When your life is not living, but you don't want to die.

#chronicillness #immunosuppressed #isolated #goinginsane

So as an #immunosuppressed woman w/a family of immunosuppressed people (husband, son & daughter-in-law) I guess we’re just supposed to wear masks for the rest of our lives now? Or not go anywhere? Or risk dying? It is so frustrating & infuriating how little this admin cares abt science. And people.

So I almost never shop at Walmart. Literally 2 times in 10+ years. I saw something that said they had inexpensive n95 masks. 240 3m 1870+ masks for $9.99. Not sure if it is a mess up or what.
#nurses #healthcare #medicine #doctors #immunosuppressed

#immunosuppressed

Two men fell gravely ill last year; their infections link to deaths in the ’80s The bacterium is known to live in Mississippi, but the new cases may expand its range.

#medsky #immunosuppressed

Yet another infection source found lurking in warm US soil.

Two men fell gravely ill last year; their infections link to deaths in the ’80s - Ars Technica
arstechnica.com/health/2025/...

@cavuhb.bsky.social #PatientExperienceTeam - huge diolch to the #CAVGP #OutofHours and #Tesco #Penarth #Pharmacy.
Waking with yet another infection, such amazing and timely response from 111, from #CAVGP #OutOfHours and #Tesco #Penarth #Pharmacy. Diolch!
#lupus #immunocompromised #immunosuppressed

Wasn't it the #MAGAs who were trying to make masking in public places illegal? The argument was that they could be #terrorists trying to hide their identities from facial recognition.

As I recall, they were demonizing #immunosuppressed for wearing masks in densely packed spaces like #subways.

Opportunities for rhinovirus-targeted RNA therapeutics: A narrative review Rhinoviruses (RVs), first identified as common causative agents of the common cold, are now recognised as significant contributors to exacerbations of chronic respiratory diseases (asthma, chronic obs...

📣 If you think #rhinovirus only causes colds, think again.
These viruses play a role in #COPD, #asthma, CF, #immunosuppressed..
Historically, not much we could do.
But now, #RNA based technology is here.
Review by Esneau et al.
#IDSky #MedSky #clinmicro #immunosky

www.cmi-comms.com/article/S295...

New international standard for monitoring the immunosuppressed defined in global study led by Oxford researchers A major international study led by the Nuffield Department of Primary Care Health Sciences has developed a new, globally agreed approach to identifying and monitoring immunosuppressed adults at risk o...

📢 A new globally agreed approach to identify & monitor #immunosuppressed adults most at risk of severe COVID-19 has been developed by Oxford-led researchers.

The system gives a clearer picture of who is most at risk, improving disease surveillance, resource use & #PublicHealth decision-making.

#5amwritersclub
#writingcommunity
#AuDhd #cancer #immunosuppressed
#DisabilityRights

Following a wretched morning explaining why I require virtual access to an event. Organiser commented "You look alright to me." I thought I'd post the following.
NOT ALL DISABILITIES ARE VISIBLE!

Well, kidney surgery recovery was ok until Wednesday. I’m in urgent care with what looks like a kidney infection. Waiting on the rest of the labs to see, and then I’ll get meds. Not the news I was hoping for, but it explains my symptoms. #immunosuppressed #medicallycomplex #zebra #chronicallyill

card with red border, and a slightly cross stickman with arms out in 'back off' gesture towards a second stickman blowing it's nose and having a hot drink. Text: “Please don’t come near me if you are unwell. Even if it’s ‘just a cold’. My body struggles to fight infections. Illnesses that are mild for others can be very severe for me.”

Please remember: even if it's 'just a bit of a cold' to you, it can be a significant illness for someone who is #ImmunoSuppressed or #ImmunoCompromised It is vital to take any requests they make around illness seriously - not to visit if you are unwell, wearing a facemask, or anything else.

If you're not masking, you're cherry picking which vulnerable people are worth caring about, & you've decided the disabled & chronically ill are not worth it. #Ableism

www.youtube.com/shorts/R0bOj...
#Covid #Disability #CrohnsDisease #Fibro #ChronicIllness #MaskUp #StillCoviding #Immunosuppressed

#NEISVoid, #ChronicIllness, #Immunosuppressed folks,

Any advice or recommendations?

As an #immunosuppressed person, this is terrifying. #autoimmunedisease #chronicillness

Meme showing RFKJr’s corroded & deeply horrifying profile with these words: “RFK JR., A MAN WHO HAS SPENT 40 YEARS ERODING SCIENTIFIC TRUST, ERASING PUBLIC HEALTH, SPREADING CONSPIRACY THEORIES, AND MAKING MILLIONS OF DOLLARS FROM THOSE ACTIVITIES IS GOING TO BE THE NEXT HHS SECRETARY. THIS IS BEYOND HYPOCRISY. THIS IS DANGEROUS. FOR US, FOR THE PLANET, FOR THE FUTURE OF SCIENTIFIC INQUIRY, FOR OTHER COUNTRIES AROUND THE GLOBE. THIS WILL CAUSE IMMEDIATE AND FUTURE HARMS. FOR SO MANY PEOPLE. AND THAT IS NOT HYPERBOLE. IMMUNOLOGIST & MICROBIOLOGIST ANDREA LOVE, PHD @DR.ANDREALOVE”

Roses are terrified
Violets are stressed
Happy V-Day from one of
The Immunosuppressed.

#rfkjr #publichealth #immunosuppressed #hearttransplant #hearttransplantrecipient #health #hhus #sechhs

But they will take innocent people with them #immunosuppressed

Learning lessons from the COVID pandemic…we could do SO much better. We must mitigate, vaccinate, and communicate...

Learn the Lessons...

substack.com/app-link/pos...

#LearnTheLessons #Covid #Pandemic #LearnFromCovid #LearnFromCovidPandemic #mitigate #Vaccinate #communicate #ventilate #wearmasks #immunosuppressed #careforbabies #careforelderly

As an #immunosuppressed person with multiple #autoimmune diseases who regularly deals with being disbelieved and penalised for so-called #invisibleillness, this is more terrifying & tiring than baseline 😨

[Neither a complaint nor a pity party, just an invitation to understand #Spoonie realities.]

Thread sharing screen captures of (pre-Trump II) CDC vaccination schedules still available as of today. We'll see if these remain available through the Trump administration... www.cdc.gov/vaccines/imz...
#Immunocompromised #AAFP #ACP #CDC #immunosuppressed #immunodeficiency #leukopenia #neutropenia

Delighted main #MelodyStudy finally out - took a while (the pain of accessing data!!) but worth the wait. Major learnings for protecting #immunosuppressed not just from COVID but future infections.

Truly joyous collaboration brilliantly led by @mkwillicombe.bsky.social 👏🏻👏🏻

This whole day makes me sick. I’m not surprised, but I am truly horrified.

As an #immunosuppressed, #chronicallyill #asthmatic this is terrifying. 😳

As an #immunosuppressed person with chronic #autoimmune diseases, this is a real personal threat.
Again, #animalagriculture is a huge contributor 🤨

"70% of all antibiotics are given to livestock, creating a pool of animals in which resistance can evolve"
#antibiotics #superbugs #AMR #criphumanimal

It was only a little mark on my nose but fortunately #dermatology picked it up & today the cancer has been removed using Moh’s surgery technique. Feeling sore but deeply grateful to the #NHS for swift treatment. Always worth getting checked, esp if #immunosuppressed and it doesn’t look right.

B&W Cartoon of group of persons standing behind a corner. 1st in line is holding a broom stick to the handle of a half open door a bit further away that says '2025'.

#partypooper 😉
Don't feel there's much to celebrate🎉 & don't want to say meaningless commonplaces. When we all now there's no 'Happy New Year' ahead 😓 #genocide #climate #extremism
And on a personal level: feeling like sh¡t and fed up with being #immunosuppressed #autoimmunelife
Love you all tho 😘

Top half is pic of empty sky and bare treetops. Bottom a blurred pic of smiling woman. Text: MARION MOLTENO If you can walk you can dance Shortlisted for the Commonwealth Writers' Prize 1999

Ooh, I'm halfway through my 99th book of 2024. Should reach the magic 100.
This one is a beaut. 'If you can walk, you can dance'.
Reading is one of the joys of hermitting while the rest of the world shares their germs freely.
💙📚 #booksky
#immunosuppressed 😷

Quite a long article, but very interesting.
And hitting close to home too,having 2 #autoimmune diseases and taking one of the drugs mentionned 😔 #autoimmunelife #disabledvegan #chronicallyill #immunosuppressed

Remembering how I caught #RSV from an infusion nurse. Then caught #COVID from an infusion nurse AS SOON AS I WAS HEALED FROM RSV. Literally my first infusion after. This was in a cancer center (I don’t have cancer but am #immunosuppressed). Then I got pneumonia. I barely stayed out of the hospital.

We had a LOT of requests for a card to help other ppl accept our wearing a mask - and we updated it just recently too. This is the end result: #COVID #Immunosuppressed #Immunocompromised #LongCovid https://buff.ly/3CXD00C

In addition to freelancing, I sub at a school occasionally. I’ve worked 6 of the last 9 school days, so of course I’m sick when I am supposed to be making Thanksgiving dinner in 12 hours. Who could have seen this coming? #immunosuppressed