if you have MS you know the exact moment a good day turns 💔
has this ever happened to you? 👇
#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms
nobody talks about mourning the version of you that existed before MS 🧡
type ME if you know exactly who she was 👇
#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms
And that part…
is exhausting in a completely different way.
So tell me—
Comment YES if this feels familiar… or NO if it doesn’t.
#multiplesclerosis #ms #mscommunity #livingwithms #mswarrior #mslife #msjourney #invisibleillness #mssupport
you are not lazy. save this for the next time someone says you are 🧡
#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms
your neurologist has 12 minutes. MS has the other 525,948. 🧡
comment YES or NO — did yours explain everything you needed?
#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms
Excellent walk today. My #MS had me a little wobbly, but I met FOUR new neighborhood #dogs. My favorite is when I ask the owner if I can pet them and they say, "You can try, she's really shy," and then we become best friends.
#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
If I respond or type stuff that's misspelled or sentences missing words, I apologize in advance. It's one of those migraine | head ringing | vertigo days.
#MSLife
Good #MS day. Had a nice, long (for me) walk, including a visit from my favorite neighborhood #cat. I've never had a direct effect on symptoms from my Ocrevus infusion before, so maybe it's in my head. In any case, I'll take it.
#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
It's #ocrevus infusion day. My MS has been on the bad side, so I'm curious to see if I'll feel better after this. I always refuse the steroids, so any improvement will be from the actual drug.
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
The hardest adjustment is not always physical — it’s learning to live without the version of yourself you once depended on.
👉 More at livewithms.com
👉 Share this
#ChronicIllness #MSLife #LiveWithMS
Thank so much for sharing my #MSLife feed, if you ever see good sources or profiles I should add, let me know. Much appreciation and hope everyone is having a nice Sunday!
Hey @maggiegreen.bsky.social welcome! 🙂
#MSLife: bsky.app/profile/did:...
And the Feed For MS folk
bsky.app/profile/did:...
Are my bookmarks. There's 100's if not 1000's of awesome folk there from across the Globe 🙂
Research shows that physical activity can support muscle function, nervous system health, and long-term quality of life.
This changes how we think about MS care.
#MSFacts #MultipleSclerosisAwareness #BrainHealth #ChronicIllnessSupport #MSLife #NeuroWellness #LiveWithMS
The thing they don't tell you about MS is that coffee becomes almost literally a life-saving drug #MSlife
🧡 Protect your energy.
Have you ever had to choose your capacity over someone else’s expectations?
#livewithms #multiplesclerosis #mscommunity #chronicillnesssupport #mslife #invisibleillness
5 Try:
• shorter plans
• quieter environments
• leave early before symptoms spike
• one “big” plan per week
6 You don’t owe anyone access to your nervous system.
7 More support at livewithms.com
#LiveWithMS #MSLife #InvisibleSymptoms #ChronicIllnessSupport
Yesterday the cane came in handy. I was in a store with no public bathrooms. I found a young male employee (hoping he'll see me like his mom) and asked to use the employee bathroom, holding the cane in front of me. Never fails.
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
Your diagnosis did not shrink your future.
It reshaped the way you approach it.
And that is growth.
More at livewithms.com
#LiveWithMS #MSLife #MultipleSclerosis
A friend in her 50s with MS is having an abominable menopause reaction to her MS. She's off all medications now because each one one after another made her so miserable and apparently she can't find a gynecologist who knows anything about MS what are some potential resources for her #MSLIFE
Diagnosis may change your plans.
It does not erase your ambition.
It does not erase your capability.
It asks you to redesign — not disappear.
livewithms.com 🧡
#LiveWithMS #ChronicIllnessStrength #MSLife
The hardest part after diagnosis isn’t the label.
It’s learning to trust a body that feels unpredictable.
Confidence doesn’t return all at once.
It returns when knowledge replaces fear.
livewithms.com 🧡
#LiveWithMS #InvisibleIllness #MSLife #RebuildingTrust
Confidence after MS isn’t automatic.
It’s rebuilt slowly.
livewithms.com 🧡
#LiveWithMS #MSLife #InvisibleIllness #RebuildingStrength
Early bedtime routine — even if sleep isn’t perfect.
More at livewithms.com
#LiveWithMS #MSLife #NervousSystemSupport #MSAwareness
Local hospital is reducing MRIs to every 2 years instead of annually & only sending MRI result letters if there’s been a change/concern
What’s the position in your NHS trust if you’re in the UK?
#MSFriday
#MSLife
Morning #MSLife pro
How goes it? If it goes?
5 Emotional Habits That Support MS Stability
1️⃣ Scheduled rest
2️⃣ Reduced stimulation
3️⃣ Early boundaries
4️⃣ Fewer decisions
5️⃣ Compassion over criticism
Resilience is structured, not accidental.
livewithms.com
#LiveWithMS #MSLife
MS doesn’t just challenge your body.
It challenges your sense of certainty.
And still — you adapt.
That’s resilience.
livewithms.com
#LiveWithMS #InvisibleIllness #MSLife
5️⃣ You feel guilty for needing space.
Emotional fatigue with MS is real.
Understanding it is the first step to managing it.
More education at livewithms.com
#LiveWithMS #MSLife #EmotionalHealth #MultipleSclerosis #ChronicIllnes
MS may change your body —
but it does not erase your capability.
🧡 Support that understands MS at livewithms.com
#MSLife #LiveWithMS #ChronicIllnessStrength #InvisibleSymptoms #MSCommunity
