Being chronically ill means my health is always trending ... backward. #ChronicLife

Cheyanne Perry — Living a Full Life with Deadly Allergies. “It’s in My Blood” is a series that feature people with chronic illnesses, and also their passions and talents.

"The goal of this #blog series is to highlight aspects of #identity that are separate from illness; however, #writing is especially helpful in compensating for the #isolation my illness causes.": buff.ly/q48CzG0

Featuring: hospitalprncss
#ChronicPain #MCAS #ChronicLife #allergies

She is Me There are days when I wake into a stillness I don’t recognise.

"There are versions of me I will never meet..These unlived #futures weigh on me like unanswered letters buried at the bottom of a desk drawer." (She is Me): buff.ly/vKCKnqT

by @leighlouharper.bsky.social
#ChronicIllness #disability #NEisVoid #SelfIdentity #ChronicLife #InvisibleIllness

Living Life with Chronic Illness: Common Problems & Their Solutions Living life with chronic illness is trickier than most people realize. This chronic illness patient shares solutions for common issues.

"A little-known part of living with #ChronicIllness is how many #appointments and how much information we deal with..I had no idea how good I had it when all of my #doctors were at the same #hospital!": buff.ly/g2RJ1om

by @katethealmostgreat.bsky.social
#ChronicLife #disability #awareness #Medicine

I’m not mad at my body. I’m just still learning to negotiate with it. #ChronicLife

Excellent walk today. My #MS had me a little wobbly, but I met FOUR new neighborhood #dogs. My favorite is when I ask the owner if I can pet them and they say, "You can try, she's really shy," and then we become best friends.

#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

Having a chronic illness means learning to make joy small but mighty. #ChronicLife

The next person who tells me my chronic pain can be cured by yoga, some herb, or fresh air is going to get punched in the neck. #Spoonie #ChronicLife

Reliving Heartbreak: Life With A Chronic Illness – Living with chronic illness is heartbreaking. Heartbreak that is repeated again and again as its worst moments are replayed over and over.

"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...

#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife

Beautiful start to days off. #insomnia #stress #chronicillness #chroniclife #ms #mssucks #sleep

Good #MS day. Had a nice, long (for me) walk, including a visit from my favorite neighborhood #cat. I've never had a direct effect on symptoms from my Ocrevus infusion before, so maybe it's in my head. In any case, I'll take it.

#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

Every doctor's appointment feels like a game of medical bingo. #ChronicLife

Joy may look different now, but it still matters.

#ChronicLife

It's #ocrevus infusion day. My MS has been on the bad side, so I'm curious to see if I'll feel better after this. I always refuse the steroids, so any improvement will be from the actual drug.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

Not sure if it’s a trauma history or #ms thing but it’s easy to see the effect of one threatening incident on my body. Starting the day pretty much in a deficit. #mssucks #chroniclife #chronicillness

You start appreciating the little things when they take maximum effort. #ChronicLife

I measure time in flares, fatigue, and the rare moments of calm. #ChronicLife

One step at a time still moves you forward.

Save this as a reminder.

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#MultipleSclerosis #LivingWithMS #MSAwareness #ChronicIllnessSupport #MSCommunity #WellnessJourney #SelfCareMatters #InvisibleIllness #ChronicLife #HealthHabits

I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife

Had the best sleep for ages but still starting the week on empty. Urgh.
#ms #mssucks #autoimmune #fatigue #chroniclife #chronicillness

Pace yourself today. The finish line isn’t going anywhere. #ChronicLife

“It’s in My Blood”: Bree Dixon — Paris Je T’aime, Even with Chronic Pain In the “It’s in My Blood” series — Bree Dixon shares her passion for travelling despite chronic pain and illness, especially with her sisters!

"Bree has an interest in #photography & combines them with her #passion for #writing on her blog. Back home, she spends..time with her beloved dogs, eating clean & also appreciates a good TV show or 2" — Learn more abt BreeDixon3 's #ChronicLife here: buff.ly/qL8g7Wo

#DisabledPeople #spoonies

My body and I are still learning how to live together. #ChronicLife

A Swashbuckling Adventure Through Hospital Windows - Ailish Sinclair Scottish author Ailish Sinclair details her efforts to find beauty through hospital windows during a period of ill health.

“During my month of cannulas, needles, tests and scary procedures, I sought #beauty where I could find it. Through the #hospital #windows. I woke the first morning to a beautiful pink #sunrise.": buff.ly/0b11CVQ

by @ailishsinclair.bsky.social
#ChronicIllness #disability #spoonie #ChronicLife

In a world that demands hustle, I honor the stillness that my body requires. #ChronicLife

The Small Life Calculating Worth with Diminished Returns

“Beth. 30 years together & she’s the foundation everything else builds on. The #relationship that survives every reduction, every #accommodation calculation, every moment when #ChronicIllness makes me difficult to #love.”: buff.ly/YTpZgGU

by @darthfoo.bsky.social
#ChronicLife #disability #spoonie

Having a very retro movie evening with Shirley Valentine.
I feel really up & down & unsteady so not sure why I’d watch this but it seemed like a good idea at the time.
#movie #moviesky #chroniclife

My invisible illness made me visible to myself. #ChronicLife

Chronic illness doesn’t come with a user manual, but boy do I have enough experience to write one. #ChronicLife

Joy may look different now, but it still matters.

#ChronicLife