Oh good! I slept through the night and took a fat, 2hr nap this afternoon, so my body finally has enough energy to have seizures again! 🤪 We’re back to multiple good ones a day, and the punching myself tic is back, too! Huzzah! /s
#PNES #chronicillness #FND
A posca pen drawing of a ball and chain
Getting my feelings about health into a drawing ♿️
#pwd #schizoaffective #mcas #pnes #dysautonomia #bipolar
5/5
non-epileptic seizures a day. When our Guides come through to channel this language during a seizure, they get rid of the seizure and bring us back to balance every single time.
#spiritual #awakening #chronicillness #FND #PNES #supernatural #weird #language
Ugh. My non-epileptic seizures have been way better lately (as in like 2-4 daily instead of 20-40), so when I have a bad one now, it’s a lot more emotionally disruptive instead of just like ‘wellp, here we go again’ 🙄🥴
#chronicillness #FND #PNES #disability
(7/7) anything, it’s that the most arduous journeys are often the most worth it.
Here’s to clarity.
Here’s to growth.
Here’s to no longer running from what hurts.
#disabled #pnes #fnd #did #osdd #didsystem #plural #syscourse #soberfromweed #journal #sobrietyjourney #mentalhealthmatters #positive
When the anxiety of those around us feels physically paralyzing, this is how we self-regulate. Sonii’ya comes out to speak to us whenever we need her. She even stops our non-epileptic seizures by speaking through us. Every time. Without fail. #channeling #fnd #pnes #lightcodes #spiritualsky #plural
If you’ve ever wondered what it’s like being a chronically ill empath in 2026, here’s a peek:
I have to take strong meds for other people’s anxiety if they don’t know how to manage it, or it will give me seizures and panic attacks.
#FND #empath #pnes #anxiety #mentalhealth #chronicallyill
gofund.me/939b5ec0a
We are posting this on behalf of a teammember who is in need of help with her aging service dog.
No pressure to donate, but if could spare a few dollars or even just share with others or offer advice, it'd be greatly appreciated.
#servicedog #TBISurvivor #PNES #Fibromyalgia
In 62.6% of patients with FDS, there were no red flags to indicate co-occurring epilepsy.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #comorbidity #diagnosticlevelofevidence #functionalneurologicaldisorder #psychogenicnonepilepticseizures #subjective #PNES
This review is very special to me for a couple of reasons. 1st, because I hit my goal of 20 reviews on Amazon! And 2nd, because it was posted exactly 6 years since my last psychogenic non epileptic seizure. So it was almost like a gift for being six years seizure free! #booksky #pnes #indie #review
Vielleicht hängt die Körperreaktion bei PNES auch damit zusammen, dass das Gehirn Unsicherheit als unkontrollierbare Bedrohung verarbeitet.
Wie kann man die Gehirnregion wieder aktivieren?
Wenn jemand dazu Forschung kennt, würde ich mich freuen, mehr zu lesen. 🙏
#Neuroscience #PTSD #PNES #Psysky
Full storytime :,)
#scareactor #pnes #chronicallyill #actor #disabled #disability
www.youtube.com/watch?v=C5a7...
Hat jemand Erfahrungen mit dem Zusammenhang von #FND und #Covid?
Wir hören öfter die Frage nach Infekten in der Vorgeschichte und fragen uns, ob und wie #SarsCov2 dabei eine Rolle spielt.
#Covidisnotover #MaskUp #TeamVorsicht #Maskeauf #PNES #Covid19
Fast vier Tage ohne Anfall, dann heute nach der Physiotherapie: ca. 3 Minuten Krämpfe, danach 5 Minuten völlig weg, keine Ansprechbarkeit, Puls Achterbahn, Sauerstoff okay, Pupillen reagieren. Plötzliche Rückkehr mit tiefem Atemzug, dann wieder ganz normal. Das Muster hatten wir noch nie. #FNS #PNES
App schlägt Alarm. Schnell ins Zimmer gucken, Teenager liegt zwischen Bett und Wand, krampft über 10 Minuten immer wieder heftig.
Großes Glück: kein Kopfstoß an Kommode oder Heizung beim Fallen.
Kleines Pech: Handgelenk verstaucht, Schulter tut weh.
Elternstatus: *schwitz*
#FNS #NEAD #PNES
48 Stunden ohne einen nicht-epileptischen Anfall. Kind ist ganz entspannt, hat deutlich besser geschlafen und längere REM und Tiefschlafphasen gehabt.
Bonus-Level: Parietale Osteopathie heute hat gutgetan.
#FNS #NEAD #PNES
Eine 6-wöchige ketogene Ernährung (viel Eiweiß, wenig Kohlehydrate) senkte bei Patient:innen mit psychogenen Anfällen die Häufigkeit der Anfälle und verbesserte Depression & Angst. Gut verträglich – größere Studien sind aber nötig.
#PNES #FNS #NEAD #KetogeneDiät #medsky
🔗 doi.org/10.1002/epi4...
Kurz gesagt: Unser Teenager hat jetzt eine Reset-Taste.
Wir suchen andere, die auch ständig zwischen „läuft“ und „abgestürzt“ jonglieren müssen.
#FNS #NEAD #FND #PNEA #PNES #psychogen #DissoziativeKrampfanfälle
Und dann kippte letzte Woche mein Nachwuchs bewusstlos um, zuckte – und zehn Minuten später standen die Sanitäter im Zimmer. Willkommen in unserem unfreiwilligen Crashkurs in funktioneller Neurologie. #FND #FNS #NEAD #PNES #NichtEpileptischeAnfälle
#DissoziativeKrampfanfälle ⤵️
A bit vulnerable but I decided to share this
A) because it's kinda funny but also
B) to raise awareness of #PNES / #PsychogenicNonepilepticSeizures
#chronicillness #fnd #seizuredisorder #minecraft
www.youtube.com/watch?v=NXJi...
Patients with FS/PNES show significantly lower DTI-ALPS index compared to HC, suggesting potential glymphatic system dysfunction.
doi.org/10.1002/epi4...
#epilepsy #epilepsiaopen #ILAE #functionalneurologicaldisorders #functionalseizures #glymphaticsystem #PNES
🎙️New episode!
“They Aren’t FAKE! Non-Epileptic Events” w/ Dr Parthvi Ravat 💜
Real symptoms, real science, real hope. Watch/listen/read, right here! 👇
🎙️ Podcast shorturl.at/iiRc1
🎬 YouTube shorturl.at/dzczm
📄 Show notes shorturl.at/Xicyt
#epilepsy #FND #PNES
PNES episodes are often linked to:
🔹 Past trauma
🔹 Chronic emotional stress
🔹 Repressed emotions
🔹 PTSD or anxiety disorders
Share your experience in the comments below.
#PNES #BlueSky #MedSky #NewsSky #NeuroSky #Medicine
Psychogenic Non-Epileptic Seizures (PNES) are real, involuntary episodes that look like epileptic seizures,
But when we monitor the brain with an EEG, there's no seizure activity.
That’s because the origin isn’t electrical, it’s psychological.
#PNES #Medsky #NeuroSky
Imagine your brain saying: “I’m overwhelmed”…
But instead of words, the message comes through the body
: shaking, collapsing, unresponsiveness.
This is not acting. This is the nervous system in crisis = PNES.
#PNES #seizure #BlueSky #MedSky #NewsSky #NeuroSky
Dr. Claudia teamed up with Jessica Muñoz Cohan and Dr. Z. L’Erario for a great conversation on LGBTQ+ healthcare and functional neurological disorders. Ready??? Stay tuned — full video coming soon! 🔜
#MedSky #Neurosy #PNES #Epilepsy #LGBTQ
#pnes #fyp #fnd #lgbt #medicine
Follow us for more brain facts with empathy.
Download my Healthy Brain Journal to track your episodes and support your NeuroJourney.
tr.ee/QPTfNnqh0W
#BlueSky #MedSky #NewsSky #NeuroSky #PNES #epilepsy
If you are experiencing PNES episodes and feel like no one truly understands…
If tests are “normal” but your life is not…
Please know:
💕You are not alone.
💕And what you're feeling is real.
#BlueSky #MedSky #NewsSky #NeuroSky
#PNES #epilepsy
