Mittwoch was anderes/falsches im Essen. Folge Nierenschmerzen, Muskelschwäche, totaler Horror. Letztes Jahr hielt das ein halbes Jahr an! Passiert immer mal, meist so um Ostern herum oder so. Grauenvoll! Einmal was Falsches gegessen halbes Jahr Horror. Hab nur 1 Niere😭😭😭 #MEcfs vermutlich auch #MCAS

#LiegendDemo #mecfs #cureME #fightME #demonstration #longcovid #Postcovid #Postvac #PAIS #MCAS #POTS #Dysautonomie #EDS #CCI #SFN #FQAD #disability #Ostern #Danke

Community Voices: Dominique McGinn "Living with pain, skin injuries, and cEDS." My name is Dominique McGinn, I am a Primary School teacher from Scotland. I am 25 years old and was diagnosed with classical Ehlers-Danlos syndrome (cEDS) at age 3. My dad and younger brother also…

It's worldwide and everyone has their own experience with it.

#Scotland #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth
💕 #Wellness

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

A wonderful resource for anyone with #EhlersDanlosSyndrome or any other complex condition.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi 💕 #Wellness

In Kreis Kleve, we, a group of parents, are connected by the sheer force of our children having #LongCovid. I have never met Rosa, but the window to her #MECFS and #MCAS prison is imprinted in my brain. Taped off. Dark. Burried.

Here is here story (in German) & that of Kathi.

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Guys have #EhlersDanlosSyndrome too, you know.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

On a whim, I picked up some frozen haskap berries at the Italian Centre the last time we were in the city. Tonight I made a crisp with them and WOW do I feel good. Researching haskaps tells me they have extremely high levels of C3Gs, good vit C and antimicrobial properties.
#mcas #chronicillness

Only a Canary alkemy published a post on Ko-fi

Kofi post about a short #horror based on having #MCAS

ko-fi.com/post/Only-a-...

We all have our specialty areas, too. Here are mine.

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

Self-Care For Folks With Hypermobile Ehlers-Danlos Syndrome (Yes, You Do Deserve It) Self-care when you live with a complex disorder like EDS (especially if you have the usual add-ons like MCAS or POTS) is crucial&#…

Nope. Definitely not selfish.

#BlogPost #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #POTS #HolisticHealth #Acupuncture #TuiNa #SelfCare 💕 #Wellness

Intuitive Eating vs. Mindful Eating–Which Is Better For You? (Some Tips For Folks With EDS, MCAS, &/or POTS) Have you ever thought about the difference between mindful eating and intuitive eating?  They are not the same thing, but both can be helpful approaches to nutrition when a person lives with E…

Why not both?

#BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #GutHealth #Mindful #Intuitive 💕 #Wellness

Friends, I'm consulting the hive mind here, and actively want your feedback. If you have #MCAS and/or #gastroparesis would you be willing to share your symptoms and/or what process led to you getting diagnosed? V

Will your doc recognize it’s from #Covid? Probably not. But you’ll get care. If you go in w/ #MECFS you’ll be shown the door. There is also so much comorbidity of ME w/ #POTS #MCAS #EDS etc that even if you have one of these & don’t have ME, learning about it could still help you to answers. 2/

Cheyanne Perry — Living a Full Life with Deadly Allergies. “It’s in My Blood” is a series that feature people with chronic illnesses, and also their passions and talents.

"The goal of this #blog series is to highlight aspects of #identity that are separate from illness; however, #writing is especially helpful in compensating for the #isolation my illness causes.": buff.ly/q48CzG0

Featuring: hospitalprncss
#ChronicPain #MCAS #ChronicLife #allergies

How Chinese Medicine Treats hEDS (Where to Begin) Acupuncture and other modalities of Chinese medicine can be an excellent resource for people with complex disorders, EDS and the c…

How does Chinese medicine treat EDS?

#BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #Strategies
💕 #Wellness

Does anyone on my feed have any experience with #MCAS? The more I'm reading about histamine in foods & the symptoms of MCAS, the more the pieces fit. But it's overwhelming & no 2 articles seem to say the same thing so I'm beyond confused & more than a little desperate. I don't know where to begin.

Gonna go back to physical therapy again too I'm glad about that. And another allergist referral for MCAS/MCS stuff.

Don't know if it will help or not. Any of #MCAS friends have any luck with any medicines that have helped?

Thought about trying Zyflo but it's bad for your liver.

I would like to find other people on here that deal with MCAS in their own lives. I don’t spend very much time talking about it but it would be nice to know other people going through the same thing I am on a physical level.

#MCAS

#me #pwme #cfs #mcas

Just in case you’re wondering how bad and easily my muscles cramp now:

My spouse was gently rubbing my legs cause they hurt, forgot he can‘t press hard on them, gently grabbed my calf muscle and my whole left leg went into spasm and my foot started to claw.

#mecfs #longcovid #pots #mcas

Acupuncture & EDS: How to Find a Practitioner of Chinese Medicine When You’re a Zebra ~~~~~             My first blog post about finding an acupuncturist was in 2019, so it’s been a while.  Besides, the original essay…

If you're complicated it is that much more important to know how to find the right acupuncturist for your needs.

#BlogPost #Acupuncture #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare
💕 #Wellness

Recognize any of the following?

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

Seit ich in der Traumaklinik bin, übertrage ich meine Notizen vom Aufenthalt 2024 in mein Kliniktagebuch. Spannend, was ich vor zwei Jahren schon bearbeitet und was für Fortschritte ich gemacht habe. Schade, dass sich das oft durch die somatischen Erkrankungen nicht so anfühlt.

#MECFS #MCAS #kPTBS

What are you looking to change when it comes to your healing journey?

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

#MCAS ist halt auch der Bonus neben #POTS zu #MECFS

#FirstDoNoHarm #ChronicAllies #CdnEd #PANS #PANDAS #MCAS #Neurodiversity #EducationCanada #InclusiveEducation #SchoolSupport #TeacherPD #TeacherTips

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Yes, guys have EDS too.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Another day of no sleep.

I honestly wonder how much longer my body will be able to hold on after years of this.

#longcovid #mecfs #pots #mcas

Three boxes of medications arranged on a light patterned surface. At the top is a white box labeled “Brilique 90 mg (ticagrelor)” by AstraZeneca. In the middle is a white and blue box labeled “Apixaban 5 mg film-coated tablets” by Sandoz. At the bottom is a yellow box labeled “Aspirin 75 mg gastro-resistant tablets” containing 28 tablets. The medications are stacked vertically and appear unopened.

Goodbye clopi, hello Ticagrelor.

Hoping for benefits,minimal side effects & nothing scary! 🙏

#LongCovid #POTS #MCAS #Migraine #TeamClots

Three boxes of medications arranged on a light patterned surface. At the top is a white box labeled “Brilique 90 mg (ticagrelor)” by AstraZeneca. In the middle is a white and blue box labeled “Apixaban 5 mg film-coated tablets” by Sandoz. At the bottom is a yellow box labeled “Aspirin 75 mg gastro-resistant tablets” containing 28 tablets. The medications are stacked vertically and appear unopened.

Goodbye clopi, hello Ticagrelor.

Hoping for benefits,minimal side effects & nothing scary! 🙏

#LongCovid #POTS #MCAS #Migraine #TeamClots