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A post for Long-Covid Awareness Day.

www.facebook.com/100061511663...

#LongCovidawaressday #LongCovid #PAIS #IACI #pwme #millionsmissing

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Wat staat patiënten met longcovid en soortgelijke ziektes als ME en q-koorts te wachten in 2026? Wanhopige patiënten met long covid en soortgelijke ziektes als ME en q-koorts demonstreerden eind november in Den Haag op het Malieveld. Zij vormen een groep van 100 duizend mensen die zulke grote kla...

Fijn om dit op 1 januari te zien. Er wordt direct weer aan de weg getimmerd. Veel dank hiervoor @zurhake.bsky.social.

#pwme #myalgicE #LongCovid #lyme #QVS #postsepsis #PAIS #PAIZ #PAIS #IACI #IACC #MillionsMissing

www.nporadio1.nl/fragmenten/n...

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On a #inflamation zoom rn. If we get thru the next 3+yrs, “FDA” must regulate & certify supplements, IMO. They’re indispensable along with—a somewhat limited # of—prescription/trial meds & therapies. And much more accessible. #MECFS #ME #LongCovid #IACI #ChronicIllness

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Um den Themen #MEcfs (mit #IACI) und weibliche Gesundheit (in Zusammenhang der Reproduktionsfähigkeit) gesamtgesellschaftlich mehr Aufmerksamkeit + Interesse zuzuführen, sollte man vielleicht die Begriffe „Abtreibung“ + „Stillen in der Öffentlichkeit“ öfters unterbringen.

🤷

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Accelerate research and care for ME/CFS & Long COVID Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...

✅️ Accelerate Research + Care 🔬 #MECFS #longCOVID

Our work impacts the lives of participants in terms of quality of life and a global community where patients + caregivers are listened to and empowered. 💙 We have many projects on deck. Any amount helps!

www.zeffy.com/en-US/fundra... ... #IACI

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"Ok, so after that (unintentional) cliffhanger, let's talk about energy production infrastructure and post-exertional malaise (PEM) in people with infection- and exposure-associated chronic illnesses (IACIs) such as #LongCOVID, #MECFS, chronic #Lyme and more. Let's start with 1/..."

"Ok, so after that (unintentional) cliffhanger, let's talk about energy production infrastructure and post-exertional malaise (PEM) in people with infection- and exposure-associated chronic illnesses (IACIs) such as #LongCOVID, #MECFS, chronic #Lyme and more. Let's start with 1/..."

David Putrino's 🎯 🧵 below connects a lot of dots and many top researchers/scientists in this space👇

threadreaderapp.com/thread/19334...

🙏 @putrinolab.bsky.social

#LongCOVID, #MECFS, #Lyme, #IACI, #IACC

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Accelerate research and care for ME/CFS & Long COVID Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...

Accelerate research + care 🔬 #MECFS #longCOVID

Our work directly impacts the lives of participants in terms of quality of life and a community where patients + caregivers are listened to and empowered. 💙 Your donations make an impact on the lives of people with #IACI.

www.zeffy.com/en-US/fundra...

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March 19, 2025
March 19, 2025

▶️ Hear what Dr. Ruhoy says about mast cells! Watch this clip (link in comment below) in our March 2025 Renegade Research #Clinician Roundtable.

🔗 Dr. Ruhoy (in this short) and Dr. Kaufman - Infection Associated Chronic Illnesses Ask Me Anything (AMA) youtube.com/shorts/P_Aei... #iaci #mastcell

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Book research on how names shift science.
How do controversial ideas become accepted in medical research and medicine?
T-suppressor cells were "debunked" and then rebranded as #Tregs.
Chronic Fatigue Syndrome now ME w/ #ChronicLyme to #IACI following #LongCOVID.
I want to hear your stories!!

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Book research on how names shift science. How do controversial ideas become accepted in medical research and medicine?
T-suppressor cells were "debunked" and then rebranded as #Tregs.
Chronic Fatigue Syndrome and Chronic Lyme became #IACI in the wake of #LongCOVID.
I want to hear your stories!

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March 19, 2025
March 19, 2025 YouTube video by Renegade Research

▶️ Hear what Dr. Ruhoy says regarding the importance of stabilizing mast cells! Watch this clip from our March 15, 2025 Renegade Research #Clinician Roundtable!

🔗 Dr. Ruhoy (and Dr. Kaufman) - Infection Associated Chronic Illnesses Ask Me Anything (AMA) youtube.com/shorts/P_Aei... #iaci #mastcell

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Long COVID Risk in Adult and Pediatric Patients Remains a Public Health Priority Long COVID remains a public health concern, with the highest disease risk observed in older adults, women, and those with preexisting conditions or severe acute illness.

" #LongCOVID Risk in Adult and Pediatric Patients Remains a Public Health Priority - "Long COVID remains a public health concern, with the highest disease risk observed in older adults, women, and those with preexisting conditions ... "

www.infectiousdiseaseadvisor.com/news/long-co... #iacc #iaci

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Less than half of Americans trust FDA, CDC to do their job Less than half of Americans believe federal health agencies such as the Food and Drug Administration (FDA) and the Centers for Disease Control and Prevention (CDC) can do key parts of their job, in…

2/ The poll, conducted in April, found 46% of people were confident the FDA, CDC and other health agencies can ensure #prescription drugs are safe and effective, while 45% felt the same about #vaccine safety and efficacy."

thehill.com/policy/healt... #iaci #ID #medX

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Anytime you see things like: "a target to rescue abnormal cerebral microvascular blood flow in #neurodegeneration" think about the infection-associated chronic illnesses #IACI as well! #TeamClots bsky.app/profile/uvmt...

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Oh wow. I clearly need to migrate over some of my threads about the #TRP superfamily of proteins in #immuology. #IACI / #IACC y'all should be paying attention to this one! "Blood flow into the cerebral microvasculature is regulated by TRPC3-dependent constriction of transitional pericytes."

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So sorry to hear. Interesting, one side here as well... my left eye. No doubt re Lyme + longCovid + lingering symptoms. There is so much overlap with #iaci. 😕🫂 Yes re Luteine. I decided to try Luteine eye drops as I have ESKD & on many supplements. Started drops a few weeks ago. Already some relief.

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Nutrition and Infection-Associated Chronic Conditions YouTube video by CoRE at Mount Sinai

Nutrition & Infection-Associated Chronic Conditions
#IACI #LongCovid #LymeDisease #ID
youtube.com/live/bJQmeye...

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Graphic of women opening a lock...

"Your story could be the key that unlocks someone else's prison. Don't be afraid to share it." ~ @Mind_Essentials 

#longCovid #MECFS

Graphic of women opening a lock... "Your story could be the key that unlocks someone else's prison. Don't be afraid to share it." ~ @Mind_Essentials #longCovid #MECFS

#longCovid #MECFS #iaci

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This #webinar starts in less than 10 minutes! See you there!

#lyme #bartonella #iaci #clinician #MD #caregiver #medX #longCOVID #mecfs

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✅️ Today! March 14 #Clinician's webinar with Tania Dempsey, MD. Join us for a 45-minute lecture on #vector borne #illnesses often seen with #MECFS and #longCovid, followed by a 15-minute Q&A. Registration link and QR code below.

https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration #lyme #iaci #bartonella

✅️ Today! March 14 #Clinician's webinar with Tania Dempsey, MD. Join us for a 45-minute lecture on #vector borne #illnesses often seen with #MECFS and #longCovid, followed by a 15-minute Q&A. Registration link and QR code below. https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration #lyme #iaci #bartonella

✅️ Today! March 14 #Clinician's webinar with Tania Dempsey, MD. Join us for a 45-minute lecture on #vector borne #illnesses often seen with #MECFS and #longCovid, followed by a 15-minute Q&A.

Registration link + QR code below

us06web.zoom.us/webinar/regi... #lyme #iaci #bartonella #clinician #medX

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Accelerate research and care for ME/CFS & Long COVID Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...

✅️ Accelerate research + care for #MECFS and #LongCOVID!

Renegade #Research (RR) is a non-profit 501c3 decentralized organization pioneering #patient and #caregiver led #research focused on #IACI.

Donations of any size are appreciated! 🙏

www.zeffy.com/en-US/fundra...

#Donate #MedSky #IDSky #MedEd

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Sign up for our email updates at www.renegaderesearch.co to be notified of upcoming #Clinician and #Research Roundtables, Newsletters, Affiliate Discount Codes, Community Updates, and exclusive subscriber content!  

#iaci #longCovid #MECFS #PEM #medsky #iacc #clinical

Sign up for our email updates at www.renegaderesearch.co to be notified of upcoming #Clinician and #Research Roundtables, Newsletters, Affiliate Discount Codes, Community Updates, and exclusive subscriber content! #iaci #longCovid #MECFS #PEM #medsky #iacc #clinical

✅️ Sign up for our email updates at www.renegaderesearch.co to be notified of upcoming #Clinician and #Research Roundtables, Newsletters, Affiliate Discount Codes, Community Updates, and *exclusive* subscriber content!

#iaci #longCovid #MECFS #PEM #medsky #iacc #clinical #MD #nurse #practitioner

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How many people really understand just how contagious #measles and other infectious associated illnesses ( #iaci ) are? #maskup

"How could my 9-month old #baby get #measles? It's a mystery, he NEVER leaves the house."

In economics they call it "importation". That's why.

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Accelerate research and care for ME/CFS & Long COVID Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...

Accelerate research & care for #MECFS and #LongCOVID

Renegade Research (RR) is a non-profit 501c3 decentralized organization pioneering #patient & #caregiver led #research with a focus on ME/CFS, Long COVID (LC) & other infection associated chronic illnesses #IACI...

www.zeffy.com/en-US/fundra...

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Infection-Related Hospitalization Linked to Heart Failure IRH linked to incident heart failure, heart failure with preserved ejection fraction, heart failure with reduced ejection fraction

"HealthDay News — #Infection-related #hospitalization (IRH) is associated with incident #heart failure, heart failure with preserved ejection fraction, heart failure with reduced ejection fraction according to a study..."

www.renalandurologynews.com/news/infecti... #iaci #iacc #longCovid #emergency

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Still learning... first saw a video on MCAS in 2021. There are so many overlapping symptoms with longCovid ME/CFS Dysautonomia POTS Lyme and other #iaci, which makes it even more challenging. Thankfully we have the chronic illness communities so we can all learn from one another.

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✅️ N95 mask

❌️ Surgical mask

❌️ Cloth mask

Difference between #surgical and #N95 and #cloth masks... see below 👇

#N95 #wearamask #maskup #airborne #droplets #virus #protection #covid #iaci #longcovid #norovirus #flu #cold #cough #influenza #mask #covid19

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OMG... this is exactly how I feel when I must go to a medical appointment. It's so very rare now. Even my monthly blood work is done in my home by a nurse.

#longCovid #ESKD #immunocompromised #pericarditis #iaci #iacc

Thanks for sharing this update @poncin-sue.bsky.social -sue.bsky.social

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Julia's Story - Living with Long COVID Julia Doubleday writes about her experience of living with Long COVID and her struggle to find treatment for multiple health issues that Long COVID has brought on

"I feel as if I’ve stumbled out of a fallout shelter, the sole survivor of some catastrophe."

publichealthactionnetwork.org/julias-story... #longCovid #immunocompromised #iaci #iacc

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🧵 4/4 - N95 masks are to protect everyone.

#safety #airborne #virus #iaci #iacc #chronic #illness #contageous #norovirus #covid

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