Also hurts feels like it’s in a vice being crushed . It’s not a “headache “ this is Chiari after Chiari surgery over 20 yrs ago. I’ve never recovered & looks like i won’t ever. #chiari I desperately want and need to go outside . Hate being trapped in my body and my house. If you’re healthy and

Infographic about Cerebral Outflow Disorder, related to Ehlers-Danlos Syndromes (EDS). At the top left is a circular EDS Awareness logo. The text reads: “Cerebral Outflow Disorder: Signs can include: Pulsatile Tinnitus Pressure Headaches IIH Brain Fog Vision Problems” There is an image of a person’s head in profile with a glowing neural network over the brain, and graphic icons of upward and downward arrows suggesting blood flow. The bottom text on a teal background reads: “What it is and Why EDS Patients Should Know About it chronicpainpartners.com”

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it

www.chronicpainpartners.com/cerebral-ven...

#EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IIH #CSFLeak #Chiari #AAI #CCI #Headache #Spoonies #Zebras #MedEd #MedSky #Doctors #neurology

WALTER CHIARI Blog dedicato alla critica letteraria,operistica, musicale, teatrale,da parte di un musicista-loggionista appassionato ovvero io: Stefano Villa

il-musicista-loggionista.blogspot.com/2022/03/walt...

#Chiari #WalterChiari #Movie #Tv #Italy #Totò #Soldati #Monicelli #Welles #Fabrizi #Loy

I've rescheduled all of the care to try to make this trip happen in April

Endocrinology busy until August due to clinician shortages which sucks I'm suffering a lot

Please keep sharing so I can meet my GFM neurosurgery goal and survive

#SevereME #EDS #Chiari #MESpine #CSFLeaks #Neurosurgery

Punk me #punk #fnd #chiari #chronicillness #vtuber

❤️ This is in 2 weeks! ❤️

Please help — patients who don’t live in New York say they can’t financial aid anymore so I may not be able to get it again

It shouldn’t be so stressful and hard to get lifesaving neurosurgery care

#EDS #Chiari #pwME #MECFS #MutualAid #IAmSoTired

Infographic about Cerebral Outflow Disorder, related to Ehlers-Danlos Syndromes (EDS). At the top left is a circular EDS Awareness logo. The text reads: “Cerebral Outflow Disorder: Signs can include: Pulsatile Tinnitus Pressure Headaches IIH Brain Fog Vision Problems” There is an image of a person’s head in profile with a glowing neural network over the brain, and graphic icons of upward and downward arrows suggesting blood flow. The bottom text on a teal background reads: “What it is and Why EDS Patients Should Know About it chronicpainpartners.com”

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it

www.chronicpainpartners.com/cerebral-ven...

#EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IIH #CSFLeak #Chiari #AAI #CCI #Headache #Spoonies #Zebras #MedEd #MedSky #Doctors #neurology

Season 2 is here! Ep1 features my friend, Author & Artist Rue Sparks! We talk about their journey in getting diagnosed with Chiari Malformation, creativity through times of grief & trauma, & more. Check it out on Spotify, Apple Podcasts, YouTube & more! #podcast #chiari #chronicillness #healthstory

Season 2 is here! Ep. 1 features my friend, Author and Artist Rue Sparks! We talk about their journey in getting diagnosed with Chiari Malformation, their creativity through times of grief and trauma, and more. Check it out on Spotify, Apple Podcasts, YouTube & more! #podcast #chiari #chronicillness

Anyone have any experiences with pituitary tumors? I have had excess prolactin for 2 years now, it was never seen on my brain MRI for chiari malformation. I can’t believe how much crap is going on for me #tumor #chiari #pituitarytumor

WALTER CHIARI Blog dedicato alla critica letteraria,operistica, musicale, teatrale,da parte di un musicista-loggionista appassionato ovvero io: Stefano Villa

il-musicista-loggionista.blogspot.com/2025/12/walt...

#Chiari #WalterChiari #Movie #Tv #Italy #Totò #Soldati #Monicelli #Welles #Loy

KEY POINTS (1/3)
~ Subset of individuals with ME have anatomic abnormalities such as Chiari malformation, cranio-cervical instability (CCI), Atlanto axial instability (AAI), spinal stenosis & tethered cord syndromes

#myalgicencephalomyelitis
#Chiari #CCI #Tetheredcord #spinalstenosis

Don't Drag Me Down

open.spotify.com/track/7tZ1sF...

#recruiter #spotify #thatselisazini #holymountain la sto scalandoooooo seeeeeeeh daje Zaraaaaaaa 👏🏻👏🏻👏🏻
Bravo Luca: sei il mio orgoglio!
Rimani vivo!
#barcellona #chiari #neurodivergenze #yeet

Consider the experience of my daughter, who has #hEDS, #MECFS, #Craniocervical instability, #Chiari, and #POTS. Her illness has largely followed a relapse-recovery paradigm, with extremely slow recoveries following two major relapses. 7/24

Infographic about Cerebral Outflow Disorder, related to Ehlers-Danlos Syndromes (EDS). At the top left is a circular EDS Awareness logo. The text reads: “Cerebral Outflow Disorder: Signs can include: Pulsatile Tinnitus Pressure Headaches IIH Brain Fog Vision Problems” There is an image of a person’s head in profile with a glowing neural network over the brain, and graphic icons of upward and downward arrows suggesting blood flow. The bottom text on a teal background reads: “What it is and Why EDS Patients Should Know About it chronicpainpartners.com”

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it

www.chronicpainpartners.com/cerebral-ven...

#EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IIH #CSFLeak #Chiari #AAI #CCI #Headache #Spoonies #Zebras #MedEd #MedSky #Doctors #neurology

Minori adescati con falsi profili social, arresto per violenza sessuale Importante resta la vigilanza da parte delle famiglie sull’utilizzo dei social network

STRATAGEMMA
Minori adescati con falsi profili social, arresto per violenza sessuale
#CHIARI - #Minori adescati tramite falsi profili … Se il #Social non permette l'accesso diretto al #giornale , utilizzare il #link in #BIO . cinquewnews.blogspot.com/2025/10/mino... #casoria #afragola #macchiagodena

I absolutely do deal with this especially from the five surgeries I had. Always keep in mind you don't know what battles people are fighting. Be kind and help when you can to others.

#Chiari
#ChiariMalformation
#ChiariMalformationAwareness

a blue stuffed brain with the words brain not braining written below it Alt: a blue stuffed brain with the words brain not braining written below it

Something I struggle with talking about is how much my brain has changed from the #Chiari

Permanently changed.

A lot of times in relation to these things patients talk about the pain, sensory problems, systemic physical symptoms that have a quantifiable bodily manifestation. Maybe even brain fog-

a person is holding their head with a red spot on it . ALT: a person is holding their head with a red spot on it .

Pain level: 8 with my normal meds #headaches #nervepain #chiari #neuralgia #hEDS

a pink teddy bear on a treadmill with the words time is n't real written below it Alt: a pink teddy bear on a treadmill with the words time is n't real written below it

Living with #Chiari was like living outside time.

It’s not brain fog, disassociation, etc.

I didn’t exist.

At its worst it’s unlike any other experience. I can’t even explain it. I would only realized how bad it was when it lessened.

One of these days I need to write some story about it… -

I woke up with a headache this morning. #Chiari #ChronicIllness

As it turns out, it was all in my head.

I have an #ArachnoidCyst in my brain. They are “typically benign” & found incidentally in brain scans.

Mine is hefty enough to press downward on my cerebellum, pushing part of my brain into my brain stem, #Chiari Malformation.

You, too? #RareConditions

When Neanderthal Skulls Haunt the Modern Brain A subtle cranial trait from our archaic cousins may be pressing into the cerebellum of some modern humans, and evolutionary medicine is taking notice

A misshapen skull that presses the brainstem may trace back to Neanderthal ancestry. New 3D skull models show Chiari I malformation shares traits with our Ice Age cousins. #Anthropology #HumanEvolution #Neuroscience #Chiari

Brescia, è del bagnino scomparso il cadavere trovato nei pressi di Chiari (Adnkronos) - E' di Matteo Formenti, il bagnino del parco acquatico di Castrezzato, dove lo scorso venerdì è morto annegato un bimbo di 4 anni, il corpo trovato nella tarda mattinata di oggi in una zona boschiva nel Bresciano. A dar...

Brescia, è del bagnino scomparso il cadavere trovato nei pressi di Chiari ... LEGGI TUTTO #Brescia #bagnino #Chiari #castrezzato #omicidio

New CCI Research: Understanding the Frequency of Neurosurgical Interventions in Connective Tissue Disorders 2025

buff.ly/dd78kd5

#EDS #hEDS #HSD #Hypermobility #CCI #Chiari #ChiariMalformation #Neurology #Zebras #CCS #MedEd #MedSky #Medicine #CTD #Doctors

The Chronic Illness Paradox By Antonia @ Unremarkable Me | Published June 2025 I’ve had more experience justifying my mascara than some people have explaining their taxes. Because if you’re chronically ill and dare to look prese...

You can laugh, cry, cope, collapse—and still get told you “look well.” That’s the chronic illness paradox in action.
#ChronicIllness #EDS #hEDS #EDS&Chiari #SpoonieTruth #InvisibleDisability #Chiari #UnremarkableMe

www.unremarkableme.com/post/the-chr...

Having a shunt stinks! Yup, being a human barometer is the worst. To all fellow barometers, you're not alone, and I see you! #decompression #shunt #chiari #syrinx #icp

When Autopilot Fails: Dysautonomia and EDS By Antonia @ Unremarkable MePublished June 2025When Your Body Forgets the Basics: EDS and DysautonomiaLiving with Ehlers-Danlos Syndrome (EDS) is a bit like managing a team of wildly underqualified in...

When your body forgets how to regulate itself, it’s not quirky—it’s chaos.
EDS & dysautonomia are real, exhausting, and deserve more than silence.Oh and there’s more than one.
#EDS #POTS #Dysautonomia #ChronicIllness #UnremarkableMe #EDS&Chiari
#hEDS #Chiari

www.unremarkableme.com/post/when-au...

#UnremarkableMe #EDS&Chiari #EDSUK #NHS #EDS #hEDS
#ChronicIllness #Chiari