Where are My zebras at?

#ehlersdanlossyndrome
#connectivetissuedisorder
#spoonie
#queerspoonie

Image of an ultrasound screen. The ultrasound is of the right hip joint as a needle is guided into the joint to deposit the suspension. You can see the needle showing as a line, while the joint space looks like a blob.

Got myself new ultrasound guided steroid injections for both sides of my hips today.

Always a weird sensation. Hopefully relief in a couple days/weeks.

#HipDysplasia #ConnectiveTissueDisorder #OctoberSlide #HipHipHooray

Yes. Following, as well as anyone posting on EDS. #hEDS #EhlersDanlos #Zebra #ConnectiveTissueDisorder

She’s Not Just Flexible—Her Connective Tissues Are Failing Her

Subscribe to read more on www.pouringpotions.com

#EhlersDanlosSyndrome #EDSawareness #Hypermobility #GeneticDisorders #ConnectiveTissueDisorder #InvisibleIllness #MedicalReels #JointDislocation

A recent study conducted by Ruhoy et al. investigates the frequency of comorbidities and the need for neurosurgical interventions in individuals with connective tissue disorders (CTDs), offering valuable insights into the multifaceted challenges faced by this patient population.

New CCI Research: Understanding the Frequency of Neurosurgical Interventions in Connective Tissue Disorders

English Summary: www.chronicpainpartners.com/new-cci-rese...

#CCI #KraniozervikaleInstabilität #Halswirbelsäule #EhlersDanlosSyndrome #ConnectiveTissueDisorder

I have been in so much pain the last few days, and yet again, I am reminded that while my mind and my artistic ambition have no limits, my body is made of limits. Chronic illness is an endless cycle of grief. #EDS #chronicillness #chronicpain #connectivetissuedisorder #disabledartist

Unraveling the Threads: A Closer Look at the Types of Ehlers-Danlos Syndrome Imagine your body as a beautifully woven tapestry, each thread representing a crucial part of what keeps you together—your joints, skin, blood vessels, and more. Now, imagine those threads are a bit t...

Unraveling the Threads.Today we take a closer look at the different types of EDS and starting Monday, each day we will be sharing a deep dive into each type of EDS.
#unremarkableme.com
#EhlersDanlosSyndrome #EDSawareness #ChronicIllness #ConnectiveTissueDisorder

It’s all connected. #covid #covid19 #covidー19 #covid_19 #longcovid #postviral #covidtiktokers #pandemicproblems #quarantinelife #wearamask #maskup #disability #disabilitytiktok #disabilityawareness #d... TikTok video by The Lady K

If you’re still on TT & met me through Bluesky, allow me to introduce you to my Roman Empire: C-19 & Connective Tissue Disorders www.tiktok.com/t/ZP8FnVvm9/

I haven’t returned to the app - I’m assessing next steps.

#Covid #EDS #ConnectiveTissueDisorder #Neurodivergent #StillCoviding #WearAMask

I had a nerve hurting down my arm so I rotated it and my shoulder popped back into place it was subluxed and pressing a nerve. 😩 #connectivetissuedisorder #spoonie #zebra

POV - Having a #connectivetissuedisorder or #chronicpain -

I started with #GuaSha on my face but now I do my whole upper body and arms bc scraping out the muscles feels amazing 😂

#chronicillness #migraine #spoonie #connectivetissuedisorder #pots #IC #mobilityaids

When you stretch too hard and dislocate your foot, that amore! #eds #connectivetissuedisorder 🤔

OMG this pic hurts to look at. Don't do it, Double-Jointed Guy! You've got an undiagnosed #ConnectiveTissueDisorder and your joints will 100% take their vengeance for your party tricks.

This is a fraction of the paperwork from my medical journey. We deserve better

Sweatshirt: Two Crow Collective #ChronicIllness #ChronicPain #RareIllness #ConnectiveTissueDisorder #MCAS #POTS #CleidocranialDysplasia #NOD2 #YAOSyndrome #MedicalGaslighting #WeDeserveBetter #Disability

3/3 Wie kann man um Himmelswillen so ein Gift auf den Markt bringen und jahrzehntelang wissentlich Menschen damit vergiften, das dann weltweit, ohne Hilfe zurück lassen? Ich verstehe es nicht.
#Neuropathie #SmallFiber #POTS
#MCAS
#ConnectiveTissueDisorder
#Mitochondrien #Kaputt
#CCI
#MEcfs & mehr

Days of high fatigue or pain seem to be increasing, not sure why. Really not enjoying it. Need to find better ways to cope. Not able to just power through like I used to. #Autoimmune #ConnectiveTissueDisorder

Chronic illness shattered this teen's life. Her service dog helped get it back The middle school winner of NPR's Student Podcast Challenge tells how her golden retriever, Lopez, changed her life.

The winner of NPR’s student podcast challenge is a 14 yr old girl with #POTS, #PANDAS, #Lyme, a #connectivetissuedisorder, and #LongCOVID who talks about her relationship with her service dog named Lopez.

Spoiler alert: Lopez is a Very Good Boy. 🥰

#NEISvoid #disability