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Posts by Carrie - MySeveralWorlds - Artist, Author, Advocate

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Chronic Noise Exposure Led to Parkinson's Disease Symptoms in Mice | The Scientist Noise as loud as 85 to 100 decibels over time led to irreversible motor defects and loss of dopamine neurons in a mouse model of pre-symptomatic Parkinson’s disease.

Chronic noise exposure may do more than harm your hearing.

New research linked repeated loud sound to dopamine neuron death and movement issues in mice, offering insight into how environmental noise could contribute to Parkinson’s disease.

Read more: bit.ly/3Xhya5f

5 hours ago 0 0 0 0
The Diving Bell and the Butterfly is one of the most powerful memoirs I've ever read. It is a stunning accomplishment. I based an entire art collection on the concept behind this book.

"French journalist Jean-Dominique Bauby suffered a #stroke at 43, resulting in #LockedInSyndrome, leaving him paralyzed except for his left eyelid. 

Using a blinking
technique, he dictated a 130-page memoir, The Diving Bell and the Butterfly, which became a bestseller. Bauby passed away two days after its publication."

Credit: FIND SOURCES @ UNBELIEVABLEFACTSBLOG.COM

The Diving Bell and the Butterfly is one of the most powerful memoirs I've ever read. It is a stunning accomplishment. I based an entire art collection on the concept behind this book. "French journalist Jean-Dominique Bauby suffered a #stroke at 43, resulting in #LockedInSyndrome, leaving him paralyzed except for his left eyelid. Using a blinking technique, he dictated a 130-page memoir, The Diving Bell and the Butterfly, which became a bestseller. Bauby passed away two days after its publication." Credit: FIND SOURCES @ UNBELIEVABLEFACTSBLOG.COM

The Diving Bell and the Butterfly is one of the most powerful memoirs I've ever read. It is a stunning accomplishment. I based an entire art collection on the concept behind this book.

#stroke #Memoirs #MySeveralWorlds #LockedInSyndrome

Credit: FIND SOURCES @ UNBELIEVABLEFACTSBLOG.COM

11 hours ago 1 0 0 0


"You never know how long your
words will stay in someone's
mind even long after you've forgotten you spoke them." Unknown

@DifferentShadesOfBlue

Chronically yours,
Carrie

"You never know how long your words will stay in someone's mind even long after you've forgotten you spoke them." Unknown @DifferentShadesOfBlue Chronically yours, Carrie

Today is what I call #TruthDay but unfortunately I am taking my sweet Bijoux to the vet.

Truth Days are my way of processing what happened l and what led to me leaving Taiwan so suddenly. It wasn't just words but I guess you'll have to wait until next week. Me and my babies come first!

1 day ago 1 1 1 0
Chronic Illness: You Don't Get It Until You Get It I think one of the hardest challenges of having a chronic illness is being understood. No matter how loving and supportive and genuinely concerned a person is, they simply cannot understand if they ar...

“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.”
🔗
buff.ly/46vXYyv

@KimberlyJPenix

#Spoonie

2 days ago 2 1 0 0
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Why I Write, Even Though it Makes Me Uncomfortable Revealing so much about my private life and chronic illnesses through my writing actually makes me uncomfortable — but here's why I write anyway.

@AChVoice writes about her life w. #ChronicIllness & #disability.

"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7

2 days ago 0 0 0 0
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Aging and Chronic Illness I turned 70 last year, and it hit me hard. My 50's are a blurry memory of heart attacks, heavy fatigue, copious medical tests, days on the sofa or in bed, pain, new diagnoses and watching my life...

Our senior years is getting a whole bunch of discounts. Whether it's #ChronicIllness or aging, so much gets taken away. The segue into aging WITH chronic illness leaves you punched in the gut, breathless, wanting & yearning for what used to be."
🔗
www.pajamadaze.com/blog/aging-a...

2 days ago 3 1 0 0
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People without #Chronicillness cannot know what it's like to live with it every day "Even when pain or other symptoms aren't present, they linger like ghosts, ready to come out of the woodwork when we least expect it."

2 days ago 4 2 0 0
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Noise: The invisible killer in all our lives The BBC's James Gallagher investigates the invisible killer all around us.

How our noisy world is seriously damaging our health

"In Barcelona there are an estimated 300 #HeartAttacks and 30 deaths a year just from traffic noise, according to researcher Dr Maria Foraster, who has reviewed evidence on noise for the WHO."
🔗
www.bbc.com/news/article...

2 days ago 2 1 0 0
"It really is this simple.

And before people jump in, yes some can work with the right support etc... but that's not who this is about."

Credit: Adam Fare @adamfare1996

Dr Jay Watts @Shrink_at_Large 

"Some people cannot work."

#DisabilityAwareness #MySeveralWorlds

"It really is this simple. And before people jump in, yes some can work with the right support etc... but that's not who this is about." Credit: Adam Fare @adamfare1996 Dr Jay Watts @Shrink_at_Large "Some people cannot work." #DisabilityAwareness #MySeveralWorlds

"It really is this simple.

And before people jump in, yes some can work with the right support etc... but that's not who this is about."

Credit: Adam Fare @adamfare1996

Dr Jay Watts @Shrink_at_Large

"Some people cannot work."

#DisabilityAwareness #MySeveralWorlds

2 days ago 2 1 0 0
Chronic Illness Confessions

"It's hard to watch people I grew up with living their lives fully, while I'm barley's surviving."

Credit @katieandbelle888

#ChronicTruths #MySeveralWorlds 
#LifeWithChronicIllness

Chronic Illness Confessions "It's hard to watch people I grew up with living their lives fully, while I'm barley's surviving." Credit @katieandbelle888 #ChronicTruths #MySeveralWorlds #LifeWithChronicIllness

Chronic Illness Confessions

"It's hard to watch people I grew up with living their lives fully, while I'm barely surviving."

Credit @katieandbelle888

#ChronicTruths #MySeveralWorlds
#LifeWithChronicIllness

3 days ago 5 1 0 0
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Antiphospholipid Syndrome Diagnosis: The A to Z Guide as a Patient A comprehensive Antiphospholipid Syndrome diagnosis resource guide from A to Z. Written by an APS patient with over 20 years of lived experiences.

"I presumed I was fine since I did not experience pain, & continued to eat, drink & play sports as usual until I developed multiple #DVTs & a #PulmonaryEmbolism that nearly cost me my life. It also activated #AutoimmuneDiseases."
🔗
www.achronicvoice.com/antiphosphol...

#APS @achronicvoice.com

4 days ago 7 3 1 0
My little dwarf with a pick axe has been very active this week. He is causing a lot more widespread pain that usual. 

#MySeveralDays #HIPDay #WidespreadPain #FibroNerds #FibromyalgiaAwareness

My little dwarf with a pick axe has been very active this week. He is causing a lot more widespread pain that usual. #MySeveralDays #HIPDay #WidespreadPain #FibroNerds #FibromyalgiaAwareness

My little dwarf with a pick axe has been very active this week. He is causing a lot more widespread pain that usual.

#MySeveralDays #HIPDay #WidespreadPain #FibroNerds #FibromyalgiaAwareness

4 days ago 2 1 0 0

A little too much lately though!

4 days ago 1 0 1 0
"The unpredictability of chronic illness is often the hardest aspect of it. Not knowing when you will wake up to find your body has decided to not participate in your plans that day is so stressful."

Credit: @bendy bunny

#ChronicTruths #MySeveralWorlds

"The unpredictability of chronic illness is often the hardest aspect of it. Not knowing when you will wake up to find your body has decided to not participate in your plans that day is so stressful." Credit: @bendy bunny #ChronicTruths #MySeveralWorlds

"The unpredictability of chronic illness is often the hardest aspect of it. Not knowing when you will wake up to find your body has decided to not participate in your plans that day is so stressful."

Credit: @bendy bunny

#ChronicTruths #MySeveralWorlds

4 days ago 2 1 0 0
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#HealthHacks

Did you know? Crying activates the parasympathetic nervous system, which is responsible for calming you down after a fight-or-flight response. 

Tears also contain stress hormones, meaning that when you cry, you are expelling those hormones from your body. It's OK to cry.

Credit: The Mighty 

👉 I cried every single day in 2025 for completely different reasons compared to 2026. I call it The Healing and hope with all heart I am coming out of grieving.

#MySeveralWorlds #TraumaHealing #TraumaInformed

#HealthHacks Did you know? Crying activates the parasympathetic nervous system, which is responsible for calming you down after a fight-or-flight response. Tears also contain stress hormones, meaning that when you cry, you are expelling those hormones from your body. It's OK to cry. Credit: The Mighty 👉 I cried every single day in 2025 for completely different reasons compared to 2026. I call it The Healing and hope with all heart I am coming out of grieving. #MySeveralWorlds #TraumaHealing #TraumaInformed

👉 I cried every single day in 2025 for completely different reasons compared to 2026. I call it The Healing and hope with all heart I am coming out of grieving.

#MySeveralWorlds #TraumaHealing #TraumaInformed
#HealthHacks

Credit: The Mighty

5 days ago 4 1 0 1
Chronic Illness: You Don't Get It Until You Get It I think one of the hardest challenges of having a chronic illness is being understood. No matter how loving and supportive and genuinely concerned a person is, they simply cannot understand if they ar...

“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.”
🔗
buff.ly/46vXYyv

@KimberlyJPenix
#Spoonie

6 days ago 3 2 1 0
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The Savagery of Panic Attacks & The Saving Grace of Internet Friends Anxiety and panic attacks have been plaguing me with the lockdown. But a new pup and internet friends with chronic illness have sustained me.

When you live with #ChronicAnxiety, sometimes you want to switch your brain off.

"It’d be nice if I could switch my brain off for a couple hours. No #anxiety, no panic attacks, no #depression, no worries, no pain."
🔗
buff.ly/37pXrBD

#MentalHealthAwareness

1 week ago 3 1 0 0
Self-Soothing Statements When You're in Crisis

• I am safe in this moment. I can take things one breath at a time.
• This feeling is temporary. I will get through this.
• I don't have to solve everything right now.
• It's okay to feel this way. My feelings are valid and will pass.
• I am stronger than this moment feels.
• I can handle this step by step, moment by moment.
• I am not alone. Support is available if I need it.
• This is hard, but I can do hard things.
• I am allowed to take care of myself right now.
• My breath is my anchor. Inhale calm, exhale tension.
• I am not my thoughts; I am the observer of my thoughts.
• I can let go of what I can't control and focus on what I can.
• I can reach for one small thing that feels comforting or grounding.
• I am doing the best I can with what I have right now.
• I've been through tough times before, and I can make it through this one too.

Credit: DR. KELLY VINCENT

#PTSD #cPTSD #TraumaHealing  #MentalHealthMatters

Self-Soothing Statements When You're in Crisis • I am safe in this moment. I can take things one breath at a time. • This feeling is temporary. I will get through this. • I don't have to solve everything right now. • It's okay to feel this way. My feelings are valid and will pass. • I am stronger than this moment feels. • I can handle this step by step, moment by moment. • I am not alone. Support is available if I need it. • This is hard, but I can do hard things. • I am allowed to take care of myself right now. • My breath is my anchor. Inhale calm, exhale tension. • I am not my thoughts; I am the observer of my thoughts. • I can let go of what I can't control and focus on what I can. • I can reach for one small thing that feels comforting or grounding. • I am doing the best I can with what I have right now. • I've been through tough times before, and I can make it through this one too. Credit: DR. KELLY VINCENT #PTSD #cPTSD #TraumaHealing #MentalHealthMatters

Self-Soothing Statements When You're in Crisis
• I am safe in this moment.
• I don't have to solve everything right now.
• I am stronger than this moment feels.
• I've been through tough times before. I can make it through this too.
DR. KELLY VINCENT
#PTSD #cPTSD #TraumaHealing #MentalHealthMatters

1 week ago 6 2 0 2
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Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

When I was diagnosed with #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons can help patients like me.
🔗
spondylitis.org/patient-stor...

#Spondylitis #axSpA #ArthritisAwareness #DisabilityAwareness

1 week ago 1 1 0 0
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| JPR | Dove Medical Press To develop a culturally sensitive Chronic Pain Cognition Scale for Chinese-/Chinese dialect-speaking populations & investigate its psychometric properties.

How we measure pain in a culture sensitive way is an essential step in research. Most pain measurements were developed in Western cultures. (McGill Pain Questionnaire) Most words were suitable for Chinese populations but some were difficult to translate.
🔗
buff.ly/JmNNvE7

1 week ago 2 0 0 0
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In Their Own Words: Chronic Fatigue Syndrome and Fibromyalgia Patients Describe Their Symptoms I would not wish this illness on my worst enemy (if I had one), but sometimes I wish the naysayers could live in our bodies for a few days.. The symptoms are taken from a thread on the Health Rising ...

In Their Own Words: #MECFS & #Fibromyalgia Patients Describe Their Symptoms @cortjohnson.bsky.social

"I would not wish this illness on my worst enemy... sometimes I wish the naysayers could live in our bodies."
🔗
www.healthrising.org/forums/resou...

#MEAwareness #FibromyalgiaAwareness

1 week ago 1 1 0 0
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12 Visible Evidence of a Body Gone Rogue (Is Invisible Illness Truly Invisible?) Here is some visible evidence of invisible illness — photos, signs and symptoms from my personal life with chronic illness.

A light bump, pinch or punch can add a new bruise to the endless collection. I’m often surprised to find a new one hidden somewhere on my body"
🔗
www.achronicvoice.com/2021/07/14/b...
@achronicvoice.com

#AntiphospholipidSyndrome #PulmonaryEmbolism #ChronicPain #APS #MedTwitter

1 week ago 2 1 1 0
Traveling as a healthy person:

- Book hotel
- Pack luggage
- Have fun

Traveling as a disabled/chronically ill person:

- Book hotel
- Pack 3x as much luggage
- Research hotel/venue accessibility 
- Research alternative food options
- Research transportation accessibility
- Make a dozen calls
- Avoid people and activities for weeks beforehand to avoid a flare
- Flare anyway
- Plan every detail of how you're getting through each step of the trip and worry about if you didn't plan enough

Credit: the_chronic_chronicles

#DisabilityAwareness #MySeveralWorlds

Traveling as a healthy person: - Book hotel - Pack luggage - Have fun Traveling as a disabled/chronically ill person: - Book hotel - Pack 3x as much luggage - Research hotel/venue accessibility - Research alternative food options - Research transportation accessibility - Make a dozen calls - Avoid people and activities for weeks beforehand to avoid a flare - Flare anyway - Plan every detail of how you're getting through each step of the trip and worry about if you didn't plan enough Credit: the_chronic_chronicles #DisabilityAwareness #MySeveralWorlds

Travel as a healthy person:
- Book hotel
- Pack luggage
- Have fun

Travel as a disabled/chronically ill person:
- Book hotel
- Pack 3x as much
- Research hotel/venue
- Research food
- Research transport
- Avoid people/activities to avoid a flare
- Flare anyway
#DisabilityAwareness #MySeveralWorlds

1 week ago 2 0 0 0
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Fibromyalgia Warrior Journey | MySeveralWorlds.com Inspiring Fibromyalgia Warrior Carrie. She shares her journey living in Taiwan with Ankylosing Spondylitis, Fibromyalgia, and ME/CFS.

Many thanks to Melissa
@teamfibro (Fibromyalgia National Health Organization) for featuring my journey with #fibromyalgia.

Learn top tips for #LifeWithFibromyalgia at
🔗
supportfibromyalgia.org/fibromyalgia...

#FibromyaligiaAdvocate #FibroNerds #MySeveralWorlds
#SupportFibro #CarrieMarshall

1 week ago 2 0 0 0
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Employment Strategy for Canadians with disabilities - Canada.ca ESDC programs for persons with disabilities, employers, and those helping to make workplaces more inclusive.

Only 62% of Canadians with disabilities aged 25-64 have jobs, compared to 78% of Canadians w/o disabilities. Persons with disabilities who work often have lower paying jobs that have less stability, fewer benefits & limited chances for career growth.
🔗
www.canada.ca/en/employmen...

1 week ago 1 1 0 0
Self diagnosis. I don't need Google to tell me this. I have Doctoritis Burnoutarosis.

Ba ha ha ha.

Credit: Carrie, #MySeveralWorlds 

#SpoonieProblems #AxSpA #PsA #CreakyTruth
#AnkylosingSpondylitis #fatigue #Fibromyalgia

Self diagnosis. I don't need Google to tell me this. I have Doctoritis Burnoutarosis. Ba ha ha ha. Credit: Carrie, #MySeveralWorlds #SpoonieProblems #AxSpA #PsA #CreakyTruth #AnkylosingSpondylitis #fatigue #Fibromyalgia

Self diagnosis. I don't need Google to tell me this. I have Doctoritis Burnoutarosis.

Ba ha ha ha.

Credit: Carrie, #MySeveralWorlds

#SpoonieProblems #AxSpA #PsA #CreakyTruth
#AnkylosingSpondylitis #fatigue #Fibromyalgia

1 week ago 4 1 0 0
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What I need to do to feel productive I need to feel somewhat productive each day. To some extent. Some days I understand that simply will not happen and I know this. Some days only a minimal amount will happen and I understand this. A…

What I need to do to feel productive #ChronicIllness #Chronicpain chronicallynikki.com/2026/04/12/w...

1 week ago 3 2 0 0
Sometimes the worst part of
a chronic illness isn't the pain.

It's all the time that's lost.

Sometimes the worst part of a chronic illness isn't the pain. It's all the time that's lost.

Sometimes the worst part of a #ChronicIllness isn't the pain.

It's all the time that's lost.

#ChronicTruths #MySeveralWorlds

1 week ago 4 3 0 0
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They’re young, they look healthy, but they need a seat on the train. This is why These young adults suffer from autoimmune diseases whose symptoms are not often visible, leading to misconceptions and judgement. How do they navigate work, relationships and life in general while end...

Young adults in Singapore: “Even if I were to wear the #disability lanyard, I’m...sceptical people would give up their seat for me.”
Pang is 25. He has #AnkylosingSpondylitis.

We have many similar stories in #Taiwan with 'Who gets a disability seat?'
🔗 www.channelnewsasia.com/cna-insider/...

1 week ago 1 2 0 0
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You Don't Have to be Strong, Just a Little Stronger Than Before Sometimes telling ourselves to be brave invokes fear. Here's why you don't have to be strong, just a little stronger than before.

"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
🔗
www.achronicvoice.com/2018/05/13/y...

#ChronicPain

1 week ago 1 2 0 0