Here’s a quote from the piece.
“The people who live with ME/CFS did not greet Long COVID with surprise. They greeted it with recognition. That recognition was both comforting and devastating.”
#LomgCOVID #MECFS #PwME
People can not afford to get #LomgCovid … you lose family, friends, partners, jobs, careers, money,your health, etc.
I wish more people realized that avoiding COVID is the only way to avoid long COVID.
#Maskup #CovidIsAiborne
I have so many ideas for art projects, crafts, webcomics, tarot decks and more… but chronic pain and chronic fatigue makes everything so much more difficult..
How can I be creative when it takes all my energy just to feed myself…😮💨
#chronicillness #chronicpain #CFS #EDS #endometriosis #lomgcovid
Völlig zugeschneite Äste
Da fällt eine Schneeflocke und schon fällt die ganze #Bahn aus...
Meine Rückreise mit #PEM und #LomgCovid gestaltet sich schwierig. Warme Plätze zum Warten gibt es nur gegen Geld. Züge, die fahren, sind so überfüllt, dass selbst Stehplätze knapp werden - und ich muss sitzen.
Reisen mit der Bahn mit #PEM #LomgCovid
Ist meine erste Bahnreise seit Jahren. Mein Mann hat mich an den Bahnsteig gebracht. Ich habe Noise Cancelling Kopfhörer dabei, die helfen aber nicht gegen laute Kinder - ausgerechnet mit hohen Frequenzen, die am schlimmsten sind, versagen sie.
This is a very important article, the rush for ‘normalcy’ did not factor post infection risks & the need for layered mitigations. The COVID vaccines were designed to reduce severity of infections, rather than fully prevent & any infection, however mild or asymptomatic can lead to #Lomgcovid. 🧵
Dank #pacing hab ich nicht mehr oft Crashes aber heute hat's mich erwischt. Schlecht geschlafen, langes Meeting, Arztbesuch - das reicht fürs Zusammenklappen.
Was hilft:
- Beine hoch
- Salz & O-Saft
- Dunkelheit & Stille
- Katzenschnurren (in der Stille)
#LomgCovid #NichtGenesen
Mijn lieve man bert69.bsky.social ❤️ staat vanmiddag voor mij op het Malieveld, omdat het mij helaas niet lukt.
Maar online ben ik er nu toch ook!
#PAISprotest #niethersteld #lomgcovid 💪🏻🍀
Collage of Pedro Pascal matched to ME/LC research infographics with research titles. “Girls be like ‘I needed that’ and it’s just Pedro Pascal”
Sometimes you just need some #PedroPascal in your #LomgCovid #MECFS research.
More #PedroPascalPapers coming soon!
Part of the fight against authoritarians and their "useful idiots" in the US and elsewhere is remembering what they want you to forget.
They're burying COVID data, fighting N95s, cutting vaccine access, and hiding the harm #lomgCOVID is doing to you *for a reason*.
Accountability.
Bring it on.
amazon email reads: 1 item in this delivery Price increase Doctors Best Natto-Serra, Supports Circulatory 1 unit every 6 weeks Last price: $18.58 New price: $21.39 Saving: 5%
price increases - here they come. Amazon price increase notice for one of my supplements - net increase of 13% since apparently I'm still saving 5%
(my only goal with supplements is to possibly help my #lomgCovid #meCFS symptoms)
We're All Vulnerable Now
#Australia
#Covid
#LomgCovid
Het gaat er nu even om dat ik met #LomgCovid
Toch al amper uit bed kan. En dan een verdwenen brievenbus aantref. In geen velden of wegen een andere te bekennen. Dat @postnl.bsky.social haar eigen graf graaft weet ik wel. Ik heb er 17 jaar gewerkt. Tot 28/2/25.
Haren wassen.
Het voelt iedere keer alsof ik in mijn eentje een plafond heb staan witten.
Probeerde het laatst uit te leggen aan vrienden.
Ze keken me aan of ze het in Keulen hoorde donderen.
#LomgCovid
Then the unwanted visitor arrives, which you have to dig deep and accept, and let them in, and then you have no idea how long they’re going to stay so you have to lay some boundaries down for them & hope the stay won’t be long. Also you have to keep zen & not let this visitor get to you. #LomgCovid
Really important point for ALL #LomgCovid and #ME #MECFS services
