Sara, our CEO, and Kristina, our Research Analyst are attending the SfE BES conference in Harrogate
We have a conference stand to bring awareness to the critical link between primary adrenal insufficiency (Addison's Disease) and Adrenoleukodystrophy (ALD) 💙
#AddisonsDisease #Adrenoleukodystrophy
Addison’s Disease vs Cushing’s Syndrome
#AddisonsDisease #CushingsSyndrome #AdrenalCortex #Endocrinology #HormonalDisorders #MedicalEducation #NursingNotes #Pathophysiology #VikaasShandily
Addison’s Disease: Causes, Clinical Features, Diagnosis, Treatment, Prevention, Complications, Key Points and MnemonicAddison’s Disease: Causes, Clinical Features, Diagnosis, Treatment, Prevention
#VikaasShandily #AddisonsDisease #AdrenalInsufficiency #Endocrinology #CortisolDeficiency
Starting to think selling a house should be on the sick day rules. #AddisonsDisease
I made my first BlueSky Starter Pack! I have a rare condition called Addison's Disease, which is a type of Adrenal Insufficiency. I will try to add all the resources or community I find to this pack. go.bsky.app/CWtwi4e #raredisease #AddisonsDisease #AdrenalInsufficiency #lowcortisol
Found a looooooooong list of prednisolone side effects. Definitely mot reading those! #AddisonsDisease
So Grateful for a “Good Day” but always knowing the rabbit is coming for you…. There is a cost and price to pay 🐇🐇🐇 #MikeyTheDeathDoula #TheRabbit #ChronicIllness #EhlersDanlosSyndrome #AddisonsDisease
NADF Wednesday Q+A. Q: I have Addison's Disease. Do steroids come up as a false positive on a drug test? A: Glucocorticoids used for Addison's disease will not show up on drug testing. Anabolic steroids used by athletes will show up on the drug testing for athletics competition. Dr. Margulies, Medical Director of NADF. www.NADF.us.
Worried about how steroids for #AddisonsDisease impact drug tests? Dr. Margulies advises in this week's Q+A.
What's your question about #AdrenalInsufficiency? Chances are someone else has the same one. It's the giving season, go ahead and ask for two! Email NADFSupport@NADF.us.
NADF Wednesday Q+A: Q: I have Addison's disease. What impact does that have on getting a hysterectomy? Is it safe to get one, and if so, what precautions should I take? Will it impact my Addison's after surgery at all? A: A hysterectomy is a surgical procedure that removes the uterus. It is performed under general anesthesia. The usual preop and postoperative steroid dosing for general anesthesia is used and is safe when performed in a hospital. The gynecologist and anesthesiologist will know what dose to use. After the surgery, the dose of hydrocortisone will be tapered back to your normal dose. There should not be any long-term effect on the Addison's disease or steroid management. Dr. Margulies, Medical Director of NADF.
Having #AddisonsDisease means taking certain precautions when undergoing surgery. In this week's Q+A, Dr. Margulies advises a patient considering a hysterectomy about what to expect pre- and post-op. nadf.us/protocols
Email your questions to NADFSupport@NADF.us
#AdrenalInsufficiency #AdrenalDisease
This is the first clock change since switching from four hydrocortisone doses to a single prednisolone dose, so I'm looking forward to not being a mess all day 🎉
#AddisonsDisease
The #endocrinesociety published this back in July, but... #holyhell an #actualcure might be possible in the next decade or so??? #primaryadrenalinsufficiency may actually be able to be cured??? #genetherapy is so interesting and #scienceiscool #addisonsdisease frequently sucks... a lot
#Disability pays peanuts. Ya'll on that #lowcortisollifestyle are #batshit #cortisol being #tolow is #seriouslydangerous it's actually #moredangerous than having #highcortisol Fuck up your #adrenalglands and you'll end up like me, on #steriodsforlife #addisonsdisease #isntfun
Wednesday Q&A. Q: I have Addison’s Disease and notice an impact in my fatigue during different points of my cycle. I’m curious how my condition will impact my perimenopause and menopause when the time comes. See next slide for answer. www.NADF.us.
Wednesday Q&A. See previous slide for question. A: Addison's disease will not affect the timing of menopause or the severity of menopausal symptoms like hot flushes, sleep disturbance, weight changes, mood swings, and changes in sex drive. However, since these symptoms and physical changes may impact one's sense of well being and energy, there may be times when a slight temporary adjustment in steroid dosing can be useful. It is important to avoid overuse of hydrocortisone extra dosing to prevent unnecessary weight gain. If menopausal symptoms are severe, discuss hormone replacement therapy with your gynecologist. If it is felt to be appropriate for you, Addison's disease is not a contraindication. HRT will usually not require changing the hydrocortisone regimen. In fact, it may help to stabilize the dosing by reducing the swings of menopause. Dr. Margulies, Medical Director of NADF. www.NADF.us
This Wednesday Q + A concerns the impact of #AddisonsDisease on #perimenopause and #menopause. Dr. Margulies advises on this complex issue.
Have questions of your own? We want to hear them! Email NADFSupport@NADF.us or DM us here to let us know what's on your mind.
Well done to my #disabled ass for doing a thing 👏🏻
#weightloss #weightlossjourney #addisonsdisease #adrenalinsufficiency
any med people here? can you have a normal base acth test but an abnormal acth stim test? ive got many addisons symptoms but base test was low normal. and the stim test costs $500 so if its a waste... #addisonsdisease
💁🏻♀️ Primary since 1996 💪🏼🦋
Thanks for thinking of us, JAMA.
#AddisonsDisease
jamanetwork.com/journals/jam...
#t1d #diabetes #addisonsdisease
Just seen this from the NEJM very early days but seems exciting. It also made we wonder if this approach could also be a viable idea for Addisons disease - Primary Adrenal Insufficiency?
www.nejm.org/doi/full/10....
Leaving the country for the first time since being diagnosed with #AddisonsDisease tomorrow. Stashing steroids *everywhere*!
I can't believe it's been 6 years since the worst holiday ever! #AddisonsDisease
Printing out a "Situation de danger mortel" page! #AddisonsDisease
This condition is associated with increased morbidity and mortality, often due to inadequate #glucocorticoid replacement.
There are now case reports of adrenal crisis secondary to #COVID infections, this is the 1st reported case of a new diagnosis of #Addisonsdisease presenting
#Medsky🧪 #IDsky #virosky #immunosky #Publichealth
Primary adrenal insufficiency is diagnosed in ~ 5 people/ mil/ year, it often presents as adrenal crisis. In adults, the most common cause of primary adrenal insufficiency is #Addisonsdisease ( #autoimmuneadrenalitis )
All jokes aside living w Chronic Illness and Chronic Pain is impossible somedays. I may “look fine “ on the outside … but the reality is I’m trying suffering on the inside. #chronicpain #chronicillness #addisonsdisease #heds #kellyrowland #fyp #tredingsong
Planning to give Prednisolone a try tomorrow after hearing about the possibility at the @addisonsdisease.bsky.social Birmingham event 🤞
#AddisonsDisease
Catch up on @giuliabould.bsky.social raising awareness of #AddisonsDisease on BBC's North West Tonight.
Giulia who has Addison's speaks about the impact of being rare on treatment & being prepared for emergencies due to limited medical awareness of adrenal crisis & time-critical treatment req (1/3)
PSA for people with #AddisonsDisease: If you have cold symptoms, it's worth doing a combo COVID/Flu/RSV RAT test.
I've tested positive for RSV. I'd never heard of it before. It can cause pneumonia, fever, dehydration 🚩.
I'm Sick Dosing, upping fluids, monitoring vitals, resting.
@chrismurphyct.bsky.social My sister died because there was no ACA and she couldn’t afford to get her #AddisonsDisease treated. She wouldn’t go on welfare because our oldest sister said she didn’t like that #Welfare was paid with her #Taxes I am a #Medicade user because of being scouted for #Autism
Feeling lucky to have a good endocrinologist. #AddisonsDisease
Today I will mostly be staying at home weeing in a bucket. TMI? #AddisonsDisease
