BanShi FriDay
BanShi's playing There Is No Game!! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
Lamellar Ichthyosis is a rare genetic skin disorder present from birth, covering the body in large, dark, plate-like scales. It impairs sweating and can restrict movement. There is no cure.
Learn more https://dub.sh/lamellar
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Link in bio to learn more about angioedema.
#Angioedema #RareDisease #InvisibleIllness #ChronicIllness #RareDiseaseAwareness #PatientVoices #DisabilityAwareness #HealthEducation #ChronicIllnessAwareness #SupportRare
Granulomatosis with Polyangiitis (GPA) is a rare autoimmune disease that inflames blood vessels in the airways, lungs & kidneys. Remission is possible but relapse is common.
Learn more: https://vasculitisfoundation.org/
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
A robot & a mouse walk into Twitch
We're playing co-op game Wires and Whiskers! LIVE NOW on Twitch w/ @queencheetah.bsky.social
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
Neonatal Hemochromatosis (NH) is a rare, life-threatening disorder where maternal antibodies attack the fetal liver before birth, causing iron overload & liver failure in newborns.
Learn more: https://dub.sh/NH01
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
sus
Playing Copycat! Apparently we're in for emotions... LIVE NOW on Twitch w/ @queencheetah.bsky.social
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
What happens when we recognize IgG4‑RD early?
Less organ involvement.
Awareness leads to answers.
Early diagnosis changes outcomes.
Find trusted resources and education at zurl.co/K8uwZ
#IgG4RD #RareDiseaseAwareness #EarlyDiagnosis #PatientEducation
Confluent & Reticulated Papillomatosis (CARP) is a rare skin disorder causing a striking net-like pattern of brown, scaly plaques on the trunk & neck of teens & young adults.
Learn more: https://dub.sh/1CARP
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Primary Sclerosing Cholangitis (PSC) is a rare progressive liver disease that scars the bile ducts, causing liver failure over time. With no approved treatments, liver transplant is the only cure.
Learn more: pscpartners.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Illustration of a child with a rare genetic condition surrounded by caring family members and soft, supportive elements. The design highlights awareness, compassion, and inclusion for rare diseases.
Awareness brings visibility to the rarest voices. 💙🧬
Every life deserves understanding, care, and support 🤝
#BohringOpitzSyndrome #RareDiseaseAwareness #WorldBOSDay #InclusionMatters #SupportRareDiseases #AccessibilityForAll #EveryLifeMatters
Stiff Person Syndrome: A rare autoimmune disorder causing progressive muscle rigidity & agonizing spasms triggered by noise, touch, or stress. Affects ~1 in 1 million, no cure exists.
Learn more: stiffperson.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Join us in celebrating IgG4-RD Awareness Day today! IgG4‑Related Disease is rare, complex, and often misunderstood. 💜
AiArthritis has created dedicated tools and resources at: zurl.co/ErwcJ
#IgG4RD #IgG4RDAwarenessDay #RareDiseaseAwareness #ChronicIllness #HealthEducation
Parry-Romberg Syndrome: A rare disorder where skin, fat & bone on one side of the face slowly waste away. Onset in childhood, cause unknown, and the tissue loss is permanent.
Learn more: parryromberg.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
friday nite, BanShi nite
It's the kid's night and games will be played! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
#HAE #HereditaryAngioedema #HAEawareness #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #InvisibleIllness #PatientVoice #HealthAdvocacy #BioNews #AngioedemaNews
Fatal Familial Insomnia (FFI): A rare prion disease that destroys the brain's ability to sleep. Progressive, untreatable insomnia leads to hallucinations, dementia & death within months.
Learn more: https://dub.sh/aXYVQsE
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Proteus Syndrome is an ultra-rare mosaic genetic disorder causing progressive, asymmetric overgrowth of bones, skin & organs in random patches.
Learn more: https://www.proteus-syndrome.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
the squirreling
Tonight we're finishing up Squirrled Away! LIVE NOW on Twitch w/ @queencheetah.bsky.social
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
'Letters to ALS: Our Journeys to Hope' — black book promoting personal ALS stories that foster understanding and connection.
Inside this new book: https://bit.ly/41sB1uB
A newly released collection, Letters to ALS: Our Journeys to Hope, shares personal letters from people living with ALS, along with families, advocates, and care teams.
#ALS #RareDiseaseAwareness #HealthStories #ALSNewsToday #Bionews
💙 90 days until AMC Awareness Day (June 30)!
Light it up blue, request a proclamation, and get ready to #WearBlueForAMC
🔗 amcsupport.org/amc-awarenes...
#AMCAwarenessDay #Arthrogryposis #AMCStrong #RareDiseaseAwareness
Lesch-Nyhan Syndrome (LNS): A rare X-linked disorder causing uric acid buildup, neurological damage, and a heartbreaking compulsion to self-injure.
Learn more: https://dub.sh/lesch
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
#HAE #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #Angioedema #Bradykinin #AllergyAndImmunology #PatientEducation #HealthAwareness #GeneticDisease #HAEAwareness #BioNews #AngioedemaNews
cleanup & rescue
@queencheetah.bsky.social is cleaning up oil spills in Spilled! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
#HAE #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #SelfAdvocacy #PatientAdvocate #PatientAdvocacy #InvisibleIllness #RareDiseaseCommunity #HealthAdvocacy #SpeakUpForYourHealth #BioNews #AngioedemaNews
Buruli Ulcer is a neglected tropical disease caused by Mycobacterium ulcerans, producing a toxin that destroys skin and tissue painlessly. It can cause permanent disability if untreated.
Learn more: https://dub.sh/Buruli
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Pemphigus Vulgaris is a rare autoimmune disease causing painful blisters on skin and mucous membranes. It is potentially fatal without treatment.
Learn More: pemphigus.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Primary Ciliary Dyskinesia (PCD) is a rare inherited disorder causing defective cilia, leading to chronic respiratory infections, organ abnormalities, and infertility.
Learn more: pcdfoundation.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
It’s been a month since #RareDiseaseDay, and while the hashtags might have slowed down, our community never does! Huge thank you to Jenny, Sophie and their entire community for raising awareness of PSC and vital funds for the PSC community.
#PSCSupport #LetsBeatPSC #RareDiseaseAwareness
scaling the mountain
BanShi is playing Celeste! LIVE NOW on Twitch
twitch.tv/felineroyalt...
#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness
#FelineRoyalty #cozy #disabled #LGBTQIAPlus
