Registration links for storytelling workshops this week to prepare for #MillionsMissing!
April 14 at 1 pm PT/ 4 pm ET:
us06web.zoom.us/meeting/regi...
April 16th at 1 pm PT/ 4 pm ET:
us06web.zoom.us/meeting/regi...
I'm extremely belated at boosting this but *waves hands* these workshops are happening this week
It's a creativity + advocacy workshop:
a way to creatively frame your own experiences
to help push for key systemic goals
in preparation for #MillionsMissing
Thanks for fighting. #MillionsMissing #MEKills
Buried Alive with ME. A film by @anilvanderzee.bsky.social about the hell of living with #SevereME. Release set for ME Awareness Day on May 12, 2026. A must-see.
Part of M.E. Kills for A Quiet Storm, an online gallery showcasing the art of #pwME.
#MillionsMissing #MEkills #CureME #MEawareness
Inspired by German protests using body bags.
ME kills — directly, and through neglect.
Full film drops May 12 (ME Awareness Day).
NL folks: see it early at Ongebroken in Amsterdam, Apr 29–May 5.
🔗 aquietstorm.me
🔗 ongebroken.nl
See you there?
#pwme #myalgicE #millionsmissing #severeME
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TRAILER: Buried Alive with M.E.
I’ve spent the last months making a film for M.E. Kills, an online exhibition by A Quiet Storm.
People with ME die every week. Many more are left to rot in dark rooms without care, disbelieved and dismissed. It’s a living death.
#pwme #millionsmissing #severeME
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Finde so übel, wie hinter Ausdrücken wie "dauerhafte strukturelle Veränderung der Arbeitsmärkte und der wirtschaftlichen Produktivität" ganz schlimme Schicksale einfach verschwinden. Menschen die nur noch im Bett liegen können, deren Leben vorbei ist... #millionsmissing
So help us make it LOUD and CLEAR: People with ME and Long COVID are medically frail.
Join us this May for #MillionsMissing.
#pwME #MyalgicEncephalomyelitis #LongCovid
Are you frail & fabulous? Frail & fighting…formidable…funny? We want to hear what your “and” is…so tell us, what is your “f” word?
Join us this #MillionsMissing to tell the world we are #FrailAndFurious & so much more!
Fight for our healthcare
Will you join us?
Millionsmissing.org
Person using a megaphone to amplify their voice, promoting storytelling for the #MillionsMissing campaign in 2026. Text: "Storytelling is a key part of #MillionsMissing this year! There are HUGE policy implications this year for telling your story. Share your story on social media and/or to our story bank. See our #MillionsMissing Take Action Toolkit for all the info." Detailed photo description: White woman with brown hair pulled back wearing sunglasses and a coat holds megaphone and is speaking into it. Above her is a sign that says "amplify your voice."
Storytelling is a key part of #MillionsMissing! Find all you need in our toolkit: https://ow.ly/IUOk50YGIh9
It’s essential that we make our policymakers understand that ME is a serious, complex disease that deserves care and support, appropriate treatments and research.
#FrailAndFurious #MECFS
Wir finden: Das Warten muss ein Ende haben. Setze mit uns ein wichtiges Zeichen für ME/CFS und unterstütze uns bei unserer Aktion!
📍09.05.2026 14:00-16:00
📍Platz der Menschenrechte, Wien
#unversorgtseit1969 #ME/CFS #MillionsMissing
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Join MEAction's Shalida Dobbins and our amazing narrative working group volunteers for one of the two storytelling workshops to prepare for #MillionsMissing!
April 14 at 1 pm PT/ 4 pm ET: us06web.zoom.us/meeting/regi...
April 16th at 1 pm PT/ 4 pm ET: us06web.zoom.us/meeting/regi...
Teal text reading “Bundle 3” above photos of the prizes listed in the caption Bundle 3: Drawn poorly zine Collage commission & 3 prints (either monochrome or collage) from Burn your bones Libro.fm token from Fran Leftbians necklace of choice
White text on a pink background reading “About Nevra: Nevra’s a community organiser with Severe M.E. in Karachi, Pakistan, & a major advocate for people with M.E., particularly in the Global South. Her health is becoming more & more critical, & she’s been experiencing paralysis, anaphylaxis, & multiple skin infections among many other symptoms. She desperately needs your support to prevent her having to return to a DV situation. All funds raised will go towards safe housing, carers, & treatment for our dear friend.”
All funds raised will go towards safe housing, treatments, & carers for our dear friend 💜
#SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #MutualAid
Right back at you. From another stranded at home with chronic illness. #MillionsMissing
#MEAction - "Frail and Furious" Millions Missing 2026 #MEAction has posted information about their Millions Missing campaign for May 2026. Their toolkit (Google doc) includes information about online actions as well as in-person Millions Missing events in the USA (Washington, DC) and UK (location TBD). Two storytelling workshops are scheduled in April to help people with ME/CFS and Long Covid share their personal stories. Announcement | Video | Thread
MEAction - "Frail and Furious" Millions Missing 2026
docs.google.com/document/d/1...
www.meaction.net/millionsmiss...
www.youtube.com/watch?v=T3am...
Screenshot from latest Science for ME weekly update
#millionsmissing #MEcfs #PwME #ME #MyalgicE @meactnet.bsky.social @meactionuk.bsky.social
@meactnet.bsky.social Free Workshops: Register for either #MillionsMissing storytelling workshops led by Shalida Dobbins 4pm ET on: 4/14 ow.ly/49nK50YCSEf or 4/16 ow.ly/6mXj50YCSEi, to get guidance, prompts, & community support to help craft your story about living with ME/CFS.
Red t-shirts featuring 'Frail & Furious #MillionsMissing' on the front and '#MEAction logo on the back. Text: Tees now available! Available for immediate shipping! With or without logo on the back. Multiple colors, styles, and sizes! Order now.
#MillionsMissing 2026 #FrailAndFurious tees are now available! https://www.bonfire.com/store/meaction-1/
We have lots of styles and colors to choose from!
You can choose tees with a logo on the back on ones without.
A portion of your purchase helps support our work!
#pwME #MECFS #LongCovid
A blue and white ribbon featured with a crochet hook and blue and white yarn.
ME/CFS San Diego Millions Missing
May Crochet Project!
Help raise awareness for ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by creating visible shows of ME/CFS solidarity!
Details here: www.mecfssandiego.com/May2026Crochet
#Crochet #MECFS #MillionsMissing
Tulpenstrauß mit Osterhase und Osterei
Frohe Ostern 🐣
Für viele mit #MECFS #LongCovid #PostVac #PAIS ist ein gemeinsames Osterfest keine Selbstverständlichkeit.
Umso mehr wünsche ich allen #pwME ein symptomarmes, erträgliches Fest mit etwas Teilhabe 💛
#millionsmissing #learnaboutme #chronicalillness
I'd also like to talk abt the fact roughly 300 are STILL DYING OF COVID EACH WEEK IN THE USA, which is likely an undercount
& scores more who suffer lasting impairment, disability, & loss of work, home, quality of life due to long covid
Millions missing
#MillionsMissing
#LongCovid
#CovidIsNotOver
2026 Millions Missing storytelling workshops scheduled for April 14 and 16 at 4 pm ET, with dates circled on a calendar. Text: Save the dates! Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!
Register now for either of our #MillionsMissing Storytelling workshops coming up on April 14th and 16th at 4 pm ET. For anyone wanting some guidance and help crafting your story!
April 14 https://ow.ly/AX0650YCSEj
April 16 https://ow.ly/uy7250YCSEh
#FrailAndFurious
Donations for Nevra's hospital bills, rent, and mold remediation have stalled. Please consider donating, liking, commenting, and sharing
paypal.me/SaveLizNevra
gofundme.com/f/save-nevra
#SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #MutualAid
The tens of millions of us w/ #MyalgicEncephalomyelitis & now the tens of millions more w/ #LongCovid can't launch an ACT UP-style protest--& I wish we could--b/c most of us are far too ill to get there.
So here's what you need to know about this year's #MillionsMissing theme, Frail and Furious:
New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person. MEAction logo is a circle with the text #MEAction in the circle.
This #MillionsMissing, we are #FrailAndFurious!
Injustices are happening worldwide because ME is not taken with the seriousness we deserve.
Let's come together to show the world how devastating this disease is.
Join the fight: millionsmissing.org
#pwME #LongCovid #MECFS
#MillionsMissing 2026 time! www.meaction.net/millionsmiss...
This #MillionsMissing, we are FRAIL and FURIOUS! Injustices are happening to people with ME & Long COVID around the world. Myalgic encephalomyelitis (ME) is not taken with the seriousness we deserve.
More info: www.meaction.net/millionsmiss...
Video introduction: youtube.com/shorts/T3amp...
www.bbc.co.uk/news/article...
The more articles like this appear, the more we will be accepted as individuals who have a debilitating illness.
We need help, and we need society to help us.
The more publicity, the better.
#ME #CFS #millionsmissing
Palm cross leaning against a picture in a frame. The picture is typography and it says, "Punk priest".
On God alone my soul in stillness waits.
This Palm Sunday, remembering the #MillionsMissing - those who have ME/CFS
Thank you for remembering us. #MillionsMissing #disability
If you haven’t already, please add your name to this letter to state medical boards urging them to address the education gap on MECFS and to add knowledge of this debilitating condition to licensing requirements.
#MECFS #MillionsMissing
