Please Help David Tuller @davetuller1.bsky.social , Our Champion!

crowdfund.berkeley.edu/project/49720

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #LongCovid

🌲✊🌲Blocking machine access to further expansion of South Cypress mine continues into the second day of occupation.

💚💚💚DONATE to support this action to protect the Denniston Plateau. Link in bio.

#ClimateCrisis #ClimateJustice #Aotearoa #newzealand #civilresistance #ProtectDennistonPlateau #A22

Protesters lie on the ground outside the White House holding signs. Text above: #MEAction Protest Guide Available. Text below: Part 1: For people who are planning a protest/activism to include people with ME Part 2: For those planning to attend an in-person protest that have complex chronic illness

REMINDER!
#MEAction has a Protest Guide for those with ME or other energy-limiting chronic disease.

Find it here: https://ow.ly/toH750Yzlhj

#pwME #MECFS #ChronicIllness #protest #spoonie #disability

Mast Cell Activation Syndrome---MCAS YouTube video by Unraveled: Understanding Complex Illness

New episode posted on Unraveled: Understanding Complex Illness.
Please comment, send questions, share, and subscribe.

youtu.be/twvYA5ZLqE0

I love Zacs content on his Instagram, he seems really onto it so it should be a good session

Government ‘kicked the tyres’ on solar subsidies but went with ‘minor’ tweaks instead It is one of the cheapest ways to cut power bills - yet documents reveal the government shelved a subsidy.

New Zealand has more sunshine than Germany.
But only 1 in 35 homes here has rooftop solar.
Australia? 1 in 3.

Why? I tried to find out - despite some strange secrecy

www.rnz.co.nz/news/politic...

Tax Work Less
Tax Wealth More
✊
#OneTermGovernment
#nzpol

Is the OMF's ME/CFS BioQuest Study the Study We've All Been Waiting For? - Health Rising The Open Medicine Foundation's huge Bioquest project has the potential to transform ME/CFS patients experience with doctors, dramatically enhance research and get drug companies finally interested in ...

Is the OMF’s ME/CFS BioQuest Study the Study We’ve All Been Waiting For? #MECFS

www.healthrising.org/blog/2026/02...

An orange graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center right depicts a photo of Dr. Avram gold a smiling white man with silver-white short hair and a beard wearing a white lab coat and gray collared shirt with a red tie. White text reads: Clinician's Roundtable, Sleep Dysfunction and Breathing Mechanics. March 6, 2026, 12 pm ET US. Avram Gold, MD, Sleep Medicine, Pulmonology. Renegade-Research.org. Register: tinyurl.com/renres-2026-03-06

Our next Clinician's Roundtable: Sleep Dysfunction & Breathing Mechanics

with Avram Gold, MD, Assoc. Prof. of Medicine
Stony Brook

Friday March 6, 2026, 12 pm ET (US)

Please share with clinician, researcher, patients networks! Will be recorded

🧵 Registration link with more about Dr. Gold below:

An orange graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center right depicts a photo of Dr. Zac Spiritos, Neurogastroenterologist, a smiling white man with short brown hair wearing a black shirt. White text reads: Clinician's Roundtable, GI-NeuroImmune Axis and the role of Histamine and Mast Cells, March 27, 2026 at 1 pm ET US. Co-host #MEActionNC. Renegade-Research.org. Register: tinyurl.com/ypy99ma5

We welcome you to join us on Friday, March 27 at 1 pm ET (US) for a Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos

He will be discussing the Gastrointestinal-Neuroimmune Axis & the Role of Histamine and Mast Cells

Registration link below with info on Dr. Spiritos' work 🧵

If that was true, I'm pretty sure I wouldn't be hearing about it from some random mustachioed man on the internet..

New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.

Please share widely.

For all the info and survey link, head on over to

www.physiosforme.com/o2survey

It's brutal isn't it 😔

New review highlights growing evidence that diabetes drug metformin can prevent long COVID

New review highlights growing evidence that diabetes drug metformin can prevent long COVID (Feb 3, 2026)
www.cidrap.umn.edu/covid-19/new...

So if I order the RNA test does it come with the big questionnaire? In your interview with Cort you recommend the RNA test as the most valuable for a patient (and for your data) did I recall correctly? I'm interested in ordering, I'm in NZ.

Therapy Today, the magazine of British Association for Counselling and Psychotherapy, had a problematic feature article on chronic illness in its September 2025 issue. Former therapist Emma Hampson has written a critical letter-to-the-editor about it: "As someone with the contested illness ME I began reading The Silent Fight finally feeling that my and other's lives were at long last being understood, destigmatised and given voice to. I was therefore unsettled midway through the piece when it slipped back into the territory linking trauma and the term 'mind-body' to chronic illness". BACP article l Hampson's letter l Thread

Therapy Today, the magazine of British Association for Counselling & Psychotherapy, had a problematic feature article on chronic illness in its September 2025 issue

www.bacp.co.uk/bacp-journal...

chroniclivingtherapy.com/wp-content/u...

Screenshot from Science for ME weekly update

#MEcfs #PwME

Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital

Please help if you can 🙏

#MECFS #MecicalNeglect #MedicalGaslighting #SaveSavannah

gofund.me/d78cca222

#26 The truth about exercise & pacing in ME/CFS, Long Covid & POTS, with Todd Davenport Podcast Episode · Make Visible: Chronic Illness Explored · 01/23/2026 · 1h 1m

Interesting deep conversation about Long covid & the pros & cons of exercising with chronic illness.

I was in good shape before covid, could hike for enjoyment 2-3 miles.
Now 2-3 minutes puts me out.
Pacing & a long slow climb may lead to recovery. #LongCovid

podcasts.apple.com/us/podcast/m...

Sign the Petition Advocate for Maryland HB 0027 for Long COVID R&D

Long Covid friends—

A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.

The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!

More info:

This trial in Florida (USA) led by sympathetic researcher Dr Nancy Klimas is now recruiting.

Here is an extract from the latest Institute for Neuro-Immune Medicine newsletter.

Link: redcap.nova.edu/redcap/surve...

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome

1/

A image showing the name of the publication at the top, The Sick Times, and then a subhead that reads: "Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise." And then a image of a woman bent over on her bed with her hair flowing onto the ground - everything is blue. At the bottom of the image, it reads: "In the Press. #MEAction Explains the Harms of GET for Long COVID.

The majority of Long COVID research investigating exercise benefits completely ignores post-exertional malaise (PEM) - one of the core symptoms of #LongCOVID.

An analysis by @thesicktimes.org showed that less than 20% of Long COVID trials involving exercise even mention PEM.

Navy background with all photos from the event in a grid formation. Text "From Stigma to Science: Educating for Change:ME/CFS and long COVID Action Forum ". Emerge Australia logo is in the bottom right corner.

Thank you to everyone who joined, what an incredible day at APH!
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.

Recordings 🔗 zurl.co/lFiTY

Open letter from Mental Health Professionals: NZ GOVT MUST ACT FOR PALESTINE Rick Williment Registered Psychotherapist (PB55646) Chair, Public Issues Committee, Assn. Psychotherapists Aotearoa New Zealand [please add your signature and share this open letter with other mental...

This cause is close to my heart - please sign: our.actionstation.org.nz/petitions/op...

What was that you said Shane Jones?!
That coal mining on the Denniston Plateau is needed for electrical production “to keep the lights on” in Aotearoa? When in reality it’s headed straight to Lyttelton Port and then off overseas for steel production.
His words complete crap and...
#ClimateAction

ME/CFS, Long Covid, and Rapamycin YouTube video by Unraveled: Understanding Complex Illness

Publishing our new episode about ME/CFS, Long Covid and Rapamycin. It is long but it is a very important topic focusing on how Rapamycin can fundamentally affect the pathology and symptoms of these complex illnesses.
Please watch, comment, and subscribe.

www.youtube.com/watch?v=W_aw...

Nicola Willis announces plan to cut grocery prices The Government is under pressure over the cost of living, with grocery prices increasing 5.1% in the year to July 2025.

Is it breaking up the supermarket duopoly? No? Then its fuck all help, and wont work

www.stuff.co.nz/politics/360...

Scientists find link between genes and ME/chronic fatigue syndrome Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness Scientists have found the first robust evidence that people’s genes affect their chances of developing myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious and debilitating illness that has been neglected and dismissed for decades by many in the medical community. Early findings from the world’s largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. Continue reading...

Scientists find link between genes and ME/chronic fatigue syndrome

Graphic 1 of 4. DecodeME: The Results graphic. At the top in bold lettering, it says ‘Main Findings’. Beneath this it says ‘Your genes contribute to your chances of developing ME/CFS. Other key findings are on the following slides.

Graphic 2 of 4. DecodeME: The Results graphic. The slide says ‘People with an ME/CFS diagnosis have significant genetic differences in their DNA compared to the general population’. Beneath this is an image of a DNA helix and a magnifying glass.

Graphic 3 of 4. DecodeME: The Results graphic. The slide says ‘These lie in many places across the genome, and do not impact just one gene’. Beneath this is an image of a DNA helix and graphs.

Graphic 4 of 4. DecodeME: The Results graphic. The slide says ‘Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS’. Beneath this is a blue magnifying glass with a DNA helix.

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.

These findings reflect the lived experience of thousands of #pwME.

Thanks to all our participants & supporters who made this possible!

Read a summary of our results: shorturl.at/pgsjk

100% pure asshole