Image of Hambleden Wing at King's College Hospital lit up purple.
💜 Sunday was #PoTSAwarenessDay. To show our support, we lit up the Hambleden Wing purple.
PoTS is a condition where the heart rate increases abnormally after sitting up or standing. Common symptoms include dizziness, light-headedness, and fainting.
Learn more ➡️ tinyurl.com/3u9xejks
💙 Aujourd’hui, pensons à toutes celles et ceux qui vivent avec le #POTS.
Leur force est immense, même quand leur corps les trahit.
Continuons à informer, soutenir, et espérer des avancées scientifiques.
#POTSawarenessDay #POTSawareness #Dysautonomia #Apresj20 #CovidLong
White ribbon on teal background with the text "Today is POTS Awareness Day" in bold white letters.
Today is POTS Awareness Day.
We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID.
Look back at this month’s posts & next week for more.
#POTSAwarenessDay #POTS #MECFS #LongCOVID #OI
Local teen’s first full-length documentary, “Chronically,” about 5 teens’ journeys with #chronicillness, debuts in virtual program at the Awareness Film Festival in LA, starting Oct 27.
#chronicillnessawareness #potsawarenessday
#indiefilm #film #filmmaking #seeitbeit #childhealth #pediatrics
I share my story so future patients, maybe you or someone you love, won’t have to face the same battles.
People with PoTS already have enough to deal with.
Getting help shouldn’t be this hard 💜
#PoTSAwarenessDay #PoTS #LongCovid #DisabilityAwareness
A collage of nine photos showing life with PoTS (Postural Orthostatic Tachycardia Syndrome). 1. Colourful weekly pill organisers filled with medication. 2. A pulse oximeter showing SpO₂ 89% and heart rate 152 bpm. 3. Helen sitting on a mobility scooter outdoors, carrying shopping. 4. A backpack resting on a four-wheeled walker. 5. A smartwatch alert reading “Abnormal High Heart Rate Detected.” 6. Two boxes filled with prescription medications and bottles. 7. A pulse oximeter reading SpO₂ 99% and heart rate 141 bpm. 8. Helen v unwell at an appt, lying on a medical examination couch, having her heart rate & blood pressure checked. 9. A fitness tracker graph showing heart rate data throughout the day, with peaks around activity.
Today is #PoTSAwarenessDay 💜
I have #PoTS as part of my #LongCovid — and it’s given me my most debilitating symptom: constant lightheadedness & presyncope.
For the last 5 years, I’ve felt like I’m going to pass out every time I move. It’s been hellish.
🧵👇
...
Immer wieder, dass ich gar nicht stehen kann!
Die meisten Ärzte kennen es nicht!
Häufige Komorbität von #MEcfs!
#PoTSAwarenessDay
Heute ist #PoTSAwarenessDay ❗
Habe ich fast mein ganzes Leben mehr oder weniger.
Es wird immer noch nicht bei #GdB berücksichtigt ❗
Hab noch nie verstehen können, dass Leute einfach so stehen können, ohne zu leiden.
Nicht das ☙ ist das Problem, sondern Sauerstoffmangel im 🧠 ❗
...
A cartoon of a person surrounded by a list of symptoms of POTS
Today is #POTSAwarenessDay This is truly debilitating. Combined with #MECFS it's a recipe for chaos. Overreaction (or under-reaction) and paradoxical responses to normal life. It affects people differently. You lose trust in your body. There are some treatments but no cure.
IMAGE DESCRIPTION: An image of the person from the PoTS UK video. Title: PoTS UK Information Video. N.B The information in the video surrounding exercise would need to be modified for people with ME/CFS in relation to pacing, activity and energy management. PoTS UK Logo (top right).
It's #PoTSAwarenessDay (25th Oct 2025)
POTS UK has an excellent explainer video about PoTS here:
https://www.youtube.com/watch?v=XoKmJA-onqg
N.B The information in the video surrounding exercise would need to be modified for people with ME/CFS in relation to pacing, activity and energy management
Purple gradient to white from left to right graphic featuring concentric circular spiral signifying dizziness. Text in white and purple on the spirals reading: “Covid uncovered what too many already knew — PoTS changes everything.” At the bottom, the Long Covid SOS logo appears in white on the left, with the text “PoTS Awareness Day 25th October 2025” on the right in purple.
💜 It’s #PoTSAwarenessDay 2025
#Covid uncovered what many already knew — #PoTS changes everything.
Many with #LongCovid are now being diagnosed with #PoTS — causing dizziness, brain fog, racing heart, fatigue + more.
💬 Have you been diagnosed after Long Covid?
On PoTS Awareness Day, we highlight Postural Orthostatic Tachycardia Syndrome (PoTS) and its frequent co-existence with Myalgic Encephalomyelitis (ME)
Postural Orthostatic Tachycardia Syndrome (PoTS) - Awareness Day 25th October and its frequent co-existence with Myalgic Encephalomyelitis #mecfs
www.europeanmealliance.org/news-Q32025-...
#PoTSAwarenessDay #research #EuropeanMEAlliance
We're lighting the Cathedral Tower purple tonight, Saturday 25 October, for Postural Tachycardia Syndrome (PoTS) @potsuk. PoTS can be life altering but not many know it exists. Find out more at https://www.potsuk.org
#PoTSUK #PoTSAwarenessDay #LightingUpinPurpleforPoTSUK
🖼️ Illustration : Association Tachycardie Postural Orthostatique
#POTSawarenessDay #SyndromeTachycardieOrthostatiquePosturale #EM #Encephalomyelitemyalgique #vivreaveclesyndromedepots
POTS Awareness Day October 25th Postural Orthostatic Tachycardia Syndrome (POTS) is a debilitating, often unrecognised condition that can co-exist with ME/CFS. Whilst a persistent and abnormal rise in heart rate when upright is diagnostic, there are many other signs/symptoms. POTS has many aggravating factors. Aggravating factors DEHYDRATION HEAT HEAVY MEALS ALCOHOL CAFFEINE PERIODS PROLONGED STANDING PROLONGED ME RESEARCH UK SC036942 BED REST Signs/Symptoms PALPITATIONS DIZZINESS BREATHLESSNESS BRAIN FOG VISUAL PROBLEMS INFORM. INFLUENCE. INVEST. GUT PROBLEMS FAINTING/ NEAR-FAINTING TEMPERATURE SENSITIVITY ...AND MORE
ME Research UK:
Oct 25 is PoTS Awareness Day. Read more about the condition and its relationship to ME/CFS on our website:
www.meresearch.org.uk/potsandmecfs/
#pots #posturalorthostatictachycardiasyndrome #potsawareness #potsawarenessday #mecfs #pwme
The image explains what POTS stands for: "Postural," related to body position; "Orthostatic," related to standing upright; "Tachycardia," indicating increased heart rate; and "Syndrome," a group of symptoms.
🌍 October is Dysautonomia Awareness Month, and today, October 25th, we recognize #POTSAwarenessDay!
Join us in spreading awareness! Learn more about dysautonomia, orthostatic intolerance, #POTS, and OMF's research 👉 www.omf.ngo/pots-awarene....
#PoTSAwarenessDay ❗
Den hätte ich gerne, #PoTS - Awareness - Hase.
plushiedreadfuls.com/products/plush…
Happy #PoTSAwarenessDay ! I was diagnosed a little over 2 years ago now and I’m still learning how to live with PoTS day by day. I try to be open about my health issues so more people can understand what I have and how I handle it. ❤️
#disability , #chronicillness
#PoTSAwarenessDay
When I first discovered my blue-purple feet, I couldn't classify it, until I found out that it only happened/happens when I was/am in an upright position & at the same time I have problems finding words,dizziness,tremors, visual disturbances,racing heart, fainting & much more. 1/2
Heute ist #PoTSawarenessDay ❗
Als wegen #PoTS Sitzen in der Schule nicht mehr möglich war, und ich eine machbar Körperhaltung auf dem Stuhl einnehmen musste, hatte sich der Klassenlehrer mächtig aufgeregt, weil ich auf sein Mobbing nicht mehr reagierte.
Ich war dem Tod nahe❗
...
Heute ist #PoTSawarenessDay ❗
#PoTS tritt auch im Sitzen auf❗
Zwangsweises Aufrichten kann den Tod nach sich ziehen❗
Es kann Training unmöglich machen❗
Es ist eine Disregulation des autonomen Nervensystems, das die Anpassung der Blutgefäße an Orthosstase nicht mehr schafft❗
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
1) Share or take action with @UKPoTs daily posts/ideas.
2) Pledge an activity you enjoy and explain on your socials.
💜More details: Postural Tachycardia Syndrome
@UKPoTS
#PoTSAwarenessDay @DysSupport
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth 1) Share or take action with @UKPoTs daily posts/ideas. 2) Pledge an activity you enjoy and explain on your socials. 💜More details: https://potsuk.org/wp-content/uploads/2024/09/PoTS-Pledge-1.pdf #PoTSAwarenessDay @DysSupport
💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
1) Share or take action with @UKPoTs daily posts/ideas.
2) Pledge an activity you enjoy and explain on your socials.
💜More details: potsuk.org/wp-content/u...
#PoTSAwarenessDay @DysSupport
Today is #PoTSAwarenessDay. It often affects every part of our lives. Standing still and talking escalates my symptoms to the point of being close to fainting within seconds. I've had to learn to live my life very differently. Card from stickmancommunications.co.uk/product-cate...
What’s it like for a teen living with fatigue?
Find out from Libby and why spoons 🥄 are involved.
#LongCovid #TikTok #LongCovidKids
#LongCovidSymptoms #PoTSAwarenessDay
vm.tiktok.com/ZGJKFGgPo/
