Terry Clark, TSF Ambassador for Massachusetts and NMOSD warrior, has once again secured a proclamation declaring March 2026 as #NMOSD Awareness Month.
In recognition of this effort, Governor Maura Healey met with Terry to learn more about #neuromyelitisoptica.
Throwback to when the @boston.gov was illuminated pink for TSF's #NMO Awareness Month ๐๐ฉท
#NMOSD #neuromyelitisoptica #Boston
Remembering that time when the @empirestatebldng.bsky.social was lit pink & orange to illuminate #NMO Awareness Month with The Sumaira Foundation ๐ฉท๐๐งก
To learn more about #neuromyelitisoptica / #NMOSD, visit www.sumairafoundation.org
Add my voice too. I woke up one day 11 years ago and couldn't walk. Rare disease blah blah. Things are better, but I'd rather *not* possess a handicap parking pass, if you know what I mean. #neuromyelitisoptica #nmo
One of the biggest scientific breakthroughs of 2024. #CAR-T therapy for autoimmune disease. Imagine a world where patients can receive 1 treatment and be cured! Looking forward to trials in #multiplesclerosis, #neuromyelitisoptica and #anti-MOGassociateddisorder!
www.nejm.org/doi/full/10....
Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira.
Check it out:
podcasts.apple.com/us/podcast/c...
#NeuroSky #neuromyelitisoptica
www.hopkinsmedicine.org/health/condi...
#NMO #NMOSD #NeuromyelitisOptica #NeuromyelitisOpticaSpectrumDisorder #DevicsDisease
Meet Whitney and Addison, TSF Ambassadors of Kentucky ๐บ
Addison was diagnosed with #NMOSD / #neuromyelitisoptica in 2021 and joins the Foundation as the youngest Ambassador alongside her mother, Whitney, who is her primary caregiver.
Welcome Whitney and Addison!
#SystemicExertionalIntoleranceDisease, #SEID , #autoimmune, #cysticfibrosis, #dystonia, #parkinsons, #PCOS, #cf, #Raynauds, #Sjogrens, #neuromyelitisOptica, #NMOSD, #narcolepsy, #urticaria, #idiopathichypersomnia, #Psoriasis, #PsoriaticArthritis, #UCTD, #MCTD, #hypersomnia, #CVID, #CPP, #PID,
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Hi #MedSky / #NeuroSky! ๐๐พ My name is Sumaira and I have been living with #NMOSD / #neuromyelitisoptica for 10 years. I started The Sumaira Foundation (TSF) 2 months after my DX & really excited to connect and collaborate with while learning from experts around the world on this platform! ๐ ๐ ๐