Tulpenstrauß mit Osterhase und Osterei
Frohe Ostern 🐣
Für viele mit #MECFS #LongCovid #PostVac #PAIS ist ein gemeinsames Osterfest keine Selbstverständlichkeit.
Umso mehr wünsche ich allen #pwME ein symptomarmes, erträgliches Fest mit etwas Teilhabe 💛
#millionsmissing #learnaboutme #chronicalillness
I'd also like to talk abt the fact roughly 300 are STILL DYING OF COVID EACH WEEK IN THE USA, which is likely an undercount
& scores more who suffer lasting impairment, disability, & loss of work, home, quality of life due to long covid
Millions missing
#MillionsMissing
#LongCovid
#CovidIsNotOver
2026 Millions Missing storytelling workshops scheduled for April 14 and 16 at 4 pm ET, with dates circled on a calendar. Text: Save the dates! Storytelling workshops April 14 and 16 at 4 pm ET. Two dates/same format. Register now!
Register now for either of our #MillionsMissing Storytelling workshops coming up on April 14th and 16th at 4 pm ET. For anyone wanting some guidance and help crafting your story!
April 14 https://ow.ly/AX0650YCSEj
April 16 https://ow.ly/uy7250YCSEh
#FrailAndFurious
Donations for Nevra's hospital bills, rent, and mold remediation have stalled. Please consider donating, liking, commenting, and sharing
paypal.me/SaveLizNevra
gofundme.com/f/save-nevra
#SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #MutualAid
The tens of millions of us w/ #MyalgicEncephalomyelitis & now the tens of millions more w/ #LongCovid can't launch an ACT UP-style protest--& I wish we could--b/c most of us are far too ill to get there.
So here's what you need to know about this year's #MillionsMissing theme, Frail and Furious:
New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person. MEAction logo is a circle with the text #MEAction in the circle.
This #MillionsMissing, we are #FrailAndFurious!
Injustices are happening worldwide because ME is not taken with the seriousness we deserve.
Let's come together to show the world how devastating this disease is.
Join the fight: millionsmissing.org
#pwME #LongCovid #MECFS
#MillionsMissing 2026 time! www.meaction.net/millionsmiss...
This #MillionsMissing, we are FRAIL and FURIOUS! Injustices are happening to people with ME & Long COVID around the world. Myalgic encephalomyelitis (ME) is not taken with the seriousness we deserve.
More info: www.meaction.net/millionsmiss...
Video introduction: youtube.com/shorts/T3amp...
www.bbc.co.uk/news/article...
The more articles like this appear, the more we will be accepted as individuals who have a debilitating illness.
We need help, and we need society to help us.
The more publicity, the better.
#ME #CFS #millionsmissing
Palm cross leaning against a picture in a frame. The picture is typography and it says, "Punk priest".
On God alone my soul in stillness waits.
This Palm Sunday, remembering the #MillionsMissing - those who have ME/CFS
Thank you for remembering us. #MillionsMissing #disability
If you haven’t already, please add your name to this letter to state medical boards urging them to address the education gap on MECFS and to add knowledge of this debilitating condition to licensing requirements.
#MECFS #MillionsMissing
Please learn about the #MillionsMissing and their extreme need for caregiving support, sometimes accessed through Medicaid, which is currently at risk
Wir finden: Das Warten muss ein Ende haben. Setze mit uns ein wichtiges Zeichen für ME/CFS und unterstütze uns bei unserer Aktion am 09.05.2026 um 14:00-16:00 Uhr am Platz der Menschenrechte in Wien!
#unversorgtseit1969 #MECFS #MillionsMissing
2/2
Six years ago, last night.
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask
Wir freuen uns auch, wenn ihr uns am 09.05. 14:00-16:00 Uhr am Platz der Menschenrechte in Wien
besucht!
#unversorgtseit1969 #MECFS #MillionsMissing
3/3
.. als Oma vor ein paar Wochen schrieb (in den extrem seltenen Nachrichten) “und liegt Schnee?” Und Kind dann mich fragte und um ein Foto vom Garten vorm Zimmer bat. #ME/CFS #MillionsMissing
Pacing and management guides from #meactnet.bsky.social
#mecfs #chronicillness #disability #MillionsMissing #healthcare
Måske I kunne lave en lille afdeling for ME-børn. Det er så hjerteskærende at Sundhedsstyrelsen ikke vil se dem.
#millionsmissing
“Missing from … my childhood”
www.shutterstock.com/editorial/im...
Postet euer Video gern zusätzlich am 12. Mai auf euren eigenen Social-Media-Kanälen. Benutzt die Hashtags #unversorgtseit1969 #MillionsMissing und taggt uns, damit wir es teilen können. Danke 💛
💙 Euer ÖG ME/CFS-Team
#ME/CFS #unversorgtseit1969 #MillionsMissing
4/4
Achtzehn Millionen (!) Menschen - allein in den USA - leiden an den Folgen einer Corona-Infektion.
#CovidIsNotOver #LongCovid
#MillionsMissing
Long COVID by the numbers:
400 million people affected worldwide
200+ documented symptoms
10–26% of COVID survivors develop it
0 FDA-approved treatments
6 years and counting
Read that last one again.
#LongCOVID #LongCOVIDAwareness #MillionsMissing
700–1000 Personen demonstrieren vor dem Parlament in #Wien anlässlich des Long-Covid-Awareness-Tags mit MUT für ein besseres Gesundheitssystem, Versorgung und Anerkennung für alle Betroffenen von #Long Covid, #MECFS oder anderen #PAIS.
#mecfs #longcovid #postcovid #millionsmissing
#LongCovidAwarenessDay
#millionsmissing
I was a teacher with a rich and active life. Now, thanks to #LongCovid, my days look like this:
Ja, da er fru Landmark igang igjen.
#ME #pwME #millionsmissing #actionforME #MyalgicE
www.forskersonen.no/kronikk-me-m...
A post for Long-Covid Awareness Day.
www.facebook.com/100061511663...
#LongCovidawaressday #LongCovid #PAIS #IACI #pwme #millionsmissing
279 million people - from my ME/CFS photo project
glass.photo/andrewgiffor...
ALT: Colour photo of a rotund green-blue-grey pumpkin on a counter top, looking a little like a planet
#Photography #MECFS #pwME #LongCovid #MillionsMissing #LongCovidAwarenessDay
Today is my coronaversarry. Six years straight of being sick with Covid/long Covid.
Terrible irony to be sick again for it
Just trying to keep breathing
#Covid
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#ME
#CFS
#PASC
#POTS
#MyalgicEncephalomyelitis punishes me for being #human. I was curious and stubborn and intelligent and caring, but I'm not allowed to be that person anymore. I have to choose not to think too hard, or this #illness will choose that for me.
#severeME #millionsmissing #spoonie
