientAdvocate - @sfu.ca

Keeping a medication log can be a lifesaver at doctor appointments. When you can show exactly what you've tried and how your body responded, it changes the whole conversation.

#ChronicIllness #MedicationManagement #HealthAdvocacy #PatientAdvocate

#HAE #HereditaryAngioedema #AngioedemaNews #ChronicIllnessTravel #RareDisease #HAEWarrior #DisabilityTravel #ChronicIllnessCommunity #TravelWithHAE #PatientAdvocate #BioNews #AngioedemaNews

Island Health exploring how to better support Indigenous patients - Tofino/Ucluelet Westerly News Indigenous healing talk at health summit explores Cultural Safety and Humility Standard assessment

“Island Health exploring how to better support Indigenous patients” - westerlynews.ca/2025/12/06/island-health... - #PatientCare #HealthEquity #CulturalSafety #PatientAdvocate

Dose of Uncertainty: Experts Wary of AI Health Gadgets at Consumer Electronics Show Accuracy and privacy questioned

"I would urge people not to think that the technology is the same as a well-resourced, thoughtful, research-driven medical professional," said Cindy Cohn, executive director of the digital rights group Electronic Frontier Foundation.
#medsky
#CES26
#patientadvocate

#IntestinalFortitude #CancerAwareness #SurvivorLife #BookLaunch2025 #MentalHealthMatters #PatientAdvocacy #ChemoBrain #CancerCommunity #SurvivorStrong #PostTreatmentLife #PatientAdvocate #LifeAfterChemo #fuckcancer

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Have you been using #AI to support your #InflammatoryBowelDisease management, another condition, or your overall health?

How do you use it, and what has and has not been useful?

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible

READ AMAZON.COM'S #1 NEW RELEASE IN COLON CANCER TODAY!

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#CancerAwareness #SurvivorLife #BookLaunch2025 #MentalHealthMatters #ChemoBrain #IntestinalFortitude #CancerSurvivorBook #PostTreatmentLife #PatientAdvocate #LifeAfterChemo #fuckcancer

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#CancerAwareness #SurvivorLife #ResilienceTips #BookLaunch2025 #MentalHealthMatters #PatientAdvocacyLife #ChemoBrain #CancerCommunity #SurvivorStrong #IntestinalFortitude #CancerSurvivorBook #PostTreatmentLife #PatientAdvocate #LifeAfterChemo #fuckcancer

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#CancerAwareness #SurvivorLife #BookLaunch2025 #MentalHealthMatters #PatientAdvocacyLife #ChemoBrain #CancerCommunity #IntestinalFortitude #CancerSurvivorBook #PostTreatmentLife #PatientAdvocate #LifeAfterChemo #fuckcancer

Listen to a new episode of #SpitefullyYours with me!
#Podcast #SpitefullyYoursPod #Listen #Healthcare #Advocacy #PatientAdvocate