Alt-text: A light rectangular background framed in red flowers of various shades. A photo of a Black woman with long hair, glasses, and wearing cat ears sits on the top right side of the rectangle. Text, in red and blue, reads: Care for Mae in April $1750 Rent: Due 4/1 $250 Biopsy: Past Due* (asterisk) As Mae continues the process for SSI approval, and having constant medical flares, she's unable to advocate for herself, leaving urgent needs unmet. We call on community to step in and close the gap. Due to an eviction scare last month, it's critical she's on time for April. Ways to help: $maelee21 V: @ Maelee-Johnson PayPal.me/maeleeJ ko-fi.com/maedaej (asterisk) Payment required before further medical treatment is rendered.

Without your help "chere" - ing and uplifting this urgent need I won't possibly make my goal in time!

Every interaction and every $1 makes a difference!

$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej
#HelpSky #FundSky #MutualAidVoid #neisvoid #mecfs #DisCo

of #AnimalControl just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#comedy #spoonie #ForTInu #neisvoid #DisCo #cannabisculture #ChronicPain

Someone who suicides is not weak. They're someone who lost a battle with a relentless opponent they can never fully escape. Honor their struggle - they deserve Valhalla as much as any berserker (though they might be more at home in one of the many other Norse afterlives).
#NEISVoid #Suicide

A memorial-style poster on a teal background with white text, two white doves holding olive branches, a crying zebra illustration, and a photo of two people standing together at an indoor event. Text on the poster says: EDS Awareness Ehlers-Danlos Syndromes Remembering EDS champion: Dr. Grahame 1932 - 2026 chronicpainpartners.com In the photo, Dr. Grahame, an older light-skinned man with short gray hair and glasses is wearing a light beige jacket over a blue striped shirt. Next to him is Jan Groh, a light-skinned woman with short dark hair and glasses wearing a patterned dress and a scarf, with visible forearm supports/braces and a blue-handled mobility aid. Two small candle illustrations appear near the bottom corners.

Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026)

www.chronicpainpartners.com/remembering-...

#EDS #EhlersDanlosSyndrome #hEDS #HSD #Zebras #Medicine #Doctors #NEISvoid

the times i lie here crying wondering why pain meds do not last long enough

#NEISvoid

Likes and comments boost the visibility of posts on LinkedIn.

If you are a #pwME, a member of the #NEISvoid, or just someone who values quality improvement studies in complex diseases, please visit this post on LinkedIn and share or leave a comment there:

www.linkedin.com/posts/jaime-....

I'll press on, even when things seem insurmountable. I know those in power count on people like me not having the resources to fight, and that's why this case is so important. as long as I am alive and breathing, I will not give up.

www.gofundme.com/f/help-morie...

#NEISvoid #disabled #signalboost

#NEISVoid

#JuryDutyPresentsCompanyRetreat is playing in the #ChronicLoaf stream this morning

mzelo.com/app/rooms/ch...

#comedy #spoonie #ForTInu #neisvoid #cannabisculture #ChronicPain #wakenbake #medicalmarijuana

Live it up, for tomorrow we die
(But responsibly, so there will be people left to rebuild) -Owen the Cripple (me)
#NEISVoid

Today in Fun With Chronic Illness
My kid's GP, the guy who told them to make a new appointment at the last appointment because he couldn't deal with all their issues at once, greeted us with "what do you want now because I'm getting tired?" #NEISVOID #CHRONICILLNESS

Alright my Autistic Dino nuggies comrades, here is a very important PSA affecting our community

#NEISvoid

April 2019: Tiring First Quarter Being Muggle Sick It's been a tiring year so far for me, with 'normal' illnesses in addition to 'regular' chronic pain. I will need some calm this April 2019.

"When u get ‘normal’ #sickness on top of your ‘regular’ daily #ChronicPain, life can feel like a chore in itself. Like rotten garnishing to your usual stew of issues. Getting out of bed now takes not just double the effort, but triple.": buff.ly/fP3sN1x

#ChronicIllness #NEisVoid #disability

#Renfield, a Dracula movie of sorts, just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#neisvoid #comedy #horror #ForTinu #spoonie #MutualAidMovies #wakenbake

Do people still use #NEISvoid? Because that's where I am at

I only slept four hours last night, but I’m staying up until 2am so I can take more acetaminophen. I’m in so much pain right now ( #Painsomnia ), but Ik if I don’t stay up, I’ll be in even worse pain come the morning 🤕

#NEISVoid #Disabled #Disability #Insomnia #ChronicPain #EDS #Fibromyalgia

I’m up to 13 medical phone calls for the week and there’s still one more day to go. Being disabled takes so, so much time and energy… energy that we often lack as a side effect of being, ya know, disabled 🫠

#Disability #Disabled #ChronicIllness #ChronicallyIll #Spoonie #NEISVoid #EDS #TubeFed

S1E1 of #Physical100Asia just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#realityTV #cannabiscommunity #insomnia #DisCo #ForTinu #spoonie #neisvoid #ChronicPain

In case it helps anyone:

I'm a chronically ill/disabled veteran, and I use a shower chair because sometimes I don't have the energy to stand up for a shower.

It's okay to need and use accommodations.

#NEISVoid #Disability #Veteran

Season 4 of #LoveontheSpectrum is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#neisvoid #mecfs #DisCo #ForTinu #spoonie #cannabisculture #neurodivergence

pain = pissy mood #NEISvoid

Please help the amazing and wonderful @maedayj.bsky.social! #HelpSky #MutualAid #NEISVoid

#NEISvoid
For those with varied allergies, when you're given forms that ask abt your allergies, what do you write?
The most severe? The allergens & your reactions?

And how do you narrow down specific allergens? I just figured out I'm reacting to my 1000 vit c, but is it the rose hips or a filler?

a cartoon character is covering his eyes with his hands . ALT: a cartoon character is covering his eyes with his hands .

I HATE how Medicare only covers spine adjustments, not knee, elbow, wrist, ankle, or foot, ALL of which I need. Since when are those not my body? Depending on cost, I may pay for those OOP, or just go without. Fuck Medicare for all. UGH. 🙄😒 #spoonie #chronicpain #disability #medsky #neisvoid

a woman in a black dress is dancing in front of a crowd of people ALT: a woman in a black dress is dancing in front of a crowd of people

It's almost time for a little #DanceBreak in the #ChronicLoaf stream

Hop in and decompress with us @ mzelo.com/app/rooms/ch...

#ThrowbackThursday #NEISvoid #DisCo #ForTinu #spoonies #cannabisculture #music #mecfs

Alt-text: A light rectangular background framed in red flowers of various shades. A photo of a Black woman with long hair, glasses, and wearing cat ears sits on the top right side of the rectangle. Text, in red and blue, reads: Care for Mae in April $1750 Rent: Due 4/1 $250 Biopsy: Past Due* (asterisk) As Mae continues the process for SSI approval, and having constant medical flares, she's unable to advocate for herself, leaving urgent needs unmet. We call on community to step in and close the gap. Due to an eviction scare last month, it's critical she's on time for April. Ways to help: $maelee21 V: @ Maelee-Johnson PayPal.me/maeleeJ ko-fi.com/maedaej (asterisk) Payment required before further medical treatment is rendered.

$260 raised since yesterday! Only $782 more needed for my housing goal‼️

Please help me get this done by tomorrow! Before my landlord begins the eviction process🙏🏽

$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej

#helpfolkslive #NEISvoid

"Julia & Jacques Cooking at Home" is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#neisvoid #mecfs #DisCo #ForTinu #spoonie #cannabisculture #ThrowbackThursday #mecfs

This means, by Sunday, or possibly Monday, I’m gonna end up too sick to get out of bed b/c this one thing took so much more energy than I accounted for.

And all because big box stores suck ass in different and competing ways. Anyway, most of this is just a complaint to #NEISVoid,

#NEISvoid #CFS #ChronicPain

"Star Trek III: The Search for Spock" is starting now in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#StarTrek #neisvoid #mecfs #DisCo #ForTinu #wakenbake #spoonie #ThrowbackThursday #MutualAidMovies