Cover of Qu magazine winter 2026 with a collage.

Thanks to Qu Magazine for publishing one of my poems ✨️

#poetry #newpoems #interstitialcystitis #poetrycommuníty #newissue #poems #chronicillness #spooniewriter

-body aches
-fever
-sore throat
I obviously have a bad UTI. What else would it be?

#ic #uti #interstitialcystitis

Interstitial Cystitis Diet: Proven Foods That Calm Bladder Discover key Interstitial Cystitis diet strategies to manage bladder pain. Learn which foods to avoid and safe, friendly alternatives to try today.

Interstitial Cystitis Diet: Proven Foods That Calm Bladder

Discover key Interstitial Cystitis diet strategies to manage bladder pain. Learn which foods to avoid and safe, friendly alternatives to try today.

www.keepdiettips.com/2025/11/inte...

#InterstitialCystitis #ICDiet #ChronicPainDiet

I have suspected IBS and endometriosis, and just got diagnosed with interstitial cystitis and pelvic floor dysfunction. Anyone else dealing with this? How have you managed? What helps you? Genuinely so tired of being in pain.

#interstitialcystitis #ibs #endometriosis #chronicillness

Join us for a webinar on Interstitial Cystitis and the multidisciplinary management of complex BPS 💡
📅 Wed 22 Oct @ 18:00 CEST
👶 Speaker: Lisa Moris from Leuven University Hospitals
🎓 EACCME-accredited
🔗 bit.ly/ERNeUROGEN22...

#EUfunded #EU4Health #RareDisease #ERNs #FPMRS #InterstitialCystitis

IMAGE DESCRIPTION: Photo of a woman holding her bladder in pain. Wording reads: September is Urology Awareness Month. Interstitial cystitis is a poorly understood bladder condition that causes uncomfortable symptoms and seems to be more common in people with ME/CFS. Download our free booklet.

This Urology Awareness Month, we want to share our booklet on Interstitial Cystitis: meassociation.org.uk/literature/items/interst...

For more info, please also visit The Urology Foundation: https://www.theurologyfoundation.org/

#pwME #MECFS #InterstitialCystitis

#blogpost on #wordpress 🔗 in bio. Read more there.
#blog #AutoimmuneDisease #ChronicIllness #AutoimmuneAwareness #ChronicPain #endometriosis #psoriasis #crohns #UlcerativeColitis #gastroparesis #healthAdvocacy #HealthJourney #MyJourney #interstitialCystitis #MentalHealthMatters #spoonie #heds

Doubling my meds has at least helped my sleep. So nice to only get up a few times a night as opposed to 7 or 8. #interstitialcystitis #icwarrior

Shots fired in the urology war! (Picture created by Chat GPT 5.)

New Substack post: open.substack.com/pub/tinasewa...
#writing #writingcommunity #health #chronicpain #interstitialcystitis

Catch the replay! #interstitialcystitis
youtu.be/fKl5691jWjQ?...

Variability in the Diagnosis and Treatment of Interstitial Cystitis/Bladder Pain Syndrome: Internet Survey Background: Interstitial cystitis/bladder pain syndrome (IC/BPS) is a complex, chronic condition affecting the urinary bladder. Symptoms commonly associated with IC/BPS include painful urination, pain during intercourse, a persistent or recurrent sensation of bladder discomfort or pressure that often worsens as the bladder fills and eases after urination, urgency, frequent urination with little warning, nighttime urination disrupting sleep, and burning or other unusual urinary sensations. These symptoms can profoundly impact emotional and mental health, hinder participation in daily activities, disrupt social interactions, and strain personal relationships. Objective: This study aimed to compare the experiences of different races and ethnicities with interstitial cystitis/bladder pain syndrome (IC/BPS) regarding symptoms, diagnosis, treatment status, and treatment methods. We hypothesized that there would be differences in racial and ethnic minority groups. Methods: We conducted a web survey of IC/BPS symptomatology, diagnosis, and treatment between June and August 2022. Bivariate analyses, including Fisher’s exact and median tests, compared variables across race/ethnicity groups. Multivariable logistic regression analyses were used to assess the influence of race/ethnicity on the IC/BPS diagnosis status and treatment outcomes. Results: Among respondents self-reporting IC/BPS and ever having symptoms (N = 1,631), those in minority/multiple-race groups were less likely to have had a formal diagnosis compared to White persons. Age and female gender were positive predictors for a diagnosis. White respondents were significantly more likely to report having used self-care behavioral and non-pharmacological treatments to manage their IC/BPS compared to minority/multiple-race respondents, as were non-Hispanic compared to Hispanic respondents. Several of the observed disparities in reported treatment rates appear to be driven by differences in diagnosis rates. Conclusions: Minority/multiple-race participants were significantly less likely to have ever been diagnosed with IC/BPS by a healthcare professional, and those who were not diagnosed with IC/BPS were less likely to have used self-care behavioral and non-pharmacological treatments for their symptoms. Streamlining the diagnostic process and public health awareness campaigns outlining treatment options may help individuals manage IC/BPS symptoms.

JMIR Formative Res: Variability in the Diagnosis and Treatment of Interstitial Cystitis/Bladder Pain Syndrome: Internet Survey #InterstitialCystitis #BladderPainSyndrome #ICBPSupport #ChronicPain #UrinaryHealth

Guys I'm fucking dying #interstitialcystitis spasms are so painful I can't even move to get ice or a heating pad 😭 #chronicillness

10 Things I Don't Do as Someone With a Chronic Illness #1. "I don’t eat whatever I like."

"I am not a lie-in kind of person. I just don’t stay asleep, mostly because my irritated bladder won’t let me — the joys of having #InterstitialCystitis! But if I do #sleep in, then I let myself do so (within limits).": buff.ly/3Grmt58

#fibromyalgia #ChronicPain
by @lowhistamine.bsky.social‬

Pure, tested, crushed leaf kratom tea helps my #fibromyalgia #interstitialcystitis #adhesion and #kidneystone pain. How does this tea help you? Tell @kratomstories.bsky.social youtube.com/shorts/WmEfQ...

Hear our stories and ask questions about #plantbasedmedicine and #plantbasedrecovery I use tea and cannabis products to treat my #abdominaladhesian and #interstitialcystitis symptoms. Nothing else worked 🍃☕️♥️

Folks who have #endometriosis, #adenomyosis, and/or #interstitialcystitis does your lower abdomen ever become sore to the touch/pressure? Does it happen at a certain point in your cycle?

An interorgan neuroimmune circuit promotes visceral hypersensitivity Visceral pain disorders such as interstitial cystitis/bladder pain syndrome (IC/BPS) and irritable bowel syndrome (IBS) often manifest concurrently in the bladder and colon. Yet, the mechanistic basis...

"Our current findings reveal how the sensory arc coordinates interorgan reflexes that may bypass traditionally assumed pathways of sensorimotor regulation."

#MastCells #IBS #InterstitialCystitis #MECFS

www.researchsquare.com/article/rs-6...

I reached my all-time record yesterday, not even including nighttime…. it’s nearly been 4 years since my diagnosis of Interstitial Cystitis and I’m having a great time 💀

#chronicillness #spoonie #Interstitialcystitis #ic

a tweety cartoon says it 's thursday ALT: a tweety cartoon says it 's thursday

Come chat with us about #kratom tea. This tea is what helps my #interstitialcystitis #fibromyalgia #abdominaladhesions and #kidneystone pain. AND I can function! We all can! #chronicpain x.com/KratomStory/...

#InterstitialCystitis is a #ChronicPain condition that severely impacts quality of life and traditional painkillers often don't help. It's a functional disease, meaning symptoms impede functioning without a clear physical (observable) cause.

This #UrogynecologyDay we want to recognize the hard work and dedication of the many clinicians to their patients.

____

#HyivyHealth #pelvicfloor #FemTech #endometriosis #pelvicpain #chronicpain #painfulsex #pelvicfloordysfunction #vulvodynia #vaginismus #dyspareunia #interstitialcystitis

##chronicpain If you wonder if #PlantMedicine can help you, listen to Haleys story! #interstitialcystitis
youtu.be/MaPS2uNIJsA?...

x.com

Tomorrow at 3 pm est you can join us on twitter while we hang out and talk about how kratom helped us.
It helps my #interstitialcystitis #abdominaladhesion and #kidneystone pain. Sounds impossible! But it actually works better than any #pharma and I'm lucid 😁 x.com/KratomStory/...

My pee log is full of unfortunate doodles, here’s the latest 😵‍💫
The people at the Urology office often take it to photo copy the pages and they’ve said that they enjoy the doodles, and so I will persist ( ͡° ͜ʖ ͡°)

#doodle #sketch #interstitialcystitis #chronicillness #spoonie

#chronicpain #invisibleillness #chronicillness #mentalhealth #migraine #interstitialcystitis #IBS #irritablebowelsyndrome #csasurvivor #sasurvivor #thebodykeepsthescore #deathbyathousandcuts #acescore #adversechildhoodexperiences #IC

Eliminating trigger foods worked well for my partner. It took time but we nailed it. Some like alcohol and caffeine we hit on early but others like vinegar based products and fruit juices took more time and experiment.
With #InterstitialCystitis no two people are the same.

Sentiments of Individuals with Interstitial Cystitis/Bladder Pain Syndrome Toward Pentosan Polysulfate Sodium: Infodemiology Study Background: Interstitial cystitis/bladder pain syndrome (IC/BPS) is a multifactorial, chronic syndrome involving urinary frequency, urgency, and bladder discomfort. These IC/BPS symptoms can significantly impact patients’ quality of life, affecting their…

JMIR Formative Res: Sentiments of Individuals with Interstitial Cystitis/Bladder Pain Syndrome Toward Pentosan Polysulfate Sodium: Infodemiology Study #InterstitialCystitis #BladderPain #PentosanPolysulfate #ChronicPain #PatientSupport

Anyone have interstitial cystitis? I'm in a flare that won't go away. I need tips and tricks. Dealing with this nonsense at Christmas is stupid. #IC #interstitialcystitis #flare

Will DMSO Ease Your Aching Knees? Some people like to apply DMSO topically for joint pain. Most research has focused on its use for interstitial cystitis.

Will DMSO Ease Your Aching Knees? www.peoplespharmacy.com/articles/wil... via @peoplespharmacy
#interstitialcystitis #knees #DMSO

Dat #chronicpain life, tho.

I have #fibromyalgia, #rheumatoidarthritis, #interstitialcystitis, & #migraines. Who all is in the club?

#disability