5/

“It’s almost impossible, but remember to take care of yourself, too. You won’t be any use to the person(s) you’re taking care of if you crash or worsen.”

#longtermillness #caring #mecfs #cfs #pwme

I no longer #work due to #illness, it's driving me nuts. I thought I'd be pleased to stop working but I no longer know what to do!!
#longtermillness

I wish I had made my make-a-wish something like “can I put this off until I need it when I’m an adult like a mafia favor?” Instead of swimming with the dolphins.

It would come in handy right now.

#MakeAWish #Survivor #LongTermIllness #BurkittsLymphoma #ChildhoodCancer

#chronicpain #youngpeople #mentalhealth #depression #therapy #longtermillness

As someone with multiple invisible illnesses that combined are utterly disabling, I love this!

#DISABILITY #DISABLED #MMJ #LONGTERMILLNESS #CANNABIS #DISABILITIES #INVISIBLEILLNESS #WEEDISMEDICINE #LEGALIZEIT #VETERAN #INJURY #INJURED #ADA #CHRONICPAIN

Supporting people living with long term health conditions to navigate life from diagnosis and beyond. Supportive pathways enabling people to remain in long term employment or establish their own businesses. #chronicillness #longtermillness #diagnosis #support #economicallyactive

Have my Covid and flu jab booked in my local Chemist.

Brilliant service. I like to think I’m taking pressure off my lovely practice nurses, but really, I just don’t want to have to see them more than I need to! 😂
#SpeirGorm
#ChronicDiseaseManagement
#LongTermIllness

Why long-term illness is fueling wage inflation in the U.K. economy? Investing.com -- The U.K. economy faces a unique challenge as record numbers of workers are sidelined by long-term illness, creating persistent wage inflation despite apparent labor market slack, according to a new BCA Research report. A record 3 million Britons—one in twenty working-age adults—now claim long-term illness prevents them from working. For the first time in nearly two decades, those inactive due to illness outnumber those inactive because they’re students. The problem extends beyond those completely outside the workforce. The number of people working part-time due to illness or disability has doubled in the past decade to almost half a million, while full-time workers on long-term sick leave has also surged. Government data shows public sector workers on long-term sick leave increased by a fifth since the pandemic, with junior staff accounting for most absences. Mental illness is cited as the primary cause. In London alone, 460,000 employed residents—one in ten workers—now have work-limiting health conditions, with mental health issues up 60% and young adults most affected. This phenomenon explains why U.K. wage inflation remains high despite falling job vacancies and rising unemployment. BCA Research estimates the "total worker shortage rate" remains 1% above pre-pandemic levels when accounting for sick leave and work-limiting conditions. Without a reduction in long-term sickness rates, job vacancies would need to fall another 1% to cool wage inflation to levels consistent with the Bank of England’s 2% target—likely requiring unemployment to rise above 5.5%, essentially triggering a recession. 3rd party Ad. Not an offer or recommendation by Investing.com. See disclosure here or remove ads. The situation creates difficult choices for policymakers. The BoE must either risk recession to meet its inflation mandate or abandon its price stability goals. Meanwhile, the U.K. government faces higher benefit costs despite attempts to reduce them through recent welfare legislation. Despite these challenges, BCA Research recommends structurally overweighting pound/dollar and U.K. gilts versus US Treasury bonds, arguing the BoE will remain more politically independent than the Federal Reserve, and the U.K. government will be more fiscally cautious than the Trump administration. The best opportunities often hide in plain sight—buried among thousands of stocks you'd never have time to research individually. That's why smart investors use our Stock Screener with 50+ predefined screens and 160+ customizable filters to surface hidden gems instantly. For example, the Piotroski's Picks method averages 23% annual returns by focusing on financial strength, and you can get it as a standalone screen. Momentum Masters catches stocks gaining serious traction, while Blue-Chip Bargains finds undervalued giants. With screens for dividends, growth, value, and more, you'll discover opportunities others miss. Our current favorite screen is Under $10/share, which is great for discovering stocks trading under $10 with recent price momentum showing some very impressive returns!

Click Subscribe. #WageInflation #UKEconomy #LongTermIllness #EconomicTrends #HealthImpact

10/
“Sloan’s study similarly found higher rates of healthcare avoidance and of underreporting symptoms “from distrust and fear that symptoms would be disbelieved and misattributed again,” the researchers wrote.”

#neisvoid #longtermdisease #longtermillness

The study, published in the April issue of Psychological Bulletin, involved a review of 151 qualitative reports of 11,307 patients with 13 conditions known to “generate clinical uncertainty,” Allyson Bontempo, PhD, of the Rutgers Robert Wood Johnson Medical School, New Brunswick, New Jersey, and her colleagues wrote. A recent “upsurge in the prevalence of contested, ambiguous, and difficult-to-diagnose illnesses” has made healthcare interactions with no known diagnosis the fastest growing type of medical visit, they noted. Rheumatologic and autoimmune conditions like lupus, Ehlers-Danlos syndrome, fibromyalgia, and irritable bowel syndrome are among the conditions Bontempo’s group studied, but so were conditions that have only more recently been medically accepted as valid, from long COVID to myalgic encephalomyelitis/chronic fatigue syndrome to postural orthostatic tachycardia syndrome.

5/
#chronicillness #chronicallyill #longtermillness

Screenshot of “Preparing Information for your Doctor Appointment - Template”

6/

“Preparing Information for your Doctor Appointment - Template”

emerge.org.au/wp-content/u...

#chronicallyill #longtermillness #mecfs #spoonies

Mysery ebook by Philip Friston-Reilly - Rakuten Kobo Read "Mysery" by Philip Friston-Reilly available from Rakuten Kobo. Mysery is a collection of 11 poems concerning my lived experiences of Chronic Fatigue Syndrome. I had depression for abo...

Mysery is a collection of 11 poems I wrote during a period of mental anguish concerning living with a long term illness/disability

#poetry #writing #writer #poet #kobo #ebbok #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #NoiseSensitivity #Grief #Anxiety #Depression #CFS #MECFS #longtermillness

A very cute labradoodle puppy sitting looking at the camera

It's already been a whole year since Zephyr joined our family, and while he has bought a lot more chaos and mischief into our lives he has been the most incredible support in helping me manage my ME/CFS.

💙 #chronicillness #longtermillness #ME #cfs

Original post on mastodon.social

Today is #LongCovidAwarenessDay.

In the lack of having a good macroblog or similar, I tried to publish it on my Friendica.

I reposted it here, so you might get it double? Not sure how a Friendica post-share actually shows in this system (if it gets cropped or not?) so thats why I did the […]

10/
“The problematic conversations that transpire between clinicians and
patients often involve specific words and phrases—termed the “never-words [6]”—that can leave patients feeling upset, angry, fearful, confused, and demoralized”

#LongTermIllness #chronicallyill

Pain isn’t my enemy but my sibling. I don’t fight it but accept it. I meet it with gentle curiosity while giving room to all that doesn’t cry for attention and is no pain. #pain #longtermillness

🌟 Join us for a free webinar: Coping with the Psychological Impact of Long-Term Illness 🌟

📅 When: Tue, 16 Jan 2025
🕖 Time: 7-8.30pm
📍 Where: Online
👉 Sign up: bit.ly/3rF5EoZ

#MentalHealth #LongTermIllness

Right off for the day as I don’t want to hear how my life is probably not worth living.
#Disabled #LongtermIllness

3 o'clock is rest time

But 3 o'clock just so happens to be lawnmower time 😭

#longtermillness #chronicillness #chronicfatigue #chronicfatiguesyndrome #mecfs

5/
"(Contd) my whole life revolves around my health problems and nobody really wants to hear about that for more than a few minutes (understandably!).” – Laura S.
#spoonie #longtermillness #chronicdiseases

2/

2. When You Need to Cancel or Change Plans

3. When You’re Unable to Keep Up With Your Kids

4. When You Depend on Others and Feel Like a ‘Burden’

5. When You’re Unable to Work and Contribute Financially to Your Family

#spoonie #longtermillness #chronicdiseases

5/

“Focus on what is within your control

Many aspects of an incurable chronic illness are outside your control, and that can feel overwhelming. Find the things that are within your control and try to focus on those. (contd)”

#chronicallyill #longtermillness #spoonielife

a person is standing in a dark room surrounded by smoke and a light ALT: a person is standing in a dark room surrounded by smoke and a light

There’s nothing more exciting when your life is limited by #LongTermIllness #LongCovid than discovering a new #sciencefiction #scifi show that you get hooked on. I started watching #Farscape last week & I’m really enjoying it. I love the characters, puppets, stories & themes

Meghan O’Rourke on a medical system not built for chronic illness — and the ‘invisible kingdom... "We need, in chronic illness care ... a patient-centered approach in which the patient's desires and wishes are foremost," said writer Meghan O'Rourke at the #STATSummit.

Meghan O´Rourke on a medical system not built for #chronicillness - and the 'invisible kingdom' that could spur change

Interview with Megan O´Rourke, journalist and author of the book "The invisible kingdom".

www.statnews.com/2023/10/23/c...

#spoonie #longtermillness

1/