@orion-kelly.bsky.social | Orion Kelly - That Autistic Guy: "Autistic Masking - The Short Term Relief and the Long Term Damage" | #Disability #MentalHealth #SurvivalStrategy #LearnedSurvivalSkill #IdentityLoss #DelayedDiagnosis #LateDiagnosis #Burnout #MaskingTax
www.youtube.com/watch?v=ReVa...

#DelayedDiagnosis of alpha-mannosidosis is common especially in mild cases, highlighting the need for early diagnosis to facilitate timely treatment bit.ly/4oTXxpC #GIMO #AlphaMannosidosis #LysosomalStorageDisorder #DiseaseSeverity #RareDisease #EnzymeReplacementTherapy

#HAE #HereditaryAngioedema #HaeAwareness #ChronicIllness #DelayedDiagnosis #PatientStory #Angioedema #InvisibleIllness #MedicalAdvocacy #RareDisease #PatientEmpowerment #BioNews #AngioedemaNews

It's NOT in Your Head: Surviving Medical GASLIGHTING Have you ever left a doctor's office with more questions than answers, feeling like you weren't heard, or worse, like you were crazy? You're not alone, and it's not in your head. This is the story of medical gaslighting, the silent epidemic where women's symptoms are dismissed, minimized, and blamed on their emotions. Join us as we expose the shocking history of healthcare bias, tracing a direct line from the archaic diagnosis of "female hysteria"—once blamed on a "wandering uterus"—to the modern-day dismissal of legitimate pain. We’re investigating why women with everything from autoimmune diseases to heart conditions are experiencing delayed diagnoses, and how this systemic failure is causing not just physical harm, but severe anxiety and healthcare PTSD. We'll also pull back the curtain on the multi-billion-dollar wellness industry. Is it a safe haven for women failed by traditional medicine, or a predatory system profiting from our pain with unproven promises? From crystals to cleanses, we’re asking the tough questions. This podcast is more than a discussion; it's a toolkit for patient advocacy. It’s for every woman who has ever been told her pain is "just stress." It’s time to stop second-guessing ourselves and start demanding the care we deserve. If you’re ready to reclaim your health story and fight back against a broken system, you’ve found your community. Follow us now to join the conversation, and leave a 5-star review if you believe it's time for change—it helps this vital message reach more women who need to hear it.

📣 New Podcast! "It's NOT in Your Head: Surviving Medical GASLIGHTING" on @Spreaker #autoimmunedisease #believewomen #beyourownadvocate #chronicillness #delayeddiagnosis #femalehysteria #healthcarebias #healthequity #invisibleillness #itsnotinyourhead #medicalgaslighting #medicalmisogyny

Get the full story: https://bit.ly/46pkGuk

#HAEAwareness #HereditaryAngioedema #DelayedDiagnosis #KnowTheSigns #ChronicIllness #RareDiseaseAwareness #AngioedemaNews #Bionews

Want a summary of our new paper on the impact of delayed ADHD diagnosis in women?

Well I have just the ticket! Perfect for people who don't have an academic background, or those looking for a lighter read :)

otherprimates.wordpress.com/2025/07/04/u...

#ADHD #DelayedDiagnosis #WomensHealth

LinkedIn This link will take you to a page that’s not on LinkedIn

Happy to share National Axial Spondyloarthritis Society
article published

Read to find out #delayeddiagnosis of #axialspa +how #primarycare clinicians can make a difference
lnkd.in/dC-i4a7A
And everyone at NASS and co authors

Act on axial spa campaign find more resources here

lnkd.in/deaNhpFp

❗ Suffered due to a delayed diagnosis? You may have a claim. Michael Dale explains your options and how to seek compensation.

📖 Read more: anthonygold.co.uk/latest/blog/...

📞 Call us on 020 7940 4060 or email mail@anthonygold.co.uk for help.

#ClinicalNegligence #DelayedDiagnosis #MedicalClaims

CORD Rare Disease Patient Survey CORD Rare Disease Patient Survey - Download as a PDF or view online for free

With #RareDiseaseDay around the corner, it seems like a good time to re-post @raredisorders' #RareDisease Patient Survey from March 2015:
#delayeddiagnosis #access #genetics #healthcare