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“I have spent the past 10 years ensuring that people with FASD are recognized as part of the neurodiversity movement.”

Carl Young’s advocacy highlights the power of recognition and belonging.

🌐 bit.ly/NeurodiversityBlog

#NeurodiversityWeek #FASD #SelfAdvocate #Inclusion

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People with intellectual and developmental disabilities (IDD) know their own lives best.
Peer support means learning from each other and helping each other.
Online courses. sanetwork.learnworlds.com/courses
Jump to videos. www.youtube.com/playlist?lis...

#SelfAdvocate #IDD #Neurodiversity

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New Medicaid community engagement rules in federal law could seriously harm people who are medically fragile, even though the law says they should be exempt. 

Experts from Justice In Aging will share a new toolkit to help advocates speak up now and throughout the rollout of these rules. The goal is to make sure states put safeguards in place to prevent people from losing coverage.

Zoom captioning is available for this event. If you require other accommodations to participate, please detail them in your registration. We will have the most success fulfilling your accommodation requests if they are submitted by January 7th.

New Medicaid community engagement rules in federal law could seriously harm people who are medically fragile, even though the law says they should be exempt. Experts from Justice In Aging will share a new toolkit to help advocates speak up now and throughout the rollout of these rules. The goal is to make sure states put safeguards in place to prevent people from losing coverage. Zoom captioning is available for this event. If you require other accommodations to participate, please detail them in your registration. We will have the most success fulfilling your accommodation requests if they are submitted by January 7th.

Community Webinar Alert!

Topic: An Advocate's Toolkit for Broad #Medicaid Exemption Implementation

Date: Wednesday, January 14
Time: 4 - 5pm ET

Free to attend; registration required

Link to register: us02web.zoom.us/meeting/regi...

#disability #disabilityadvocate #selfadvocate #nacdd #disabled

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#DisabilityRights #SexualityEducation #LGBTQ #AutisticAndProud #SelfAdvocate #NothingAboutUsWithoutUs #DevelopmentalDisabilities #SexEdForAll #InclusiveEducation #ElevatusTraining #Autonomy #ConsentMatters

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Replying to @WickedGenXer I’m going to tell you a secret… we ALL worry we’re just “faking it” 😭 but I’m also going to share with you what can happen if you do actually get misdiagnosed or left undiagn... TikTok video by 🔮WutUpWitches?✨

What happens when you get misdiagnosed or left undiagnosed after testing? Well, you can be your own #selfadvocate and request a second opinion.
...
#adhd #autism #audhd #adultadhd #actuallyautistic
...
www.tiktok.com/t/ZTrpuq2Rc/

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Author, attorney, and #SelfAdvocate Haley Moss explains #autistic joy, and how to be supportive of it in our latest #interview!

differentbrains.org/autistic-joy...

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The Advonet Group

Guide to Raising a Health Complaint

The Advonet Group Guide to Raising a Health Complaint

Alongside our guide on how to raise a health complaint, we also have resources that can help you to #SelfAdvocate. They include an initial complaint letter template and Local Resolution Meeting Planner.

Find them all at advonet.org.uk/resources/he... #HealthComplaints #advocacy

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If you advocate for yourself or as part of a group, thank you for raising awareness, driving change, and empowering others. Keep going - every action and effort matters and makes a real difference.❤

#selfadvocacy #selfadvocate #advocacy #advocate #healthconditions #disabilities

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Informed Consent: Why is it important?
Informed Consent: Why is it important? YouTube video by Self-Advocate Network

Projects work best when everyone agrees and understands. That’s informed consent. Let’s talk about why it’s key to success.
www.youtube.com/watch?v=Ko3a...
Start learning today: sanetwork.learnworlds.com/participator...

#PAR #IDD #Neurodiversity #OnlineCourses #SelfAdvocate

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Informed Consent: What is it?
Informed Consent: What is it? YouTube video by Self-Advocate Network

Informed consent means you get the information you need, and you make your own choice. Your voice matters, and your choice matters.
Learn more: www.youtube.com/watch?v=Wco-...

sanetwork.learnworlds.com/participator...
#PAR #IDD #Neurodiversity #OnlineCourses #SelfAdvocate

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Boundaries: Why are they important?
Boundaries: Why are they important? YouTube video by Self-Advocate Network

Boundaries protect your time. They save your energy. They lower stress. They prevent burnout. They make work more respectful.
www.youtube.com/watch?v=j36F...
: sanetwork.learnworlds.com/participator...
#PAR #IDD #Neurodiversity #OnlineCourses #SelfAdvocate

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Boundaries: What are they?
Boundaries: What are they? YouTube video by Self-Advocate Network

Boundaries are like a fence—you decide what’s okay and what’s not. They protect your time and energy, so you can focus on what matters most.
www.youtube.com/watch?v=DpJy...
Start learning today: sanetwork.learnworlds.com/participator...
#PAR #IDD #Neurodiversity #OnlineCourses #SelfAdvocate

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Accessibility: Why is it important?
Accessibility: Why is it important? YouTube video by Self-Advocate Network

When research is accessible, everyone’s voice is included. This makes the research more fair, more useful, and stronger.
Learn more: www.youtube.com/watch?v=PU1y...
sanetwork.learnworlds.com/participator...
#PAR #IDD #Neurodiversity #OnlineCourses #SelfAdvocate

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Barriers get in the way of our goals. But we can learn from them, too. Learn all about boosts and barriers in our new game.
#BoostsandBarriers #SelfAdvocate #PAR #TexasAdvocates #Neurodiversity

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Ready to catch a boost? In our new game, Boosts and Barriers, the Boosts are the best part. They show the big moments that help self-advocates reach their goals.
See how Boosts move the game—and real life—forward!
#BoostsAndBarriers #SelfAdvocate #PAR #TexasAdvocates #Neurodiversity

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Climb the boosts. Dodge the barriers. Learn all about Participatory Action Research. Getting involved in PAR is a real game changer. Come check it out at the Texas Advocates Conference.

#BoostsAndBarriers #PAR #TexasAdvocatesConference #SelfAdvocate #Neurodiversity

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You asked, and Paul answered!

Check out CDSS Awareness Leader Paul Sawka’s thoughtful responses to your top questions about life with Down syndrome in his Q&A blog post: cdss.ca/life-with-do...

💬 Have more questions for Paul? Drop them in the comments!

#DownSyndromeAwareness
#SelfAdvocate

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i #know that’s #right #selfadvocate

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No one wants to believe you have autism/ADHD, because no one wants to accommodate you. That's why. #ableism #audhd #autism #adhd #selfadvocate #fightableism

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Stay Up Late Survey We have a few (more) questions about staying up late and how things may have changed over the years. Please take a few minutes to help us understand how people are spending their evenings and what tim...

🚨 We want to hear from YOU! 🚨

Take five minutes to complete our survey and let us know if you can stay up late! We want to understand how people with learning disabilities and autistic people are spending their evenings.

forms.gle/wKoiDJXNP8ZL...

#SelfAdvocate #LearningDisability #NoBedtimes

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Jason Harris of the ELIJA School, an #autistic #filmmaker and #SelfAdvocate, shares his journey to #independence and #MentalWellness, aiming to educate others about individualized #autism treatments through storytelling and #advocacy.

📰 Read the article: autismspectrumnews.org/finding-inde...

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Laura Bousquet is proof that thriving with FASD is more than possible—it's powerful. 💪 A #selfadvocate & #parent she shares hope from the Int’l FASD Conference. Watch her story here: bit.ly/LauraBThrivingFASD
#FASD #Neurodiversity #NothingAboutUsWithoutUs #Hope #MentalHealth #Love

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My first Self Advocate conference!! 🌸 It’s going great so far. Got an advocate in me besides an ASMR content creator! 😉 Helping neurodivergent people, let our voices be heard, and educate people that we’re more than our disabilities!! 👩‍🏫✨ #selfadvocate #neurodiversity #neurodivergent

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CNS menopause Monday rang to check in, for first year of testosterone need 3 monthly bloods. I started in June, only bloods September. Heard nothing when started bout 3 monthly bloods. Am I susposed be psychic, only done cos I followed it up. #chronicillness #poi #selfadvocate

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As collegue said What is this, the patient is now following up their job! Maybe they just get lots of patients, your appointment is lost
selfadvocacy no one better to talk for you than yourself! No one knows your body better than yourself! #selfadvocate #chronicillness #healthcare #ireland #poi

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How we helped:
* Pushed the #NDIS to fast-track transport funding.
* Secured temporary transport support through the Department of #Education.
* Empowered the family to #selfadvocate for future funding.

Outcome: The student now has ongoing #transport support, ensuring school attendance.

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Fellow #spoonies #chronicallyill and #chronicpain folks don’t forget or be afraid to tell anyone this anytime you need to (different wording if you prefer of course lol)! Sucks we have to #selfcare and #selfadvocate so much (I agree!) but sometimes it is all down to us, unfortunately.

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