#InvisibleDisabilitiesWeek – Day 2 #Fibromyalgia is an invisible illness. You can’t see the pain, fatigue, or brain fog, but it’s real People often have to explain or hide what others can’t see. What they need most is understanding, compassion & belief #YouDontLookSick #FAC #EndtheStigma

#InvisibleDisabilitiesWeek – Day 2

#Fibromyalgia is an invisible illness. You can’t see the pain, fatigue, or brain fog, but it’s real

People often have to explain or hide what others can’t see. What they need most is understanding, compassion & belief

#YouDontLookSick #FAC #EndtheStigma

Did you know❓ Not all disabilities can be seen. Did you know❓ Millions of people live with disabilities that you can't see like #fibromyalgia❓ Our fibromyalgia may be invisible, but we are not! #InvisibleDisabilitiesWeek #YouDontLookSick #EndTheStigma #SeeTheInvisible

Did you know❓

Not all disabilities can be seen.

Did you know❓

Millions of people live with disabilities that you can't see like #fibromyalgia❓

Our fibromyalgia may be invisible, but we are not!

#InvisibleDisabilitiesWeek #YouDontLookSick #EndTheStigma #SeeTheInvisible

So I am on the sofa, ankles, knees and hips burning, but the view (and the challenge) was worth it. I went into it with planned recovery time, so it is okay. But sometimes I feel that the #youdontlooksick thing is insurmountable. More than a climb of 225 steps, anyway. #cfs #sarcoidosis #spoonie

First dose is done! ✅

2nd dose Rituximab in two weeks & then I’m set for 6 months.

#mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens

I would really love to be able to work consistently, or at least predict when I'm going to feel like crap. Today should have been very busy but instead I'm stuck in a dark, quiet room with a migraine while me teeth feel like they're trying to escape my head. #invisibledisability #youdontlooksick

#ProudBlue

This is HUGE News for the ME/CFA community.

They have found some links to a person’s genes & this illness. This could lead to better testing & possible treatments soon.

#mecfswarrior #spoonie #youdontlooksick #myalgicencephalomyelitis #mecfs #chronicillness #invisibleIllness

#mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens

Todays spotlight author is @bobbieisabelauthor.bsky.social

There's still time to Pre-Order your copy
eBook: books2read.com/SeeMeAsIAm 
Paperback: forms.gle/rPH7GgH4sMJV...

#seemeasiam #books #invisibleillness #youdontlooksick #weeseeyou #fnwantho #charityantho #disabilities #MentalHealthAwareness

Today's spotlight author is Clarence Carter. His story is titled "Unraveled" and features themes of anxiety and depression.

#fridaynightwrites #seemeasiam #fnwanthology #books #invisibleillness #youdontlooksick #weeseeyou #charityantho #disabilities #invisibledisabilities #mentalhealthawareness

Today's spotlight author is @saburd.bsky.social

eBook preorder link: books2read.com/SeeMeAsIAm
Paperback link: forms.gle/1WrZ8JDzmoWQ...

#seemeasiam #fnw #fnwanthology #invisibleillness #youdontlooksick #weeseeyou #charityantho #disabilities #invisibledisabilities #mentalhealthawareness

Today's spotlight author is @carablaine.bsky.social
Pre-orders Available now!
eBook: books2read.com/SeeMeAsIAm
Paperback: forms.gle/xDEtBW6qfEEF...

#seemeasiam #books #invisibleillness #youdontlooksick #weeseeyou #charityantho #books #disabilities #invisibledisabilities #mentalhealthawareness

Shazara Brooks is our spotlight author today! check her out at linktr.ee/shazarabrook...
Pre-Orders for See Me As I Am are available!
#fridaynightwrites #seemeasiam #books #invisibleillness #youdontlooksick #weeseeyou #charityantho #spoons #disabilities #invisibledisabilities #mentalhealthawareness

Today's spotlight author is @samanthamoran.bsky.social

eBook: books2read.com/SeeMeAsIAm 
paperback: forms.gle/a1KVHQyMvNvP...

#fridaynightwrites #SeeMeAsIAm #books #invisibleillness #youdontlooksick #weeseeyou #CharityAntho #disabilities #invisibledisabilities #mentalhealthawareness

@saburd.bsky.social is another contributing author to See Me As I Am, our charity anthology.

eBook: books2read.com/SeeMeAsIAm
Paperback: forms.gle/hgAsHSBj8zV8...

#seemeasiam #invisibleillness #youdontlooksick #weeseeyou #charityantho #disabilities #invisibledisabilities #mentalhealthawareness

See Me As I Am, a charity anthology that seeks to bring light to illnesses that hide in the shadows, unseen. #fridaynightwrites #seemeasiam #invisibleillness #youdontlooksick #weeseeyou #charityantho #disabilities #invisibledisabilities #mentalhealthawareness

Do you see me as I am?
#fridaynightwrites #seemeasiam #fnw #fnwanthology #books #invisibleillness #youdontlooksick #weeseeyou #fnwantho #charityantho #books #FNWDiscord #FNWAuthors #spoonies #spoons #outofspoons #disabilities #invisibledisabilities #mentalhealthawareness

#ProudBlue #MomSky

I so appreciate those protesting for those of us too sick to attend.

Medicaid cuts will be devastating to the ME/CFS & Long Covid communities.

Tell Congress NO to Medicaid cuts

#mecfswarrior #youdontlooksick #myalgicencephalomyelitis #mecfs #chronicillness #invisibleillness

#ProudBlue #MomSky

I am one of the millions missing.

Help me & others fight for our lives! ME/CFS steals the lives of millions across the world. Let’s raise awareness.

#mecfswarrior #spoonie #youdontlooksick #myalgicencephalomyelitis #mecfs #chronicillness #invisibleillness

Tonight's spotlight author is Lee VanBeek!
Ebook preorder link: books2read.com/SeeMeAsIAm
Charity Link: www.nami.org
#fridaynightwrites #seemeasiam #fnwanthology #books #invisibleillness #youdontlooksick #weeseeyou #charityantho#spoonies#disabilities #invisibledisabilities #mentalhealthawareness

The #youdontlooksick issue leads to extensive time (often years of gaslighting) before diagnosis, and when that eventually comes, treatments are often barely effective, leading to isolation, forcing sufferers to mask symptoms which feeds the whole cycle. The system fails people with chronic illness.

#ProudBlue

Infusion day. Time to shut down my immune system again.

Will treatments like this soon be banned here under RFK Jr? Definitely concerning to me.

#mecfswarrior #interstitiallundisease #spoonie #youdontlooksick #Dysautonomia #mecfs #chronicillness #invisibleillness #sjogrens

Depression is a bitch. Job searching isn't helping. I just keep being told "we have a lot of applications" they won't even let me say my name. But at least it's on my resume 🤷‍♀️
#mentalhealth #depression #youdontlooksick

#mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens

a man laying on a couch covered in christmas lights and tinsel ALT: a man laying on a couch covered in christmas lights and tinsel

Another Tradition has come to visit:
Holiday Cheer Aftermath
Flaring the Day Away

#chronicillness #selfcare #youdontlooksick #fibroflare #spoonie #autoimmune