A Recipe for Asking for Help When You Have a Disability "Humor is the ultimate dipping sauce for everything."

“We never really know what’s going on in other people’s lives. If you want people to begin #understanding your cues, then start paying attention to theirs. Everyone has stuff.”: buff.ly/oilfXym

via @themightysite.bsky.social
#ChronicPain #InvisibleDisabilities #BeKind #DynamicDisabilities #spoonies

How To Improve Movies With Disabled Characters When there is a movie with a disabled character, non-disabled people often enjoy it because they don’t see the inaccuracies that are harmful to the disabled community that disabled people do.…

"A vast majority of #storylines with #disabled #characters are terrible because they either portray #DisabledPeople as inspirational, make us suicidal or are miraculously cured of an incurable #disability.": buff.ly/LgCMQK4

by sarahlynn358
#films #stigma #ChronicIllness #DynamicDisabilities

"For #patients who are battling invisible #pain ..being able to convey where your pain is located, how often it happens, and the depth of discomfort it causes is key.": buff.ly/dEnHQ40

by @carriekellenberger.bsky.social
#fibromyalgia #ChronicPain #ChronicIllness #DynamicDisabilities

Things That Able Me - Longreads Christy Tending | Longreads | February 2, 2023 | 14 minutes (3,768 words) There are things that able me. A chair. One person speaking to me at a time. Shoes that are not cute, but spare me nerve…

"Identifying as #disabled means I stand a chance of getting what I need. Much the way my #pain is not static, being disabled is not a fixed position, necessarily.": buff.ly/BKH71NZ

via @Longreads.com / @christytending.bsky.social
#disability #ChronicPain #ChronicIllness #DynamicDisabilities

How To Accept An Incurable Disability Or Chronic Illness Disability acceptance can be difficult for disabled and chronically ill people because we live in a world that think there is something wrong with disabled people that needs to be fixed. Many disab…

Everyone accepts their #disability at different rates & that is okay because it doesn’t matter how long it takes, and the only thing that matters is that u r putting in the work to get there.": buff.ly/FTO1406

by sarahlynn358
#ChronicIllness #disabled #acceptance #spoonie #DynamicDisabilities

Dynamic disabilities, 2022 Utilizing data from the 2022 Canadian Survey on Disability, this infographic highlights the trends and experiences of persons with dynamic disabilities.

Listen up, Canadians! Apparently, disabilities can be *dynamic* now!
#dynamicDisabilities
www150.statcan.gc.ca/n1/pub/11-62...

##invisibledisabilities #dynamicdisabilities

Invisible Disabilities : How Docs, Patients & Public Can Help - Invisibly Me How patients, doctors & the public can help challenge stigma & make a difference in the lives of those with chronic invisible disabilities.

"But there’s no way of knowing from looking at a person whether they have a genuine need for the #DisabledToilet ..Many of us, including myself with #ileostomy #StomaBag, are already a nervous wreck having to use the #disabled toilet.": buff.ly/nDOj8RI

by invisiblyme
#DynamicDisabilities

The Truth Disabled People Are Tired of Hiding On dynamic disability, invisible illness, and learning to stop faking it.

"I know that as soon as I get out of a #wheelchair & begin to #walk, many people will, at best, wonder what’s going on–or at worst, #assume I must be faking it. I feel gazes follow me: curious, suspicious.": buff.ly/QlRNsjV

by itsmevox
#disability #DynamicDisabilities

“Ableist ideas & beliefs affect people w disabilities in all aspects of life, including employment, healthcare, education, housing, transportation, etc. These ideas & beliefs create systems that discriminate and oppress people w #disabilities.” - Theo W. Braddy ♿️
#chronicillness #dynamicdisabilities

Dynamic disabilities exist. Let’s repeat that. DYNAMIC DISABILITIES EXIST. Some days I’m more disabled & I need more support than others. That doesn’t mean I’m “getting better” or “healed”. It means some days I crash and burn and other days I can push through. #Spoonie #DynamicDisabilities

"But That's Normal For Me" (Why I Mistook Dengue Fever For A Lupus Flare) Dengue fever didn't even cross my mind when I went to the A&E three days later, as I thought that it was 'just' a Lupus flare.

“ #Doctor: “Did you experience any extreme fatigue, nausea, vomiting, bleeding, bruising, head pains, etc?” Me: “But that’s normal for me.””: buff.ly/v885kjl

#ChronicPain #ChronicIllness #DynamicDisabilities #DengueFever

It’s not funny but I just have to laugh at this point. Bad genes bad luck

#disabled #disabledsw #chronicilness #comorbiddisabilities #dynamicdisabilities #DDD #fibromyalgia

Just a heads up to the moots from my personal account. I’ll be posting for #TittyTuesday but I’ll be MIA most of the day. I also have a skin cancer screening on Friday so I’ll be touch and go a few days this week ❤️
#chronicillness #disabled #dynamicdisabilities #disabledsw

A list of 35+ things most people do not know about Ehlers Danlos Syndrome

Ehlers Danlos Syndrome is more than being bendy. 🩵🦓🩵

#EDS #ehlersdanlossyndrome #HSD #chronicillness #chronicpain #raredisease #invisibleillness #dynamicdisabilities #disability

Very sad looking Rooster: missing a lot of feathers!!! "What did you do today?" Me: Survived, I survived.

Every. Darn. Day. 🤪😅
Life with Chronic Illness is no joke, though. 😞🩵🦓🩵

#ChronicIllness
linktr.ee/thezebraalliance

#EDS #ehlersdanlossyndrome #raredisease #invisibleillness #dynamicdisabilities #disability #healthmemes #memes #chronicpain

Disability Terminology And What It Means If You Liked This Post Please Subscribe For Weekly Updates When it comes to disability there are a lot of terms that disabled people can use to identify and there is no term that I can tell you tha…

“I don’t like to use the term #DifferentlyAbled ..because it implies that #disability is bad and that I am not #disabled but it doesn’t matter what terms you choose to use it doesn’t change the fact I am still disabled.”: buff.ly/vkWO7cf

by MyRockinDisabledLife
#awareness #DynamicDisabilities

too many ppl really need be understanding the concepts of #HiddenDisabilities and #DynamicDisabilities like ffs 🙄

The Reality of Dynamic Disability: Progress or Just Another Hurdle? "Oh, so you only use a cane sometimes? Must be nice to be able to turn your disability on and off!"Ah yes, the Olympic sport of explaining your existence to skeptics. If you have a dynamic…

“Instead of debating who “counts” as #disabled, we should be fighting for a world where #accessibility is the default. Because the real problem..is a system that still refuses to accommodate either one.”: buff.ly/nnvsgvz

#inclusion #ChronicIllness #DynamicDisabilities
by @unremarkableme.bsky.social

Chronic Illness: If you ask how I am, and I say good, know that my good is your OK. If I say OK, know that my OK is your bad. And if I say bad, know that means I am struggling to survive and make it through the day - physically, and more likely than not, also mentally. And if I say terrible... you will never hear me say bad or terrible as I don't like to burden people with that knowledge, but that doesn't mean it doesn't happen (regularly).

Do you have a loved one with chronic illness(es)?
Or, can you relate to this? How does this make you feel?

#ehlersdanlossyndrome #eds #chronicillness #raredisease #invisibleillness #dynamicdisabilities #disability #mentalhealth #health

How To Thrive At Working From Home With Chronic Illness Looking for tips on working from home with chronic illness? I've worked from home successfully for 15 years. Let me tell you how I do it!

“Don’t be afraid to call it quits if you’re not well. No one can be #productive when they’re struggling with high levels of pain or illness": buff.ly/kivV71O

by @carriekellenberger.bsky.social
#ChronicPain #ChronicIllness #working #DynamicDisabilities

#DynamicDisabilities are complex and fluctuate and no two days are usually the same.

My disabilities are all dynamic. Lupus, myositis + chronic migraine fluctuates in intensity, flare frequency, progression, symptoms & how it affects me daily.

#disability #chronicillness

The Reality of Dynamic Disability: Progress or Just Another Hurdle? "Oh, so you only use a cane sometimes? Must be nice to be able to turn your disability on and off!"Ah yes, the Olympic sport of explaining your existence to skeptics. If you have a dynamic…

“ #Society loves a simple clear-cut #disability narrative: you’re either #disabled or you’re not. You either need #MobilityAids all the time, or you’re faking it..But for millions of people, ability is not a fixed state.”: buff.ly/qwvDthM

#DynamicDisabilities
By @unremarkableme.bsky.social

Finally had my MRI results. Kinda good news bad news. My condition is now severely in most of my spine (from neck to tailbone) but thankfully as of now it’s just my neck that requires surgical intervention. I’m waiting to schedule some epidural shots to hopefully help with pain and give me some mobility back. And will hopefully get a date for my first surgery by the end of February Thank you for those who’ve checked in/sent well wishes ❤️ I’m keeping the best vibes I can. Taking it One day, one puff and one orgasm at a time 😘 (Context: Degenerative Disc Disease)

Little bit of a health update ❤️ Part of why I’m raising funds is due to complications of my chronic illnesses, this one being a huge factor right now. Just thought I’d let you guys know what I now know
#chronicillness #degenerativediscdiease #dynamicdisabilities

Stereotypes and The Assumptions They Make - Hannah's Hope Stereotypes and the assumptions they make often cause harm or mislead people. Not all disabled people are going to become Paralympians.

“There are also a lot of #disabledpeople who #work and do the things non-#disabled people do. However, #society seems to struggle with the concept of the ‘middle man’, and have these two extreme views": https://buff.ly/3ZGWEaC #DynamicDisabilities

Got a new collapsible cane after using the same (cheetah-print 😎) cane for years… definitely needs some stickers :D suggestions welcome! #dynamicdisabilities #upgrade