I thought I had endless energy. I was wrong.
This is how chronic illness, perimenopause, disability and sobriety forced me to be choosy about how my limited spoons are used.
carasutra.com/2026/01/prot...
#ChronicIllness #MentalHealth #MyalgicEncephalitis #Disability #DisabledVoices #Spoonie
A bell pepper which appears to be in the fetal position surrounded by the following text as if each is a thought. "Me watching all of the long covid funding get pulled, the ending of 45 studies that were close to being finished, committees canceled that have taken decades of activism to create, one of very few research centers closing at columbia, big pharma declining the use of their drugs in mecfs trials, knowing there's nothing I could possibly do to help this and knowing I don't have the strength to advocate again."
#disability #mecfs #myalgicencephalitis #longcovid #millionsmissing #chronicillness #publichealth #iwillnotgoquietly
Credit u/thesaltpacket in r/cfs.
This is why my profile picture is important to me. It's not pretty. It's not carefully curated. But it's the first picture I took in many, many years where I looked more or less like me.
#myastheniagravis
#myalgicencephalitis
#millionsmissing
Also: see mum? I told you I wasn't just being lazy when I was unable to get out of bed
#millionsmissing
#myalgicencephalitis
#ME/CFS
#sarcoidosis
#myastheniagravis
Now imagine this with ME/CFS
#me/cfs #myalgicencephalitis #chronicfatiguesyndrome #ADHD #adhd #ADHDawareness #me/cfsawareness #chronicillness #PwME #cfs #invisableillnesses
"The results suggest that PI-MECFS may be caused by #immune system dysfunction that is triggered by #infections."
www.nih.gov/news-events/...
#longCovid #myalgicencephalitis #iaci #MECFS #immunocompromised #IgGdeficiency
