Heal Canada is supporting the creation of a new Advocacy Group dedicated to individuals affected by Mast Cell Disorders.

If you or someone you know is living with a mast cell disease, your voice matters.
Please contact Heal Canada: admin@healcanada.org

#MastCellDisease

Heal Canada is supporting the creation of a new Advocacy Group dedicated to individuals affected by Mast Cell Disorders.

If you or someone you know is living with a mast cell disease, your voice matters.
Please contact Heal Canada: admin@healcanada.org

#MastCellDisease

I ate 6 red seedless grapes today…w only mild discomfort. First time in nearly a decade that I’ve been able to enjoy the sweet little taste bombs due to a complex chronic immune disorder. #MCAS #MastCellDisease #HαΤ (hereditary alpha tryptasemia)

Woo hoo… I’ve been able to successfully add both organic dates and seedless watermelon into my tolerated foods. 🎉
Slowly slowly slowly patiently increasing from just two foods (🍗🥕) 8 yrs ago to abt 12 specific foods now-5 of them in the last year🤸🏼‍♂️
#MastCellDisease #MCAS #ChronicIllness #HEDS #ME/CFS

In other news-I ate a few more unsulphured organic dates today and am still alive. No serious reactions. 😁so nice to have something sweet (and also nutritious) once in a while. one more food added to the very short list of what I can now semi-tolerate. #ChronicIllness #MastCellDisease #MCAS #ME/CFS

tags for wider reach hopefully? #mcas #mcad #mastcelldisease #eds #heds #ehlersdanlos #dysautonomia #tachycardia #chronicillness #chronicpain #c19 #sarscov2 #longcovid #postcovid #mecfs #chronicfatigue #disabled #highrisk #maskup

Oooo I just had a thought…now that I may be able to tolerate duck from time to time, I can use the fat to make caramelized red onions😋 (unfortunately sans brown sugar as sugar isn’t tolerated by my grouchy mast cells ..yet😁 #MastCellDisease #MCAS ) Duck fat + pretty much anything is tastebud heaven.

😋 mmmmm…I had another roasted duck leg, seasoned lightly w himalayan pink salt. To accompany, small cubes of rutabaga crisped up in the duck fat. Heaven!
again, very mild #MastCellDisease #MCAS immune response so looks like duck may be a much-needed addition to the small list of my tolerated foods😁

"It's In My Blood": Cheyanne Perry - Living A Full Life With Deadly Allergies Cheyanne lives with Mast Cell Disease, which can trigger deadly allergies to anything. Read more about her in the "It's in My Blood" series.

"Cheyanne can’t quite eat food the usual way, and needs to be fed through a tube or IV line..She needs to carry an #epipen everywhere she goes, because just about anything could trigger #anaphylaxis.": buff.ly/zYRpCIM

#FoodAllergies #MCAD #MastCellDisease

Leg injury is colouring up beautifully…the bruises are a work of art and still forming. Thankfully pain levels are starting to ease ( #MastCellDisease immune responses to pain meds so have had to tough it out..funsies 🫩) Was able to stand for abt 10 minutes today …yayyy
#ChronicIllness #MCAS #MECFS

Dealing w a serious leg injury…so on top of usual #MCAS #MastCellDisease #ME/CFS #hEDS challenges, have been pretty much confined to the sofa, bingeing on #PBSPassport. Latest in the rota is a French legal/procedural dramedy “Munch”. S2 has really heart-wrenching moments in amongst the humour😅🥺😳😍

☺️I ate plain roasted duck thigh today. Very little reaction to it..yayyyyy. Was SOOO yummy😋.
When #MastCellDisease #MCAS affects the digestive system causing life threatening reactions to food, nutrition can become a huge challenge. So these little steps forward are huge!
#ChronicIllness

"It's In My Blood": Cheyanne Perry - Living A Full Life With Deadly Allergies Cheyanne lives with Mast Cell Disease, which can trigger deadly allergies to anything. Read more about her in the "It's in My Blood" series.

"Cheyanne is one of my favourite #ChronicIllness bloggers out there who lives with a number of chronic illnesses: #EhlersDanlosSyndrome, #Dysautonomia, #Gatroparesis and #MastCellDisease.":

Silk Road species has amazing products. In the beforetimes (before #MastCellDisease up-ended my ability to eat things) I would order quite regularly from them. Found many wonderful, unique flavours to add to meals and baking. Always top quality and fresh. 🇨🇦 #Canada #BuyCanadian

Washed, peeled and chopped a few pears for freezing (have to eat them cooked thx to #MastCellDisease) and now I have no spoons or leg strength left to make myself some lunch 😅🥺😮‍💨

#ME/CFS #Spoonies #ChronicIllness #HαΤ (Hereditary alpha tryptasemia - a genetic cause of #MCAS ) #hEDs #Pacing #PEM

So yummy…tried a teensy bit of avocado today. Had some mast cell backlash but potential is there to titrate up and maybe gain enough tolerance to enjoy even small amts occasionally to add to the few other foods I can eat. 😁

#HαT #MastCellDisease #ChronicIllness #MCAS

Lots of reasons I 😍 #Costco Canada. New reason today-needed replacement membership card. When I noted it wasn’t safe for me to remove my N95 (complex health condition), they simply took pic w it in place-no issues. My card now has my 😷 immortalized on it #MastCellDisease #MCAS #Mastocytosis #MaskUp

Is being floxed “the perfect storm or the last straw?”

To watch the full interview, click on the link👇🏼
www.youtube.com/live/4tVGaBD...

#thisisfloxed #mastcellactivationsyndrome #mcas #mastcell #floxed #FQtoxicity #fluoroquinoloneantibiotics #interview #awareness #mastcelldisease

#Sponsored by: Blueprint Medicines

Tune in to #FAACTsRoundtable #Podcast: Finding Support with #MastCell Diseases

Listen to #FAACT's Ep. 237:
www.buzzsprout.com/848314/episo...

#MastCellDisease #MCAS #Mastocytosis #SystemicMastocytosis #Anaphylaxis #Allergy #FoodAllergy #AllergyAwareness

Join us in a special event online this Mast Cell Disease Awareness month to discuss symptoms, treatment and the connection between Lyme disease and MCAS.

Book your spot here - eventbrite.com/e/unravellin...

#mastcelldisease #mastcelldiseaseawarenessmonth

STOP PUTTING AROMAS IN EVERYTHING. THE AROMAS ARE WHY I NEED THE THERAPY. 😡 #mastcelldisease

Why am I always surprised by the emotional side effects of steroids after anaphylaxis? #MCAS #MastCellDisease

Home - TMS - The Mast Cell Disease Society, Inc The Mast Cell Disease Society is a non-profit organization dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement ...

I'm a chronic illness survivor whose disability revolves around #MastCellDisease. More info about mast cell disease here: tmsforacure.org

That fun question of am I in pain bc I need to move my body or am I in pain bc I’ve been moving my body too much… and the confusion is compounded by poor sleep and a new medication for RLS that may be making things worse 🤷🏻 #chronicillness #heds #mastcelldisease #rls #chronicpain

Mastocytosis & Mast Cell Diseases Awareness Day 2024 - International Mastocytosis and Mast Cell Disease International Awareness Day The theme for Mastocytosis & Mast Cell Diseases Awareness Day 2024 is "Together in Awareness, Together in Hope".

International Awareness Day for Mast Cell Diseases. Please share and hopefully we can make more people aware of this horrible disease. (full disclaimer - I have MCAS)
#disability #MCAS #MastCellActivationSyndrome #MastCellDisease #raredisease #rarediseases

Today is Mast Cell Awareness Day - a condition my daughter and I share with our hypermobile EDS. It's an overactive immune condition. Lots of folks with #longcovid now have #MCAS. We don't want more issues, so we #maskup #vacinnate and #homeschool. #MCAS #mastcelldisease