screenshot of a tweet by @holo_cene that reads "covid is a feminist issue. women are twice as likely to develop long covid and predominantly occupy the jobs with the most covid exposure: teaching, retail, childcare, etc. Why aren't feminist orgs talking about this?"

Would love to see @rebeccasolnit.bsky.social talk to @binitakane.bsky.social @mayadusenbery.bsky.social @meactnet.bsky.social about #LongCovid #ME #POTS #IACC and why #GreatestMEdicalScandal is a feminist issue 🙏🏻

#longcovidawareness #longcovid #longcovidawarenessmonth #fblc #pwlc #pwme #mecfs #pais #pem #iacc #covidisnotover #pandemic #sarscov2 #infection #cleanair #indoorair #healtyindoorair #covid

RFK Jr.’s new IACC appointments are here. I’m diving into the roster of conspiracy theorists, the stagnant 26-year-old 'strategy,' and why the budget for actual services is still a drop in the bucket.

youtu.be/r_f2FsaVLgM

#ActuallyAutistic #IACC #Autism #AccommodateThis

RFK Jr.’s new IACC appointments are here. I’m diving into the roster of conspiracy theorists, the stagnant 26-year-old 'strategy,' and why the budget for actual services is still a drop in the bucket.

youtu.be/r_f2FsaVLgM

#ActuallyAutistic #IACC #Autism #AccommodateThis

#longcovidawarenessmonth #longcovidawareness #pais #bioscience #globalhealth #planetaryhealth #longcovid #pwlc #pwme #fblc #covidisnotover #pandemic #sarscov2 #disability #iacc

"The best way the IACC can help my adult son, his peers, and our community’s families is to endorse research in sufficient and appropriate services, which are crucial in determining autistic quality of life. Our autistic loved ones and families are here now. We need more supports now." #autism #IACC

My Comment for The Phantom Menace IACC Meeting Leo riding the Disneyland Monorail I rarely participate in committees or agency meetings unless I can do so remotely, so I've always appreci...

If the U.S. government truly wants to invest in ways to help autistic people and their families—and not in the cures and quackery flogged by IACC members, or the hateful " #profoundAutism" parent agenda of the I-ACC, then this is where to start:

www.squidalicious.com/2026/03/my-c... #IACC #autism

So excited the #LongCOVID Treatment Guide is live! This has been over a year in the making working with the incredible team at @patientled.bsky.social!

Thanks to everyone who reviewed & gave feedback on the guide! We really hope it helps the #IACC community!

Federal Autism Panel Cancels Meeting Without Explanation For the first time in a year, a panel tasked with helping to direct nearly $2 billion in autism funds was supposed to meet, but now the gathering has been abruptly called off and it's unclear why.

For the first time in a year, a key panel tasked with helping to direct nearly $2 billion in federal #autism funds was supposed to meet, but now the gathering has been abruptly called off and it's unclear why. #disabilities #IACC

Started writing out a kindly worded thread explaining why conflating all COVID awareness posts with being anti-vax ends up punching down on the entire #IACC infection associated chronic illness community, but why bother 😮‍💨

Shout out to the #IACC #LongCOVID #Dysautonomia #MECFS crew who are stuck in this period

Pfizer External Research & Grants Announces a New Education RFP in Invasive Mold Infections 🧪

Of potential interest to the #IACC community:

cdn.pfizer.com/pfizercom/20...

The firestorm continues 😔.
There are so many reports of EBV being a trigger for #ME & studies showing viral reactivation being part of the picture for #IACC - a sad day for science.

I’m sorry you feel that way. Your contributions were important. You worked hard to keep the dangers of institutionalization in the conversation and that really matters. I appreciate your work, the #IACC is weaker without you.

Honestly it makes me feel like it was pointless for me get on #IACC all work I did there getting dismissed because I can talk now even though I was non varble and institutionized non of that matter when I can speak on it. I feel like failure.

Lisa Ackerman Joins the Federal Interagency Autism Coordinating Committee to Drive Change in Autism Policy The Autism Community in Action announces Lisa Ackerman's appointment to the IACC, enhancing support for families living with autism. Her leadership promises impactful change and advocacy.

Lisa Ackerman Joins the Federal Interagency Autism Coordinating Committee to Drive Change in Autism Policy #USA #Irvine #IACC #autism_community #Lisa_Ackerman

We are all walking petri dishes and transmission and mutation vectors
#ProtectYourselfBecauseNoOneElseWill #CovidRoulette

#FightForDavosSafeEverywhere

#CovidDamages #PostIllnessDisabled #IACC #PAISs

#CovidIsNotOver #COVIDisAirborne

#LongCovidKids
#ProtectTheChildren

#PlayTheLongGame #MaskUp_N95

Long Covid Is Real -- And It's Changing an Entire Generation Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.

"...stuck in the nurse’s office — or out of school entirely. The straight-A’s evaporated." www.rollingstone.com/culture/cult...

##ProtectYourselfBecauseNoOneElseWill #VaxAndMask #MaskUp_N95orBetter #LongCovid #CovidRoulette #CovidDamages #PAISs #IACC

Wat staat patiënten met longcovid en soortgelijke ziektes als ME en q-koorts te wachten in 2026? Wanhopige patiënten met long covid en soortgelijke ziektes als ME en q-koorts demonstreerden eind november in Den Haag op het Malieveld. Zij vormen een groep van 100 duizend mensen die zulke grote kla...

Fijn om dit op 1 januari te zien. Er wordt direct weer aan de weg getimmerd. Veel dank hiervoor @zurhake.bsky.social.

#pwme #myalgicE #LongCovid #lyme #QVS #postsepsis #PAIS #PAIZ #PAIS #IACI #IACC #MillionsMissing

www.nporadio1.nl/fragmenten/n...

Image of the founders, Dr. Jennifer Curtin and Dr. Ryan Kellogg, wearing masks with a sign of the RTHM logo

The RTHM team had an inspiring time at Mayo Clinic’s VIBE Summit, where innovators, clinicians, and researchers gathered to explore how innovation, AI, and intelligent automation can transform patient care.​

#VIBESummit #AIforGood #LongCOVID #COVID19 #RTHM_health #IACC #pwLC #pwME #MECFS

A virus can take away your life as you know it 💔 #IACC #PAISs
#MillionsMissing #MillionsMoreMissing

#CovidInfection is about 10X more likely to induce myocarditis as a #Covid19Vax
Add all other possible #IACC, including cancer from an infection - sympto, or asymptomatic.
#VaxAndMask #MaskUp_N95orBetter #ProtectYourselfBecauseNoOneElseWill #SoManyReasonsToMask

"> 300 world leaders — former Heads of State.., Nobel laureates,.. & rep's of civil society, business, & faith communities — from > 80 countries call for creation of an #IACC"

The Hernandez pardon is a case in point why we need an Int'l Anti-Corruption Court.
integrityinitiatives.org/about-the-iacc

To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! My daughter has been diagnosed with a range of chronic conditions, including Hyper-mobile Ehlers-Danlos Syndrome and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). I have approached my r...

Powerful caregiver/parent lived-experience perspective on complex chronic illness— research must include a longitudinal approach. Lived experience matters. We need studies that reflect that reality.
#MECFS #IACC #LongCOVID #MyalgicEncephalomyelitis

www.annfammed.org/content/23/6...

#CovidWave coming, just in time for the holidays
#ProtectYourselfBecauseNoOneElseWill #VaxAndMask #ProtectTheVulnerable #ProtectTheChildren #VirusesDamageTheImmuneSystem #CovidDamages #IACC #PAIS
www.instagram.com/p/DRWTtgSDaUG/

2020: Covid causes multi-organ damage, immunodeficiency, rare cancers & diseases, & death. 2021: COVID accelerates biological aging. 2022: COVID does all of that to kids too. 2023: We should "Accept Exposure." 2024: Why does everyone have cancer? 2025: Why is society collapsing?

#ProtectYourselfBecauseNoOneElseWill #CovidDamages #VaxAndMask #MaskUp_N95orBetter #LongCovid #IACC #PAIS #MillionsMissing #MillionsMoreMissing
"" @LauraMiers

This will be an agonizingly familiar read for every patient who’s encountered the 17-year lag in bringing scientific research from bench to bedside.

#NEISvoid #MECFS #IACC #LongCovid

A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...

#24 Ehlers Danlos Syndrome & Orthostatic Intolerance in Chronic Fatigue conditions with Dr Peter Rowe Podcast Episode · Make Visible: Complex Chronic Illness Explored · 2025-10-31 · 46m

Another info-packed episode on EDS & Orthostatic Intolerance;

podcasts.apple.com/ca/podcast/2...

I hope the person at NHS who is pulling together the held knowledge is using this as a resource and contacting these experts to inform policy. cc @actionforme.bsky.social

#MECFS #LongCovid #EDS #IACC