“#BrainFog is another sign that my #spoons are pretty low… If I get carried away doing some mental task…I suddenly find myself at a point where I just can’t think any more… I know I have to rest, in fact I have no choice.” https://buff.ly/vk5xqtg #chronicillness #spoonie

RobinReach

“There is often a huge sense of loss [with] #chronicillness… the loss of a career, loss of friends or social life. But the biggest loss is often who [we] once were. Many people no longer feel that they’re the same person. They grieve for that person.” https://buff.ly/kUOZ9CG #ChronicPain #Disability

“Listening to your body is one of the most important things you can do when you live with #chronicillness… signs of increased #fatigue, dizziness and #pain… Ignoring my body can cause a flare-up of symptoms, so I try and listen to what it’s telling me.” https://buff.ly/9eyP6RE #spoonie

“Being more honest and realistic about my limitations with #chronicillness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” https://buff.ly/W7IZIiT @carriekellenberger.bsky.social #MentalHealthMatters #YouAreNotAlone

“It’s a day-to-day battle… a lot of the time it feels more like just surviving… Pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” https://buff.ly/3xIcBle #ChronicIllness #ChronicPain

RobinReach

“When we experience a health setback—which sometimes is a new state of being—we have to adjust our coping…it can be extremely emotionally and mentally taxing. I am in this state now…taking care of #mentalhealth during these times is extremely important.” https://buff.ly/HEUnfwq #ChronicPain #Spoonie

“Some bad pain days turn into weeks or months…bedridden… My mind goes from #anxiety to grief to anger to #depression, then…numbness. It’s when I go numb that is the worst. I feel nothing besides the pain.” themighty.com/topic/rare-disease/menta... #ChronicPain

“#ChronicPain is still poorly understood, and most physicians aren’t trained in managing it clinically… Another concern is that the medical profession often fails to acknowledge the emotional aspects of pain or even the effects pain has on daily living.” https://cme.sh/6MbjMe #InvisibleIllness

“Treat yourself with love and #compassion when you accidentally go beyond your limits. We all do it… you shouldn’t blame yourself… Cast off the ignorant remarks of ignorant people. Life’s too short. Seek support in those who understand.” https://buff.ly/3JvXPAJ #chronicillness

“I may have a few weeks, where I am physically able to reach those happy “new normals” of increased function, despite incredible #pain… Then you barely heard from me for weeks and it seemed I fell off the planet. Truth is… I did.” https://buff.ly/3vlBChO #RareDisease #CRPS #RSD

“Every day you have to start thinking about cause and effect, not in regards to just your actions, but instead, in regards to every. single. little. thing. Anything can cause a flare.” When Everyday Pain Becomes Your 'Normal' https://buff.ly/3Bser9n #ChronicPain #ChronicIllness

“Coping with #ChronicPain isn’t pretty—especially on the difficult days… When my pain spirals…it can be hard to imagine life ever becoming easier—but I hold onto the hope that tomorrow might be a better day.” despitepain.com/2026/03/31/coping-diffic... @DespitePain

“I’m tired of being told to ‘deal with it’… It’s hard to deal with something that never goes away… But, I’m also tired of blaming myself for my #chronicillness — because it is not my fault… and I’m trying my best.” themighty.com/topic/endometriosis/endo...

RobinReach

“The next day…my back’s killing me…my feet hate me for even touching the ground a little. Both rotator cuffs…screaming… Officially in #fibro flare zone… When you’re flaring, your brain is like pudding… Everything shuts down…and forces you to rest.” https://buff.ly/2rbq1pr #Fibromyalgia #ChronicPain

“For days, I will struggle with the consequences of being up and about…living my life. I will feel guilt I took a day or night to do this and now my whole life is on hold…while I recover.” The 2 Sides to My Daily Life with #ChronicIllness https://buff.ly/3Q7Cqir #ChronicPain #DisabilitySky

RobinReach

“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1

“Everyone with #disabilities experience their disabilities differently… What works for one person may not work for someone else… What is helpful is when people listen, accept, and honor not only the #disability but also the person with the disability.” https://buff.ly/jYO4QdK

RobinReach

“If you handle it well, they tend to forget that you’re handling it at all… doesn’t mean that I’m okay… I still have to deal with my illnesses [&] handle everything… I still have way too many medical appointments and way too much pain.” https://buff.ly/4eCu91w #ChronicIllness #ChronicPain

“My body has broken down with this pain. I’m exhausted… It’s resulted in the inability to use even my hands. But sometimes pain isn’t the worst part…the thing that hurts the most? Missing out, the lost memories—because of the pain.” https://buff.ly/3YS1lMS

“If you live with #EDS #ChronicPain #autoimmune disease #longCOVID or any illness with flares, crashes or nervous system chaos—traditional goal-setting doesn’t [work]. Many #ChronicallyIll people struggle…because: We’re taught to override our bodies… Rest triggers guilt.” https://buff.ly/x7iqLEC

“Remember #YouAreNotAlone there's a whole community here you can come to… Keep doing whatever helps… We have to take care of ourselves or wind up even worse. Don’t feel guilty for doing what you need to.” themighty.com/topic/chronic-pain/advic...

“There is so much that you just don’t see. So much that we hide because we don’t want to scare you…because we don’t want to have to worry about you worrying about us.” invisibleillnessbattle.wordpress.com/2015/04/20/what-does-it-... #chronicillness #chronicpain #spoonie

“It’s hard because it feels like your fault—but it’s not… Being sick is not your fault…it isn’t you who decided not to go, it’s your #chronicillness …and you let your friends know that as soon as you could.” themighty.com/topic/chronic-fatigue-sy...

“It is okay to rest. We need to take breaks… And understand there should be no guilt in this. We have #fatigue and it is part of managing our day… We have to pace. We don't pace and we suffer for it—sometimes for days/weeks.” https://buff.ly/421bnys @ChronicallyNikki.bsky #chronicillness

“One day I am fully capable of a task while the next, I struggle with generally simple things like brushing my teeth or getting dressed… Your abilities change dramatically from one day to the next.” www.themuse.com/advice/working-living-wi... #ChronicIllness #DisabilitySky

“When I think of the “busy” that I miss in my life—it’s the feeling after busy. Of getting home and plopping onto the couch because I’m tired from activity and interaction, not because of a full day of physical pain and #fatigue.” https://buff.ly/4ej7do5 #ChronicallyIll #ChronicPain #Spoonie

“One thing people don’t get about complex #chronicillness is that it can be simultaneously ever-changing and numbingly constant… You never know what the day will bring… There’s no way to communicate ahead of time with friends.” blog.mighty-well.com/2022/10/medical-leave-ch...

“My #pain is so high…because I’m too stubborn to tell my friends that I need a day to recover…too stubborn to admit that, sometimes, my pain is greater than I am.” themighty.com/topic/reflex-sympathetic... #CRPS #RSD

RobinReach

“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #ChronicPain unless you have it, and understanding what it’s like… dramatically affects how you treat someone who lives with it.” https://buff.ly/ZVh1ubc
@kmitchellauthor.bsky #ChronicIllness

“Be gentle with yourself… Our bodies are hard enough on us without ourselves being even harder. Be kind, be patient, be gentle. Treat yourself how you would treat another #chronicallyill person.” themighty.com/topic/chronic-illness/ha... #ChronicPain #Spoonie