Brilliant emancipatory research led by disabled people, promoting new term: #EnergyLimitingConditions. How to describe the experience of people with different conditions, but shared impairments, oppression and exclusion? EG,
#ME/CFS
#LongCovid
#Fibromyalgia

Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept — Hale et al. "The term 'energy impairment' is a substitution for the term 'fatigue' that disrupts many of the impairment typologies used in UK social administration. We contend that current terminology not only fails to capture the embodied experience of, and language used by, people living with chronic illness, but it often actively denies this lived experience."

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Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept

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Screenshot from latest Science for ME weekly update

#EnergyLimitingConditions #Spoonie #chronicillness #Spoonies #ELCI #MEcfs #LongCovid #ChronicFatigue

Current Issue – I J D S J

And if, like me, you struggle with long form reading I recommend the Plain English summary. Gets straight to the point with all the theory stripped out!
Go to Plain English 1 ijdsj.online/current-issue/
#EnergyLimitingConditions #DisabilityInclusion

Abstract The terms “energy limiting condition” (ELC) and “energy impairment”locate the embodied experience of chronic illness into a category of impairment for the purposes of social policy and administration of disability. This article discusses the origins of these concepts in the UK-based Chronic Illness Inclusion Project (CIIP). Selected findings from the CIIP’s mixed-methods participatory research demonstrate how energy impairment, and related terms, arose as a practice of resistance against the invalidation of “fatigue” as impairment, giving rise to a transdiagnostic disability identity, and a strategy for self-advocacy. Theoretical tensions between the rejection of impairment within disability studies and the emancipatory aims of the CIIP are discussed, as well as the political history of fatigue within the disability category. Impairment labels, as a necessary evil, should reflect disabled people’s experience and identity, and further research should uncover their conditions of production.

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Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept

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Sympathetic exploration of topic

#EnergyLimitingConditions #Spoonie #Fatigue #chronicillness #Spoonies #ELCI #MEcfs #LongCovid

Those are the most common, & I also found multiple papers on all the other HM in #energylimitingconditions. But HOW?! I’m not going to sit here & decide because each condition has the same # of problems as aging, the theory’s an automatic win… 13/26

EXCEPT in #energylimitingconditions, whammo – signs of aging set in over months, even weeks; many symptoms are surprisingly similar to old age, pts can suddenly feel 85yo. There is evidence for nearly all 12 hallmarks in #LongCOVID & #ME, & (despite little study) some in #FM, #PTLDS. 9/26

Longevity Research: Could it Turn Back the Clock in long COVID and ME/CFS? - Health Rising Researchers propose that long COVID and chronic fatigue syndrome (ME/CFS) cause accelerated aging and that longevity treatments will help.

There’s so much scattered research on #energylimitingconditions that I’m collating as much as I can - working one by one thru a list of 48 hypotheses that might explain how they work.
#3: ACCELERATED AGING, 1st heard of this via Health Rising: tinyurl.com/3c6e53mn #LongCOVID #pwME #FM 1/26

Stress and the Individual Objective:  This article presents a new formulation of the relationship between stress and the processes leading to disease. It emphasizes the hidden cost of chronic stress to the body over long t...

There’s so much scattered research on #energylimitingconditions that I’m collating as much as I can - working 1 by 1 thru a list of 48 hypotheses that might explain how they work.
#2: ALLOSTATIC OVERLOAD. Maybe doing too much, too long is bad 4u: tinyurl.com/vahpahm6 #pwME #GWI #MCS #MCAS 1/10

Beyond the symptom: the biology of fatigue A workshop titled “Beyond the Symptom: The Biology of Fatigue” was held virtually September 27–28, 2021. It was jointly organized by the Sleep Research Society and the Neurobiology of Fatigue Working ...

There’s so much scattered research on #energylimitingconditions that I’m collating as much as I can - working 1 by 1 thru a list of 48 hypotheses that might explain how they work.
#1: SLEEP TROUBLE. Symposium on how it could cause fatigue: tinyurl.com/bd7juwrn #LongCOVID #pwME #FM #GWI #Lyme 1/5

One of our PGRs @louisekenward.bsky.social is presenting at this forthcoming symposium later in the month...

#disability & #fairytales #AcademicSky #healthcare #energylimitingconditions

Yes, still pushing exercise for #CFSME #EnergyLimitingConditions despite medical evidence of harm.
See also: Increase in ads for vagal tone / tapping & somatics as *cures*.
Beyond frustrating as 1: only helps so much 2: discredits the good it does 3: It's horrendous gaslighting. #SomaDiversiity

Account. Trying to explain a life with energy limiting conditions.

ACCOUNT.

This week in my blog I tried to find a way to explain what living with an energy limiting condition can be like. Did I succeed? Could be done better? How?

flyingthroughthewoods.weebly.com/flyingthroug...

#EnergyLimitingConditions #ChronicIllness #FluctuatingConditions #InvisibleIllness