This is pretty much the same (at first glance) as Transcranial magnetic stimulation (TMS), which I had, and got a LOT worse. I know several #peME who had it and experienced the same outcome.
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Hashtag
#peME
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Lots of hope here for #peME - although GWI probably induced by exposure to sarin, and wouldn’t have the viral persistence of an original infection. I wonder if they have EBV reactivation anyway?
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Large geometric mural with snakes and eyes - PEME?. DYM PHOBE. UN VERANO EV - NUEVA YORK. ESTEME - TGE. street art - murals. Large colorful mural theme.
scopOphilic_micromessaging_1149 - scopOphilic1997 presents a new MicroMessaging series: small, subtle, & often unintentional messages we send & receive verbally & non-verbally. (2024)
#scopOphilic #micromessaging #streetart #graffiti #brooklyn #nyc #photography #PEME #DYM #PHOBE #ESTEME #TGE
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Boosting! Infections are dangerous for #peME
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Good thread highlighting main points: survey of patients with #ME and #LongCovid - paper in PNAS. Graded exercise therapy is clearly harmful #peME #GET
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How small lufe becomes with ME & LC. Read Lauren’s story & donate if you can. Her story rings true for me. 25+ years sick. #ME #LC #ME/CFS #PeME www.omf.ngo/lauren-mecfs...
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youtu.be/D6neeWnlyFE?... for the full episode!
#peme #mecfs #millionsmissing @meactnet.bsky.social
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Yep! Been so crashed this past week only eat, brush teeth, use toilet. #ME #LC #PeME www.whitneydafoe.com/mecfs/?post=...
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Photo of someone wearing a high heel shoe on one foot and a sock and sneaker on the other.
When you feel like something’s wrong, but you can’t quite figure out what, so you leave the house anyway…
#longcovid #spoonies #humor #disability #peME #chronicillness
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Photo of a dog wearing goggly-eye glasses.
When you discover how to subtly hide your napping habits…
#longcovid #spoonies #humor #disability #peME #chronicillness
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A man covering his eyes in frustration is wearing four caps.
When you decide to wear a hat, then can’t remember if you chose one, so you put on a new one, then can’t remember if you chose one, so you put on a new one, then can’t remember if you chose one…
#longcovid #spoonies #humor #disability #peME #chronicillness
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A set of legs with pants and shoes pop straight out of a field of sunflowers.
When you go to pick a bouquet for your significant other and POTS gets jealous…
#longcovid #spoonies #humor #disability #peME #chronicillness
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A woman stands engulfed in a strand of ivy with a pot on her head.
When you try to garden but discover you lack the energy…
#longcovid #spoonies #humor #disability #peME #chronicillness
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Photo of an alpaca face where its fur is so thick you can no longer see its eyes.
When you’ve figured out how to stealth sleep…
#longcovid #spoonies #humor #disability #peME #chronicillness
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A person wears what look to be shoes with the high heels replaced by balloons.
When you’re too tired to shop for new shoes…
#longcovid #spoonies #humor #disability #peME #chronicillness
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I am trying to count my small-scale wins, but it’s been getting increasingly difficult. Today I just dropped it all and went into mourning. I wish my soul felt dead because then I wouldn’t feel this horrible aching spin inside me.
#longcovid #peME #disability
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This is how I feel. I’ve been crying all day. I just can’t believe it. I mean, I can believe it, but my heart feels like it’s been pulled out of my body and my soul has been twisted and smashed for good measure.
#longcovid #chronicillness #disability #peME
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I relate to this so deeply
#chronicillness #longcovid #peME #disability
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Comic: First panel: A cat in a bed made of a box rubs her eyes. Second panel: The cat remains in her box and yawns and stretches. Third panel: the cat is out of the box, looking out of the window at a blue sky. Caption, “What a wonderful day…” Fourth panel: The cat is back in the box, asleep. Caption, “…to take a nap.”
Today I get to see my little nieces and nephews (who aren’t so little any more)! Huzzah!
Got to rest all day so I’ll have energy for dinner and play time tonight.
#chronicillness #longcovid #mecfs #disability #peME
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An interesting read. Higher levels of EBV and herpes virus (as already known) but the hypothesis of IFNa auto antibodies wasn’t apparent
#mecfs #LongCovid #peME #LongCovidAwareness
www.mdpi.com/1999-4915/17...
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Interesting…cardiology won’t see me for a full POTS diagnosis.
They’ve written to my GP saying it definitely sounds like POTS, and recommending starting bisoprolol first, then trying midodrine and then ivabradine depending on how I get on.
Cardiology form afar 🤔
#peME #MECFS #POTS
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Ein Bild mit der Aufschrift c‘est la fucking vie
Vorhin gekauft und als Lebensmotto auserkoren ^^ #peME #MEcfs
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There were signs along the way that my health was worsening, but I couldn't get doctors to pay attention. My body just stopped. I couldn't push anymore because my body just wouldn't.
I'm in a better place now because I'm able to access treatments, but #fatigue continues to be my worst sx.
#peME
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Hat aus der #MEcfs #peME #PEM Bubble Erfahrung mit Amitriptylin? Nehme es seit letzter Woche (40mg 3 Tropfen/Nacht). Kopf- und Muskelschmerzen sind wesentlich weniger geworden, aber ich fühle mich unglaublich benommen und kraftlos. Meistens bis nachmittags, dann geht es einigermaßen….
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Two to-do lists written and prioritised for the week 💪🏼
One for work and one for home. Highlighted with low, medium and high intensity activity to help with pacing.
Have you got a system? #peME #mecfs #chronicillness #spoonie
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Anyone else newish to life with housebound M.E. feel they’re dissociating their way through it all? I’ve been housebound for 5 months, mainly bedbound, apart from a couple of health appts. But somehow I still feel like it all isn’t happening. Is this some kind of grief mechanism? (1/2)
#peME #MECFS
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Lovely to have found you. Artist, tea drinker and #peME here too :)
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